BBC https://www.scienceblogs.com/ en GcMAF and an unscrupulous quack, profiled by the BBC https://www.scienceblogs.com/insolence/2015/09/28/gcmaf-and-an-unscrupulous-quack-profiled-by-the-bbc <span>GcMAF and an unscrupulous quack, profiled by the BBC</span> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"><p>A week ago, I noted that one of the stranger and less credible conspiracy theories promulgated by quacks and their believers was <a href="http://scienceblogs.com/insolence/2015/09/21/the-conspiracy-to-kill-alternative-medicine-practitioners-continues-apace/">still going strong</a> nearly three months after the first death that triggered it, the <a href="http://scienceblogs.com/insolence/2015/07/17/gcmaf-autism-and-the-apparent-suicide-of-an-autism-quack/">death of autism quack Jeff Bradstreet</a>, apparently by suicide. Basically, three months ago, Dr. Bradstreet, who has long been a fixture in the "autism biomed" movement and a frequent speaker at autism quackfests like Autism One, was found dead in a river from a gunshot wound to the chest, an apparent suicide. A recent <a href="ttp://scienceblogs.com/insolence/2015/09/21/the-conspiracy-to-kill-alternative-medicine-practitioners-continues-apace/">story about the investigation into Dr. Bradstreet's death</a> included an interview with the investigating police officer, who described what appeared to be an open-and-shut case of suicide, although clearly many of Dr. Bradstreet's fans refuse to believe this.</p> <p>Since Bradstreet's death, there have been a number of conspiracy theories, mostly originated by Erin Elizabeth at the appropriately named <a href="http://www.healthnutnews.com" rel="nofollow">HealthNut News</a>. Elizabeth is the significant other of <em>über</em>-quack Joe Mercola, and her construction of a conspiracy involving the deaths of multiple "holistic" practitioners under allegedly suspicious circumstances, including the death of Nicholas Gonzalez has been epically entertaining. After all, Nicholas Gonzalez <a href="http://scienceblogs.com/insolence/2015/07/24/nicholas-gonzalez-the-latest-victim-of-the-pharma-assassins/">appears to have died of a sudden cardiac death</a>, and there's no compelling evidence that his death was due to anything other than natural causes. Now, each time a "holistic" practitioner dies, Elizabeth seems to find a way to <a href="http://www.healthnutnews.com/famous-nyc-holistic-doctor-mitchell-gaynor-md-found-dead/" rel="nofollow">weave the death into a grand pharma conspiracy</a>.</p> <!--more--><p>What started this conspiracy is not so much the death of Jeff Bradstreet due to suicide, though. What started the conspiracy is that Bradstreet's suicide occurred <a href="http://scienceblogs.com/insolence/2015/07/17/gcmaf-autism-and-the-apparent-suicide-of-an-autism-quack/">soon after his clinic, the Bradstreet Wellness Center in Buford, had been raided</a> by the FDA. Given Bradstreet's long history of peddling various quack treatments for autism, the raid could have been provoked by almost anything, but it just so happens that in this case it was provoked by Bradstreet's latest and greatest quackery for autism. I'm referring, of course, to Globulin component Macrophage Activating Factor (GcMAF), which is isolated from human blood and his business collaboration with David Noakes, the head of the Guernsey-based company Immuno Biotech, which manufactures and sells GcMAF The reason the time is ripe for another update on the Bradstreet saga is because the BBC's <em>5 Live Investigates</em> just <a href="http://www.bbc.co.uk/programmes/b06d9vv3">broadcast a new investigation</a> into Immuno Biotech and First Immune, which is the trade name under which GcMAF is sold. (The MP3 can be heard <a href="http://www.bbc.co.uk/programmes/b06d9vv3">here</a> and downloaded <a href="http://open.live.bbc.co.uk/mediaselector/5/redir/version/2.0/mediaset/audio-nondrm-download/proto/http/vpid/p033pj5w.mp3">here</a>. The GcMAF story starts around 5:49.) In it, Adrian Goldberg takes a tough look at Immuno Biotech.</p> <p>Before I discuss the report, I should probably do a brief recap about GcMAF. The full version is <a href="http://scienceblogs.com/insolence/2015/07/17/gcmaf-autism-and-the-apparent-suicide-of-an-autism-quack/">here</a>; the CliffsNotes version follows. So what is GcMAF? It’s an immunomodulatory protein that is found normally in the blood of healthy people. By "immunomodulatory," I mean that GcMAF activity affects the function of the immune system. The glycoprotein (a protein with sugar molecules attached) GcMAF results from sequential deglycosylation (removal of sugar molecules) of the vitamin D-binding protein (the Gc protein). The protein that results is thought to be a macrophage activating factor (MAF). MAFs are a class of protein known as a lymphokine, and they regulate the expression of antigens on the surface of macrophages. One of their functions is to “activate” macrophages, which can under the proper circumstances attack cancer cells. Of note, the production of GcMAF can be blocked by an enzyme called Nagalase (alpha-N-acetylgalactosaminidase), produced by many cancers, which <a href="http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/">led to its first incarnation in quackery</a>, as a “cure” for many cancers by <a href="http://scienceblogs.com/insolence/2007/10/04/a-kevin-trudeau-wannabe/">Bill Sardi</a> and Timothy Hubbell based on dubious science and a clinical trial that didn’t show what its proponents claimed it did and was later retracted.</p> <p>Over the years, the therapeutic claims for GcMAF expanded, so that it wasn't just for cancer any more. Thanks to Bradstreet and other autism quacks, GcMAF became the next big thing in "autism biomed," and Bradstreet was a <a href="http://www.washingtonpost.com/news/morning-mix/wp/2015/07/16/the-mysterious-death-of-a-doctor-who-peddled-autism-cures-to-thousands/?tid=hp_mm">true believer in it as a potential cure for autism</a>, as evidenced by <a href="https://youtu.be/FZ5wog0oig0">this video of one of his talks from 2012</a> touting the miracle of GcMAF. In a single-arm, uncontrolled <a href="http://www.la-press.com/redirect_file.php?fileId=4674&amp;filename=f_3450-AUI-Initial-Observations-of-Elevated-Alpha-N-Acetylgalactosaminidase-Activ_2_4670_2&amp;fileType=pdf">study published in a highly dubious journal</a>, Bradstreet claimed to have observed improvement in autistic symptoms due to GcMAF. <a href="http://www.ncbi.nlm.nih.gov/pubmed/24739187">Another study</a> with which Bradstreet was involved in claimed that GcMAF could normalize abnormal gene expression in the endocannabinoid system of autistic children, which, of course, links his work with claims made by some in the “autism biomed” movement that medical marijuana treats autism. Of course, this was an unrandomized, unblinded study.</p> <p>Thanks to the efforts of an Irish woman named Fiona O’Leary, who investigated Immuno Biotech and complained to UK health authorities, the First Immune GcMAF production facility in the UK was <a href="https://www.gov.uk/government/news/regulator-warns-against-gcmaf-made-in-unlicensed-facility-in-cambridgeshire">raided by British health authorities</a> earlier this year. They found that the facility did not meet Good Manufacturing Practice (GMP) standards and expressed concerns over the sterility of the medicine being produced and the equipment being used, leading to further concerns that the product could well be contaminated. More than 10,000 vials of GcMAF were seized and production was halted.</p> <p>So what's become of Immuno Biotech and First Immune? That's where Adrian Goldberg's report comes in. As he notes at the beginning of his report, GcMAF is represented as a "miracle cure," a claim that's not supported by science. The product is not licensed in the UK, and it's been put on the market by an entrepreneur with no medical training, a man who makes claims like: If you have terminal cancer with two months to live and use GcMAF you can confidently expect to be cancer-free in a year. I kid you not. The audio is there. Immuno Biotech claims that First Immune GcMAF can cure cancer, autism, chronic fatigue syndrome, and HIV/AIDS. For such a miracle, Immuno Biotech charges £500 for a small vial of the substance, which if you believe the hype is a bargain.</p> <p>One of the stories culled from online discussion forums sounds like a Stanislaw Burzynski story. It's a tragic story of a 6 year old girl with a brainstem tumor that's grown to the point where she can no longer function. She's bed ridden, has trouble communicating and eating, and was estimated to have only about a month to live by her oncologists. It's a heart-rending situation. The reporters also note that David Noakes recommends that people who start using GcMAF for cancer stop using conventional chemotherapy and other treatments, claiming that his treatment "rebuilds the immune system" with no side effects.</p> <p>The good thing about this report is that it brought Kat Arney, of Cancer Research UK, who wrote this <a href="http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/">excellent deconstruction</a> of the claims made for GcMAF. I actually had wanted to meet up with her while I was in London a couple of weeks ago, but unfortunately it just didn't work out between her travels, my conference, and other issues. Such is life. Here, she does a fine job of explaining why the claims made by Noakes about GcMAF are not credible. I particularly love how she echoes a statement I make a lot (as do other skeptics examining miracle cure claims for cancer) about the conspiracies cancer quacks invoke in which "pharma" is keeping a cure for cancer from you. As she points out (and as I have pointed out), cancer is such a common group of diseases that few are the human beings who have made it to adulthood who haven't had a friend or relative suffer and/or die from some form of cancer. Certainly, I'm no exception. My grandfather died of liver cancer when I was a child; my aunt died of lung cancer; my uncle died of lymphoma; and most recently my mother-in-law died of metastatic breast cancer. If GcMAF were really a cure for many forms of cancer or if there really were an alternative cure for cancer, I'd be all over it, as would anyone with a career in cancer research and treatment. We battle cancer because we've seen what it can do.</p> <p>Another point she makes that I and others frequently make is that dead people can't give testimonials. Only the living can. In these testimonials, we have no idea what conventional therapies the patients had undergone, what stage they were, and the like. I myself started this blog pointing out that many of these alternative cancer cure testimonials rely on a confusion between primary therapy for cancer and adjuvant therapy for cancer given after the primary treatment (almost always surgery) in order to decrease the risk of recurrence.</p> <p>Then there's the issue of how GcMAF is made. I didn't even really mention this in my previous post on the topic other than in passing, but GcMAF is a blood product. Part of the reason why the British Medicine and Healthcare products Regulatory Agency (MHRA) found that David Noakes' First Immune manufacturing facility <a href="https://www.gov.uk/government/news/regulator-warns-against-gcmaf-made-in-unlicensed-facility-in-cambridgeshire">did not meet Good Manufacturing Practice</a> (GMP) standards and expressed concerns over the sterility of the medicine being produced and the equipment being used, leading to further concerns that the product could well be contaminated. Also, the MHRA found that the plasma used to make GcMAF was designated for research purposes only and was therefore not intended to be used to make products to be administered to humans or used in human drug products. It was also pointed out that the filtration system in the manufacturing facility was inadequate.</p> <p>There are two disturbing parts of this story (as if the above weren't disturbing enough) that are new. The first is an interview with David Noakes, who makes all sorts of excuses for his activities, claiming that he employs doctors and claiming that the papers that were withdrawn on GcMAF were the victim of pharma and that the MHRA protects the interests of big pharma manufacturers. He invokes the "two percent gambit" on chemotherapy. He accuses the MHRA of corruption without answering the specific charges other than denying them. We later learn from a former PA who "hated everything he was doing" who worked for Noakes that he often used his own blood to make the products.</p> <p>Overall, Noakes comes across as incredibly slimy, unctuous, condescending, and, to be frank, a liar—and not a very good one. As a cancer surgeon and researcher listening to him, I felt a rising urge to reach through the computer and strangle him (metaphorically, of course). The man is a despicable quack, and hearing the story of a Swiss clinic where GcMAF was administered to desperate cancer patients for £2,000 a week to stay there.</p> <p>Of course, the way that GcMAF became famous after the death of Dr. Bradstreet was because of his claims that it can cure autism. Indeed, the report points out that David Noakes claims an 85% response rate in autism, as he <a href="https://youtu.be/FAFyem8L2BQ">does in this video</a>, and this is how the story circles around to its conclusion, with interviews with a mother who gave GcMAF to her child and a representative of the Guernsey branch of the National Autistic Society, who accused him of contacting various autism groups to promote his product. He also apparently spoke of autism as a viral disease, which shows a lack of basic understanding of the pathophysiology of autism, which is a neurodevelopmental disorder, not a disease.</p> <p>Finally, a reporter called the company posing as a customer, a mother trying to buy GcMAF for her autistic child. The company was apparently willing to sell GcMAF, as long as it wasn't shipped to a UK address. As long as the reporter provided a European shipping address, the company was willing to sell the drug, this after the MHRA had raided it months ago and shut down its manufacturing facility. The reporter's phone call was replayed, and the customer service representative was rather cagey about where the GcMAF was being sold from, telling the reporter that it was being shipped from within Europe to European addresses. Noakes, when confronted about his company selling GcMAF, claims that it's a substance that "mimics GcMAF" and that this supplement is legal in Germany and Europe and that people who order GcMAF get that supplement instead, not GcMAF—and that customers are told that. This leads Goldberg to make a sarcastic remark about how Noakes is now telling him that his company can't be trusted to provide what it says it will, after which the reporter states that she asked for GcMAF, was told about the new product, but was told she was ordering GcMAF.</p> <p>The whole thing is even more damning than I thought it would be. David Noakes comes across as what he has appeared to have been all along: An unscrupulous scammer. One can only hope that he really is shut down this time.</p> </div> <span><a title="View user profile." href="/oracknows" lang="" about="/oracknows" typeof="schema:Person" property="schema:name" datatype="">oracknows</a></span> <span>Mon, 09/28/2015 - 01:00</span> <div class="field field--name-field-blog-tags field--type-entity-reference field--label-inline"> <div class="field--label">Tags</div> <div class="field--items"> <div class="field--item"><a href="/tag/antivaccine-nonsense" hreflang="en">Antivaccine nonsense</a></div> <div class="field--item"><a href="/tag/autism" hreflang="en">autism</a></div> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> <div class="field--item"><a href="/tag/pseudoscience" hreflang="en">Pseudoscience</a></div> <div class="field--item"><a href="/tag/quackery-0" hreflang="en">Quackery</a></div> <div class="field--item"><a href="/tag/science" hreflang="en">Science</a></div> <div class="field--item"><a href="/tag/skepticismcritical-thinking" hreflang="en">Skepticism/Critical Thinking</a></div> <div class="field--item"><a href="/tag/bbc" hreflang="en">BBC</a></div> <div class="field--item"><a href="/tag/david-noakes" hreflang="en">David Noakes</a></div> <div class="field--item"><a href="/tag/first-immune" hreflang="en">First Immune</a></div> <div class="field--item"><a href="/tag/gcmaf" hreflang="en">GcMAF</a></div> <div class="field--item"><a href="/tag/immuno-biotech" hreflang="en">Immuno Biotech</a></div> <div class="field--item"><a href="/tag/quackery" hreflang="en">quackery</a></div> <div class="field--item"><a href="/tag/scam" hreflang="en">scam</a></div> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> <div class="field--item"><a href="/tag/science" hreflang="en">Science</a></div> </div> </div> <div class="field field--name-field-blog-categories field--type-entity-reference field--label-inline"> <div class="field--label">Categories</div> <div class="field--items"> <div class="field--item"><a href="/channel/social-sciences" hreflang="en">Social Sciences</a></div> </div> </div> <section> <article data-comment-user-id="0" id="comment-1316236" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443417541"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>the MHRA found that the plasma used to make GcMAF was designated for research purposes only and was therefore not intended to be used to make products to be administered to humans or used in human drug products. It was also pointed out that the filtration system in the manufacturing facility was inadequate.</p></blockquote> <blockquote><p>We later learn from a former PA who “hated everything he was doing” who worked for Noakes that he often used his own blood to make the products.</p></blockquote> <p>Having flashback right now of the time we discovered that blood offered for donation was inappropriately treated and contaminated people with HIV and/or HCV.<br /> Before that, the half-illegal traffic in human pituitaries (for growth hormone treatment) which resulted in the propagation of Creuzfeld-Jacob prion among treated people also comes to mind.<br /> Both events had quite horrific consequences.</p> <p>Noakes' wild claims aside, just the shaddy way his products are manufactured is highly disturbing, indeed.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316236&amp;1=default&amp;2=en&amp;3=" token="CVumr73L2kNkj1sxNPif40LluEckZ3VQnEZY6del8dQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Helianthus (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316236">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316237" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443419954"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>At least one of these doctors was unquestionably murdered from news reports- Dr. Teresa Ann Sievers. I wonder if Erin questions the official narrative on that case? Or is she only skeptical of the officials when they don't tell her what she wants to hear?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316237&amp;1=default&amp;2=en&amp;3=" token="EzOXHlQyDzl4k6FSqILww9J40l_8DvDqvEe7IlAm47o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Yvette (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316237">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316238" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443420295"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>GcMAF is a blood product</i></p> <p>In one form it is touted as such. But recall that there are various shysters claiming to extract it from fermented milk or colostrum, using bacteria to 'transform' bovine proteins. In the absence of any *test* for a product labeled "GcMAF", people can sell whatever they want.</p> <p>Noakes seems to have switched suppliers... after another recent interview he claims "our scientists extract GcMAF <b>from colostrum</b>":<br /><a href="http://www.autismdailynewscast.com/david-noakes-gcmaf-controversy-exclusive/30852/emmadalmayne/#comment-125425">http://www.autismdailynewscast.com/david-noakes-gcmaf-controversy-exclu…</a></p> <p>This may be what he has in mind when he talks about 'a substance that “mimics GcMAF”'. The BBC may have dropped the ball if they are still hung up on his previous association with plasma as a source.</p> <p>Worth mentioning that Noakes was previously involved in the DCA-cures-cancer business.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316238&amp;1=default&amp;2=en&amp;3=" token="09hEP1BwxyAL9yXoKYivbTcqHM_8Gf2Rpq8yvz1YbRY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316238">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316239" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443421653"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>an enzyme called Nagalase (alpha-N-acetylgalactosaminidase), produced by many cancers</i></p> <p>The University of Google advises me that it is also produced by a normal functioning body, and that the results of a deficiency are <a href="https://en.wikipedia.org/wiki/Schindler_disease">rather nasty</a>. The idea that it was a marker of or even a factor in disease seems to have been tested and disproven.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316239&amp;1=default&amp;2=en&amp;3=" token="Oj_qzApjv0NjNtjsnudetC_Ewv8EICShCLyRSJuKgc0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316239">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316240" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443423930"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"At least one of these doctors was unquestionably murdered from news reports- Dr. Teresa Ann Sievers. I wonder if Erin questions the official narrative on that case? Or is she only skeptical of the officials when they don’t tell her what she wants to hear?"</p> <p>Erin insists that she hasn't connected the Holistic Doctor Deaths (it's a form of Just Asking Questions, doncha know). She had a healthnutnews update when two suspects were charged in the Sievers murder, but sidestepped how these guys might have been part of the Pharma Lizard conspiracy.</p> <p>The latest I've seen from her was when she was proclaiming the 11th holistic doctor death of Mitchell Gaynor (not connected to any of the others, though he was supposedly in great health and his death was mysterious and he was the 11th, you know). Turns out Gaynor's death was ruled a suicide, but of course we know better since he was #11.*</p> <p><a href="http://www.nytimes.com/2015/09/20/health/mitchell-l-gaynor-59-manhattan-oncologist-and-advocate-for-alternative-treatments-dies.html?_r=0">http://www.nytimes.com/2015/09/20/health/mitchell-l-gaynor-59-manhattan…</a></p> <p>*NaturalNews is just asking questions too, saying that even if a "sinister organization" is not pulling the strings, it's, well, disturbing.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316240&amp;1=default&amp;2=en&amp;3=" token="dP9IqzqEf7b7bIed42_rGCisPmEuLWxyO3Zc4lmhpRc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Dangerous Bacon (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316240">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316241" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443423965"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>People want the magic red pill.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316241&amp;1=default&amp;2=en&amp;3=" token="Q3_ZZyFvGuDXmLf9JVx1cvM-beqW4Oqcdxe4qpn6jqU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">MarkN (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316241">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316242" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443424357"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I'm also known as tim;</p> <p>people are indeed here to kill me; psychological attack for two weeks -- 2 of them can be heard in this recording</p> <p><a href="http://www.filedropper.com/recording-347423758">http://www.filedropper.com/recording-347423758</a> </p> <p>please do spectral analysis; my father is one of the plotters; many more recordings<br /> the officer is on their take<br /> i may not leave alive<br /> i am not kidding</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316242&amp;1=default&amp;2=en&amp;3=" token="5wWIEwNPLHuZl0U814SMpjywEIibVROTgiiD5srC7HA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Gilbert (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316242">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316243" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443424813"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>fbi, please! </p> <p>the file is AMR formatt -- there are many others I don't know how to upload a whole folder<br /><a href="http://filedropper.com/recording-347423758">http://filedropper.com/recording-347423758</a> </p> <p>27688 eagle road<br /> harvest, alabama<br /> 35754<br /> phone is redirected.. contact madison county field office</p> <p>256 684 6270</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316243&amp;1=default&amp;2=en&amp;3=" token="KwtsoFUwNUsyFnNcA1fDF5_iiE7x27mrZjZ2FdAgW5o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Gilbert (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316243">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316244" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443425257"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ Dangerous Bacon</p> <blockquote><p>NaturalNews is just asking questions too, saying that even if a “sinister organization” is not pulling the strings, it’s, well, disturbing.</p></blockquote> <p>Well, yes. Of course it's disturbing. It's turning out enlightened, positive-thinking alt-med health warriors could die suddenly like the rest of us humble peons.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316244&amp;1=default&amp;2=en&amp;3=" token="HUDLnYlK3lmEVMK3s6BS7lvBHcuwqYyDK79cSdOI24w"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Helianthus (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316244">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316245" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443425679"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ Dangerous Bacon:</p> <p>Say what you will, Erin must have insider info about shadowy secret societies and diverse threats to humanity:<br /> after all, she's just warned us about the dangers of the....<br /> man bun.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316245&amp;1=default&amp;2=en&amp;3=" token="UsrnSBcgtJeNoAfSK9azyMeZGeF446qTgmBq20W5Jjs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316245">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316246" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443426166"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ Helianthus:</p> <p>It's interesting that when an alt med provider dies, followers need to attribute the death to external causes like conspiracy by pharma rather than causes like heart attacks or suicide which originate with the person. Murder for personal causes ( e.g. by a spouse or rival) also seem unlikely to them.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316246&amp;1=default&amp;2=en&amp;3=" token="BZJtftPL2QE9ZwHnry8hsRQ-lUIYIgG66Q-imBLFIFk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316246">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316247" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443429495"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>That was a great report. Definitely worth listening all the way through. I can't imagine why Noakes thought it would be beneficial to agree to an interview. I think anyone but those who are already true believers who hears that interview will see Noakes for what he is.</p> <p>About the reporter ordering on the phone, I was amazed that when asked about getting it into the UK the saleswoman recommened labeling it as vitamin D. IANAL but that seems like a huge legal liability; it's basically advising their customers on smuggling.</p> <p>I think it was Kat Arney who said that miracle cures don't make sense since the pathophysiology of these disease are so different that one cure for all of them doesn't make sense. I'm sure that's been said here before but I don't recall when. It's a nice simple argument that really cuts to the core of the magical thinking that prevades quackery.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316247&amp;1=default&amp;2=en&amp;3=" token="WpKEmnWPXOeGtEZmbnLeQvR7SErTJ6jlCpqO0KzmPUw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">capnkrunch (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316247">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316248" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443430209"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ captkrunch:</p> <p>One of the ways the quacks get around that ( different physio but same cure) is to say that:</p> <p>- all ills, cancer, heart disease, ASDs, etc- result from inflammation and then, peddle diets/ supplements that combat inflammation.<br /> - attribute everything SOMEHOW to insufficient nutrition,<br /> then sell the nutrients or 'better' food.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316248&amp;1=default&amp;2=en&amp;3=" token="vxDt-XXM4nFNF1gm667gKxTfsZde2e4N4yyL9Kskq-M"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316248">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316249" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443430604"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i> I can’t imagine why Noakes thought it would be beneficial to agree to an interview. </i></p> <p>Hubris?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316249&amp;1=default&amp;2=en&amp;3=" token="N8IpJQu3yqeKSBSZqKBJISBby2p4gVlUL4b0lrawoLU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316249">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316250" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443432167"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Good to know that nagalese is produced in a healthy body for the next time anti-vaxxers claim it's being put into vaccines as a conspiracy to give us all cancer or whatnot.</p> <p>NN/Mike Adams seem to be rejecting all my comments as spam at the moment though, and I've seen nothing even mildly critical on their pages recently. Perhaps he's gone into even more paranoid meltdown mode?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316250&amp;1=default&amp;2=en&amp;3=" token="R8Q3ludROErDxUsXMuL0YiwonOLri6UFxYD0AVqSyv4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Cate K (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316250">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316251" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443433558"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I was wondering myself why on earth Noakes would agree to be interviewed for radio by investigative journalists. Listen to the radio show while it's still available (apparently it's only available for 30 days after broadcast). He does not come off looking good at all.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316251&amp;1=default&amp;2=en&amp;3=" token="JKPDUZwaRmvjDEQuPfULGiyCVFxrQrtZpi-hXpEw25c"></drupal-render-placeholder> </div> <footer> <em>By <a rel="nofollow" href="http://scienceblogs.com/insolence" lang="" typeof="schema:Person" property="schema:name" datatype="">Orac (not verified)</a> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316251">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316252" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443433929"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>This isn't the first time that the BBC has profiled Noakes. They aired a TV investigation into GcMAF about a month before the Bradstreet suicide and interviewed Noakes in his Guernsey office. At one point, Noakes stormed out of the room and slammed the door, only to immediately storm back in and say he would finish the interview. At another, Noakes demanded that the reporter give him the tape of the interview, got up and put his hands on the camera, then threatened to break it. I don't know how his fans reacted to the segment (assuming they watched it), but he couldn't have looked good to potential marks... er, I mean, customers.</p> <p>Here is part one: <a href="https://www.youtube.com/watch?v=kL0Gqm5dx_0">https://www.youtube.com/watch?v=kL0Gqm5dx_0</a></p> <p>Here is part two: <a href="https://www.youtube.com/watch?v=Jbj7ZItgpm4">https://www.youtube.com/watch?v=Jbj7ZItgpm4</a></p> <p>(Sorry for the shit video quality.)</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316252&amp;1=default&amp;2=en&amp;3=" token="YFdnGG0S9P-t2ExxhJ9UI8ToP3wux9cmiEtJ0SiL2lw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Sebastian L. Jackson Âû">Sebastian L. J… (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316252">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316253" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443436433"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Oh, right in the GcMAF, you MTHFR.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316253&amp;1=default&amp;2=en&amp;3=" token="PO9Llmf-VzA24t-06uCcMMl5Cg3k5bGuPJngzeFECe0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Chadwick Jones (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316253">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316254" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443438226"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><blockquote>I can’t imagine why Noakes thought it would be beneficial to agree to an interview.</blockquote> <p>Hubris?</p></blockquote> <p>Indeed. This seems to be a common pattern among many alt-med snake oil salespeople. They are so sure they will be able to convince anyone to buy their wares, there is never a thought that they might fail. And if they do fail, it is not because they are wrong, but because 'conspiracy'.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316254&amp;1=default&amp;2=en&amp;3=" token="NbyHP_fTiSm1V5V0kEv2lJH6vdnslj4Nr5nhUnBdK_w"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">ChrisP (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316254">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316255" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443440059"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ Denice</p> <blockquote><p>It’s interesting that when an alt med provider dies, followers need to attribute the death to external causes</p></blockquote> <p>Yep. It looks like an obsession with control, everything should be having an explanation.<br /> (to be fair, no-one is really immune from this tendancy to look for patterns - or to think that "it" only happens to other people)<br /> To state the obvious, it's also about reinforcing their own beliefs in their leaders' importance and their own sense of martyrdom/elitism. No way this great man could have died so trivially, in the general indifference.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316255&amp;1=default&amp;2=en&amp;3=" token="KiIwWbu6nmApGUeYMwQizmQk3J9NrBmLfn0m0zgStF8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Helianthus (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316255">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316256" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443441675"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>So do y'all think Noakes is a True Believer, or a cynical fraudster who cackles about his victims behind the scenes?</p> <p>I haven't listened to the BBC report or watched the videos yet, will do so after work tonight. </p> <p>One thing to be careful of: Using VOIP (voice over internet-protocol), it is possible to get phone numbers _from_ any country _in_ any country. Thus someone could set up a UK phone number in a "safe haven" country (along with a web site) to take orders, ship the stuff from a second "safe haven" country, and have the money go via some kind of electronic funds transfer to a bank account in a third such country with the ability to transfer funds back to the UK disguised as whatever. Think of how Silk Road operated while it existed (illegal drug sales via internet, complete with delivery via legitimate parcel carriers). The same mechanisms can be used in the US. </p> <p>If we're going to shut this kind of thing down, we are going to need serious international cooperation. The key to success is to go after the bank accounts and the various funds transfer mechanisms.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316256&amp;1=default&amp;2=en&amp;3=" token="_iiX7dsnshrcRiWjVu5vDL8jLla0S1tb8NhtEjmUFEE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Gray Squirrel (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316256">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316257" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443442208"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>herr doktor bimler @ 4</p> <p>Spend enough time in internet discussion groups with autism parents,you will run into parents whose children were thought to have "autism",and have later been found to have lysosomal storage disorders,like Schindler Disease Type III.<i>All</i> types of metabolic disease that present as autism,involve regression.Doctors need to run every genetic and metabolic test possible on a child that regresses.The failure of doctors to run such tests,and to educate parents about "metabolic autism",is what creates antivax parents.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316257&amp;1=default&amp;2=en&amp;3=" token="Fe2G0xcalqm1n0nJxvcnuGgwz8xOTB8kqZByq-ZX-0w"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Roger Kulp (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316257">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316258" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443445590"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>– all ills, cancer, heart disease, ASDs, etc- result from inflammation and then, peddle diets/ supplements that combat inflammation.</i></p> <p>FWIW, the ME/CFS support groups are a good source of information about the shifting suppliers of GcMAF.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316258&amp;1=default&amp;2=en&amp;3=" token="imTViy5Au7f_Cs-AjLAq370BmCVXo3zsso3SUPBADCY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316258">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316259" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443446070"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>So do y’all think Noakes is a True Believer, or a cynical fraudster who cackles about his victims behind the scenes?</i></p> <p>To some extent he has convinced himself, is my theory. Were he just a pure con-man, he might be better at it. As it is, he doesn't seem to realise that people find his demeanour off-putting, and that this impacts on his credibiity. Patients report in their blogs and fund-raisers that Noakes' manner is disturbing, but they are reassured by the presence of his colleague Marco Ruggiero (of GcMAF-yogurt fame), who is far more personable and convincing.</p> <p><i>We later learn from a former PA who “hated everything he was doing” who worked for Noakes that he often used his own blood to make the products.</i></p> <p>This claim is unconvincing; I rather doubt that Noakes contains enough plasma to provide much of a supply. It's the word of a disgruntled ex-employee, and the BBC journalist weakens his case by taking it seriously.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316259&amp;1=default&amp;2=en&amp;3=" token="aCea5Z0bgntYRddpe3NZ9U96vgUFR6nR93GFSmDqLO0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316259">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316260" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443447702"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Early in the BBC program they mention that David Noakes ran against Nigel Farage for leader of the fascist lite UKIP. This appears to be a case of Scumbag Magnetism.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316260&amp;1=default&amp;2=en&amp;3=" token="O4hJjtJjaT7NUycizbZXI8-rDn1IEt1tlq3gV__QK_I"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Militant Agnostic (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316260">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316261" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443448306"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>If we’re going to shut this kind of thing down, we are going to need serious international cooperation. The key to success is to go after the bank accounts and the various funds transfer mechanisms.</i></p> <p>Two other GcMAF suppliers are Lesley and Trevor Banks -- erstwhile business partners of Noakes who went rogue -- through their businesses Cytoninnovations and '1st Pro Engineering'. They took up with Amanda Mary Jewell (a character who would be too obviously fictitious if she appeared in a novel), who had previously been invested in the whole MMS / Genesis II Church / bleach-up-the-bum scam, and who owns Pearl Lodge (a run-down hotel / industrial park in Bulgaria where dying patients could go for a Spa Retreat and undergo an curative regime of bleach enemas).</p> <p>So 1st Pro Engineering is now using <b>Bulgarian</b> mailing addresses as conduits for purchases and supplies of fermented-milk GcMAF.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316261&amp;1=default&amp;2=en&amp;3=" token="ZtDqpdEAbQM5wEhspPB24YO9wW4jy4xCWfkDHhC5qfw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316261">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316262" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443448726"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Herr Doktor - I wondered why these scamsters were using a location in the UK when there are a baker's dozen former Warsaw Pact countries where the authorities are prepared to look the other way.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316262&amp;1=default&amp;2=en&amp;3=" token="MhPvmWW7x4kas5OV4I1eu-2fOk3WFWvtdnpF6Ezzhfs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316262">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316263" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443448757"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>DAMN YOU, MilAg, for giving me that earworm.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316263&amp;1=default&amp;2=en&amp;3=" token="QlZfcTg80Z1k7jtf4hgFrHfFWsYR3x8dzYRAmo2_NsY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316263">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316264" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443449823"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Denice Walter</p> <blockquote><p>– all ills, cancer, heart disease, ASDs, etc- result from inflammation and then, peddle diets/ supplements that combat inflammation.</p></blockquote> <p>Oh yeah, the nagalase connection; Cousin of the toxin gambit. I remember a really awful paper that showed elevated levels of nagalase in autistics that lowered with GcMAF and supposedly corresponded with reduction in symptoms. I wish I still had it but just deleted a bunch of PDF's I had lying around yesterday.</p> <p>Sebastian L. Jackson Âû@17</p> <blockquote><p>Noakes stormed out of the room and slammed the door, only to immediately storm back in and say he would finish the interview.</p></blockquote> <p>Thanks for those links. That was hilarious.</p> <p>Gray Squirrel@21</p> <blockquote><p>So do y’all think Noakes is a True Believer, or a cynical fraudster who cackles about his victims behind the scenes?</p></blockquote> <p>The more I think about it, the more evidence I see for herr doktor bimler's thoughts in #24. That said, to me he just comes off as a slimy conman. I can't verbalize why but I get the feeling that he's a liar through and through.</p> <p>herr doktor bimler@24</p> <blockquote><p>It’s the word of a disgruntled ex-employee, and the BBC journalist weakens his case by taking it seriously.</p></blockquote> <p>Yeah, that part made me cringe a little, especially since the rest of the report was quite compelling. I wonder why they felt the need to include that when the actual truth (or at least Noakes' story) was still damning and 100 times more believable.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316264&amp;1=default&amp;2=en&amp;3=" token="Yfi3d9ORb3JpW7w2uobViObBCvUJlnyCn8lK1H4HANg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">capnkrunch (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316264">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316265" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443449879"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>This tim..i'm being blacked bagged by my father listed nym</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316265&amp;1=default&amp;2=en&amp;3=" token="6fxKfV35se8M9cZ3r1XUTX8InqABR3P-i7dSFioy7OY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Johnnyrushing@bellsouth.net">Johnnyrushing@… (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316265">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316266" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443450831"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>They took up with Amanda Mary Jewell (a character who would be too obviously fictitious if she appeared in a novel), who had previously been invested in the whole MMS / Genesis II Church / bleach-up-the-bum scam, and who owns Pearl Lodge (a run-down hotel / industrial park in Bulgaria where dying patients could go for a Spa Retreat and undergo an curative regime of bleach enemas).</p></blockquote> <p>Amanda Jewell happens to be facing criminal probes in the UK and Bulgaria. In the UK she is being investigated for promoting MMS, and in Bulgaria she is being investigated for deaths which occurred at her hotel. She and her husband spent the summer hopping around the Caribbean trying to avoid attention.</p> <p>This article is about the Bulgarian investigation, but it's in Cyrillic: <a href="http://www.otzvuk.net/news/hotel-na-anglichani-lekuva-nezakonno-rakovo-bolni-v-smolyan">http://www.otzvuk.net/news/hotel-na-anglichani-lekuva-nezakonno-rakovo-…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316266&amp;1=default&amp;2=en&amp;3=" token="dMXtNioIemownhj-N1ZTEVMnBVsoyRlbjclZmZ3A79k"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Sebastian L. Jackson Âû">Sebastian L. J… (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316266">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316267" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443451077"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>This article is about the Bulgarian investigation, but it’s in Cyrillic:</p></blockquote> <p>You can still plug it into Goofle translate. I can get the gist of it (I know several Slavic languages, but none of them are South Slavic), but it would be kind of a labor for me to read through the whole article.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316267&amp;1=default&amp;2=en&amp;3=" token="9Px1Z0F072MA54bl705px3YHqQwgnPazuB5Erwy_0ps"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316267">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316268" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443452050"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>She and her husband spent the summer hopping around the Caribbean trying to avoid attention.</i></p> <p>Alas, Amanda Jewell's conception of "avoiding attention" consists of "blogging and vlogging about the naivety of Caribbean islanders; getting into a stoush with local newspapers; then claiming to be the next target of the Big Pharma hit-squads and demanding diplomatic protection from the UK regulatory bodies".<br /><a href="http://eusa-riddled.blogspot.com/2015/08/what-fresh-hell-is-this-farnham.html">http://eusa-riddled.blogspot.com/2015/08/what-fresh-hell-is-this-farnha…</a></p> <p>She is loath to accept the possibility that drama might be in progress, somewhere in the world, without a central role for her. Her twitter feed is hilarious:<br /><a href="https://twitter.com/AmandaMJewel">https://twitter.com/AmandaMJewel</a></p> <p>(at one point she was claiming to have been the real target of the German holistic-quack / party-pill overdose incident, only she didn't make it to the meeting in time).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316268&amp;1=default&amp;2=en&amp;3=" token="rRGnMT8wVDy4S2F3gUkH2xyw0R5SKlncQgva5cgDW8c"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316268">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316269" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443453056"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>in Bulgaria she is being investigated for deaths which occurred at her hotel. </i></p> <p>Ha. The website for 1st-Pro-Engineering was down for a day or two (according to Amanda Jewell's twitter feed, it had been HACKED by the evil PHARMA HACKERS), and now it is back up, it lists their preferred physical address as an apartment in Sofia:</p> <blockquote><p><a href="http://1stproengineering.com/contact-details-customer-services">Write to us:<br /> First Pro Engineering, Sofia, Lozenets, 64 Bigla Str, Apartment 27, post code: 1164</a></p></blockquote> <p>Someone thoughtfully archived an earlier version of the website in the Wayback machine, from a time when their preferred address was</p> <blockquote><p><a href="http://web.archive.org/web/20150811235913/http://1stproengineering.com/contact-details-customer-services">Write to us:<br /> First Pro Engineering, Smolyan, 4700, Bulgaria</a></p></blockquote> <p>(that is, Pearl Lodge).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316269&amp;1=default&amp;2=en&amp;3=" token="jFUQo2rhB8Xr8YPHiiilcU16CNpdz-1dqJs_OsbVbeE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316269">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316270" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443454136"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>HDB A33 and 34</p> <p>The name Amanda Jewell rang a bell, now I know where I had heard of her before. It is very considerate of them to give the pharma hit squad their home address in Sofia.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316270&amp;1=default&amp;2=en&amp;3=" token="1cmvhULhnoBZkbzel0H-iDoNNETv3cXor9voVYbAjT4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Militant Agnostic (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316270">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316271" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443454333"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Ah, but the 1st-Pro phone number is a UK one; the Bulgarian connection is more for convenience than for actual residence.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316271&amp;1=default&amp;2=en&amp;3=" token="RrGtGvTAxklvEnK3HzGHpf7fkgZVwZDednhhHshRDQA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316271">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316272" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443454603"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>^ A UK *mobile* number, I should clarify.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316272&amp;1=default&amp;2=en&amp;3=" token="LTH0Q6jbz0XOrHCUxkSrWii6SlAjhY8fV9fxlfDeL7c"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316272">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316273" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443464021"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Yvette #2:<br /> Five out of Erin's list of 15 doctors were murdered. In two cases the intimate partner has been arrested, and in a third - that of Teresa Sievers - her husband's best friend has been charged. In a fourth police have a person of interest, and the fifth appears to have been a home invasion and robbery of a retired gynaecologist originally from California.</p> <p>@ Orac #16:<br /> Although Noakes comes over like a slimy grifter to most people over mainstream media, bad publicity is still better than no publicity. At this stage of proceedings he is hoping that a groundswell of support from the extensive online paranoid crackpot community will save him from the criminal proceedings that appear otherwise inevitable.</p> <p>@Herr Doktor Bimler #24<br /> Given how little of the alleged active ingredient is claimed to be present in the product, there's no reason why a single plasma donation couldn't be enough for a whole production lot of it.</p> <p>@capnkrunch #29<br /> The paper is called "Initial Observations of elevated Alpha-n-AcetylgalactosaminidaseActivity Associated with Autism and Observed Reductions from GC Protein—Macrophage Activating Factor Injections" and is still up, although the vanity journal it was published in is now defunct. </p> <p> <a href="http://www.la-press.com/redirect_file.php?fileId=4674&amp;filename=f_3450-AUI-Initial-Observations-of-Elevated-Alpha-N-Acetylgalactosaminidase-Activ_2_4670_2&amp;fileType=pdf">http://www.la-press.com/redirect_file.php?fileId=4674&amp;filename=f_3450-A…</a></p> <p>Of the three authors, Lynda Thyer was one of Noakes' "scientists"; Bradstreet we all know about; and Emar Vogelaar was the director of the Dutch pathology company that did most of the world's nagalase testing (he was arrested for fraud, forgery and money laundering last year).</p> <p><a href="http://www.dutchnews.nl/news/archives/2014/04/alternative_medicine_testing_l/">http://www.dutchnews.nl/news/archives/2014/04/alternative_medicine_test…</a></p> <p>@Herr Doktor B #33<br /> The German holistic-quack / party-pill overdose incident turns out to have been a gathering of disciples of Swiss psychiatrist and cult leader Samuel Widmer, who advocates the consumption of psychedelics including 2C-E for "therapeutic" purposes. This is not the first time one of his gatherings has gone terribly wrong.</p> <p><a href="http://bazonline.ch/schweiz/standard/schweiz/standard/Spuren-des-Drogendebakels-fuehren-in-die-Schweiz/story/16990405">http://bazonline.ch/schweiz/standard/schweiz/standard/Spuren-des-Drogen…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316273&amp;1=default&amp;2=en&amp;3=" token="3T2aeDq7Q6asNNMVtqBDoJ7moGlO_N0OUnG9l7xGDRU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Mrs Pointer (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316273">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316274" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443467718"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Thank you Orac for a great article highlighting this unforgivable Quackery!<br /> The fact that David Noakes is still operating this dangerous scam is downright disgraceful!<br /> He has threatened me several times for exposing his snake oil and recently told me via a telephone call that "I deserve a punishment and will get what's coming to me"<br /> Noakes is a Tyrant and a criminal who hopefully will be jailed for the crimes he has committed!<br /> Fiona O'Leary.</p> <p>ART Autistic Rights Together.</p> <p>Http//autisticrightstogether.ie</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316274&amp;1=default&amp;2=en&amp;3=" token="xOny_wi3_ZYJat92cFJi9jGUySdzTTdjB6L4YvWUYM4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Fiona O&#039;Leary (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316274">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316275" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443469228"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I was working out of a temporary Red Cross facility on Long Island after Superstorm Sandy and had a Canuck volunteer check in from Halifax. All I asked him was "Do you wish you were in Sherbrooke now?" and he sang two verses and the chorus, on the spot.</p> <p>I'm guessing it's a Nova Scotian thing.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316275&amp;1=default&amp;2=en&amp;3=" token="7-P5wY_ZpPNG_4OwYqDaEMOwwgDWVoi8LIJDedaJTv0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316275">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316276" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443470414"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>RK: The failure of doctors to run such tests,and to educate parents about “metabolic autism”,is what creates antivax parents.</p> <p>No, what creates anti-vaxxers is simply stupidity and hatred of their own children. If we had more and better science education, if women could have kids without sacrificing their careers, and if we had better support for special need kids and adults, and if we had no suburbs, we'd have no anti-vaxxers. As it is, we have a bunch of former career women slowly losing their minds in suburbia who can't admit they hate their kids and can't do what they really want: leave hubby and kids and house and drive into the sunset.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316276&amp;1=default&amp;2=en&amp;3=" token="9UGk-IQCwNDHysTuDC-Qe3algKFtInRqaRK9h4kciBg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Politicalguineapig (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316276">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316277" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443471439"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Mrs Pointer @38:</p> <blockquote><p>The German holistic-quack / party-pill overdose incident turns out to have been a gathering of disciples of Swiss psychiatrist and cult leader Samuel Widmer,</p></blockquote> <p>My reading of the report in Die Welt is that the convener of the seminar is a disciple of Widmer's drug-therapy gospel; it wasn't clear whether the rest of the group were directly linked to Widmer. They might have been talked into it by the one charismatic cultist.<br /><a href="http://scienceblogs.com/insolence/2015/09/21/the-conspiracy-to-kill-alternative-medicine-practitioners-continues-apace/#comment-418188">http://scienceblogs.com/insolence/2015/09/21/the-conspiracy-to-kill-alt…</a></p> <blockquote><p>a groundswell of support from the extensive online paranoid crackpot community</p></blockquote> <p>There seems to be an increasing cross-over between GcMAF grifters and the stalkers and stoners of the broader 'truther' community -- people who have moved on from denying any one specific official account (9/11, Sandy Hook) to a general philosophy of *everything* is a Gubblement Lie.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316277&amp;1=default&amp;2=en&amp;3=" token="e-nloi8gmjIaIhp_QjEIgDnXogszrbrxS4NjnuUtbrU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316277">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316278" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443480028"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>There seems to be an increasing cross-over between GcMAF grifters and the stalkers and stoners of the broader ‘truther’ community — people who have moved on from denying any one specific official account (9/11, Sandy Hook) to a general philosophy of *everything* is a Gubblement Lie.</p></blockquote> <p>Look on the Facebook profiles of any one of the "reverends" in the Genesis II Church. They'll literally believe anything. Their representative in the Dominican Republic at one point was obsessing with touting flat-earth trutherism. Seriously.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316278&amp;1=default&amp;2=en&amp;3=" token="WCjBqY8VevvRi08gVwH8BoG5K1KfAIWfNwq0O9KwxDc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Sebastian L. Jackson Âû">Sebastian L. J… (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316278">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316279" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443481762"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>It was a dark and stormy night when, having just read about the Coen Bros style murder of Dr. Sievers and the possibly related disappearance via woodchipper of a Missouri preacher, I readjusted the ergonomic controls on my chair to keep it from spinning around as I read further down this page about selling products made from your own blood, the Bulgarian connection, and Tim getting black bagged by his father. Suddenly, I remembered this is a sterile, rather technical blog about quackery and my cat yowled with ferocious menace.... Chair wheel on tail again, sorry, but still, <i>WTF?</i></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316279&amp;1=default&amp;2=en&amp;3=" token="5DNJzLSgeucp-9qwCvdv5ajS_XwnctmMpZZK2qyTXO8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">TGuerrant (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316279">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316280" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443484900"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Oh FFS, Politicalguineapig.</p> <blockquote><p>[I]f we had no suburbs, we’d have no anti-vaxxers.</p></blockquote> <p>Stop. Please just stop.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316280&amp;1=default&amp;2=en&amp;3=" token="ZxlbldurvIQKlImdxzYkglcnRWN0FGuaBo1gd0P4VxQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Julian Frost (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316280">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316281" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443488203"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>Look on the Facebook profiles of any one of the “reverends” in the Genesis II Church. They’ll literally believe anything.</i></p> <blockquote><p><a href="https://kar.kent.ac.uk/48402/1/Douglas%20et%20al%20-%20CTs%20and%20HAD.pdf">people are likely to believe</a> in a particular conspiracy theory if they also believe in others (Goertzel, 1994). This phenomenon occurs even when conspiracy theories contradict each other (Sutton &amp; Douglas, 2014; Wood, Douglas &amp; Sutton, 2012). ... Douglas and Sutton (2011) found that the psychological process of projection contributes to conspiracy belief, in that people endorsed conspiracy theories more when they felt they themselves would be willing to conspire.</p></blockquote> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316281&amp;1=default&amp;2=en&amp;3=" token="aQbsxfWrODNqzjHsXpmXieIeIe13ftyRPNeCX8CrFWk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316281">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316282" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443489967"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Brilliant in depth article. I have interviewed Noakes and find him to be extremely misinformed. We spoke yesterday and he told me he knows autism is a viral disease! Complete and utter rubbish and dangerous to say with naive gullible and nd vulnerable desperate to try anything.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316282&amp;1=default&amp;2=en&amp;3=" token="PkdiS501vEBWubPx0xIGnEeHnfrKNI-B-3MLPtq9Nbc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Emma Dalmayne (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316282">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316283" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443492229"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As someone who has had face to face dealings with David Noakes. It is my opinion that that he does actually belive much of the bonkers conspiracy theory stuff he spouts. The scary thing is how easily he seems to have been able to convince people that he is right.<br /> I assume he moved to Guersey for the favourable tax, but I think he also hoped that as we were outside the UK/EU there would be less restriction on his activities. His modus opperandi locally was to turn up at support group meetings and announce he could cure ( whatever). He seems to have unshakeable self belief and is arrogantly patronising about parents like my self who have challeneged the claims he makes, we autism mums apparently dont want our children improved beause being an autism mum makes us feel special and Noakes thinks it is morally indefensible that people like me should deny autistic children the chance to be cured.<br /> He seems incable of realising how illogical much of what he says is and he trots out utter garbage with complete confidence.<br /> He rubbishes my opinions on GcMaf as worthless becuase I am not a scientist or Doctor. Niether is he but his opinions are supposedly more valid becuse he is quoting 200 drs and scientists who have written 120 scientific papers and GcMaf has been used to treat 9,000 people for 50 diseases.<br /> On average then 4 drs, 2 to 3 papers on 180 patients per disease!<br /> The best claim yet from DN has to be one he made last week on some obscure US radio station --- vacines are dangerous because they contain mercury, nargalese and ..... viruses!</p> <p>Yes folks, vaccines actually contain viruses .... bet non of you knew that eh!<br /> Never mind big Pharma hit squads it says much for my self restraint that I havent strangled him myself.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316283&amp;1=default&amp;2=en&amp;3=" token="Ucm2SLPQCiyUm0_SEqL9Fph96d3imBpvR3BuSQAgPog"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Catherine Hall (not verified)</span> on 28 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316283">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316284" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443511916"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Mrs Pointer@38</p> <blockquote><p>Of the three authors, Lynda Thyer was one of Noakes’ “scientists”; Bradstreet we all know about; and Emar Vogelaar was the director of the Dutch pathology company that did most of the world’s nagalase testing (he was arrested for fraud, forgery and money laundering last year).</p></blockquote> <p>Thanks for the link. I thought it was a Bradstreet paper but this is the first I heard of the other two. The company you keep, huh...</p> <p>herr doktor bimler@42</p> <blockquote><p>There seems to be an increasing cross-over between GcMAF grifters and the stalkers and stoners of the broader ‘truther’ community — people who have moved on from denying any one specific official account (9/11, Sandy Hook) to a general philosophy of *everything* is a Gubblement Lie.</p></blockquote> <p>When I was searching for that GcMAF paper yesterday I noticed that there was <a href="http://www.abovetopsecret.com/forum/thread836545/pg1">a GcMAF thread</a> on Above Top Secret. For those of you unfamiliar it is a repository of every batsh!t conspiracy out there. It's funny how at home Big Pharma conspiracies are alongside credulous discussions of Dulce Base and Skinwalker Ranch.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316284&amp;1=default&amp;2=en&amp;3=" token="iBkjnBDorI7cV-xzy8CvbuVRS0xAaRnYTiHnO6eArsM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">capnkrunch (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316284">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316285" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443517438"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>JF: Look, the truth is, without Park Avenue, Orange County and suburbs across the US, the anti-vax movement wouldn't have the huge support that it does. Suburbs foster a particular environment, in which there is little cooperation, high competitiveness, low services and few social networks that don't involve one-upmanship. Therefore, you end up with a bunch of miserable families, who end up turning on the most vulnerable members, falling for a bunch of conmen and preying on vulnerable people from the urban population.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316285&amp;1=default&amp;2=en&amp;3=" token="n0abyRnF4iin-yZHis9Xor8mah3GFmtyB3mnmONeiLA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Politicalguineapig (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316285">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316286" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443531202"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@PGP: just STOP! You come across as a bigoted jerk. Please stop generalizing all people from the small sector you've experienced, and the things you read on the internet. You know nothing about the rest of the country. Not everyone who lives in the suburbs fits your picture - goodness knows, *I* don't. Stop the knee-jerk mouthing off.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316286&amp;1=default&amp;2=en&amp;3=" token="O19DV2-Kk1GeUlhdWYSQ4lOm6vcmFNG-geub1MarmDE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">MI Dawn (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316286">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316287" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443531515"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"Look, the truth is, without Park Avenue, Orange County and suburbs across the US, the anti-vax movement wouldn’t have the huge support that it does"</p> <p>Not even remotely close to the truth. Our local lab school is the only high school in the county with 100% vaccine compliance and you better believe the kids there and their parents fit your silly soccer-mom stereotype.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316287&amp;1=default&amp;2=en&amp;3=" token="jDXp1Tp4qB8W3OuhULqxmH7NCu4FF5zxgs07Z_MMmKk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316287">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316288" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443540045"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>a groundswell of support from the extensive online paranoid crackpot community</i></p> <p>I am impressed how much faster things develop now. A few months, none of these nimrods had ever heard of Nagalase; now it is an <b>article of faith</b> that a normal, necessary enzyme is in fact an unnatural product cooked up in a lab somewhere, alien to all life-forms, and if you find any in a human body then it must have been injected in childhood vaccines and has lingered around ever since.* As part of the Depopulation Agenda.</p> <p>Thus <a href="https://twitter.com/AmandaMJewel/status/644432831326851072">Amanda Mary Jewell</a>:</p> <blockquote><p>We are now testing ALL vaccines to see if nagalase has been introduced in them or similar. We all need to know this answer!</p> <p>If Nagalase or similar is found in any of the vaccines we are going to inform the world. Testing has commenced, I will speak TRUTH!</p> <p>We r testing the vaccines, its only a matter of time until we will 100% know truth. The lab is working on this now! </p></blockquote> <p>* Previous claims <b>from the same people</b> that Nagalase is produced in the body by viruses and cancers are no longer operative.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316288&amp;1=default&amp;2=en&amp;3=" token="zX-hpsBQFAYvYjNHvrzhtghBGwFC1RuzCfoJjeLM5zc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316288">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316289" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443544922"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Dawn: How can it be bigoted? Most of the anti-vaxxers are whiter than I am.Not to mention far richer.. </p> <p>Shay: Our local lab school is the only high school in the county with 100% vaccine compliance and you better believe the kids there and their parents fit your silly soccer-mom stereotype.</p> <p>Well, there have to be outliers..</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316289&amp;1=default&amp;2=en&amp;3=" token="eFPCJb8vTeZ1hzvYjKMeFxWlpduN14CJZhhhYzKl668"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Politicalguineapig (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316289">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316290" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443545173"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>PGP@ 50: For goodness sake, let this insanity about suburbs are evil go already. It's an obnoxious fixation and makes you look as foolish as all the other conspiracy theorists.</p> <p>Also: anti-vax? Way, way older than suburbs. Dates back to when the only vaccine was for smallpox. Stop being so ignorant and small-minded.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316290&amp;1=default&amp;2=en&amp;3=" token="Ie8XbSkGh3S-sXw8fSZqvwjb00xQEvKt_jr44KvGZZs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JustaTech (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316290">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316291" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443546498"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>PGP, when you stereotype all members of a demographic, you're a bigot. It has nothing to do with skin color...you're as prejudiced as any member of the KKK, not only because you refuse to see people as individuals, but you because take your prejudice to ridiculous extremes. All suburbs? Seriously, all suburbs?</p> <p>I'd call you an idiot except that you aren't. I'm not sure what to call you. Denice may have a name for your condition.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316291&amp;1=default&amp;2=en&amp;3=" token="J5KyvxvuPhXDmZRGyMv-tzyxJiLymq6MzSGQZakgDiE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316291">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316292" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443552574"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Of course all these cases are murder. If you're a true altie, you won't ever die.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316292&amp;1=default&amp;2=en&amp;3=" token="xp1bzeEReEoMfXiop0VmBbbdVQRmxqpEgtP5qZtwceM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Old Rockin&#039; Dave (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316292">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316293" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443552869"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ shay:</p> <p>I'm not sure what to call it but</p> <p>- I think that it's mostly self-protective and a way to separate herself from a group she dislikes<br /> - Actually, there's a grain of truth in the stereotype: after all didn't Orac do a post about research that showed that anti-vaxxers were predominantly white and well off?<br /> - PGP sometimes mixes up "some" with "all".</p> <p>Stereotypes are shortcuts as well as armament. Perhaps seeing a disliked group as being NOT very different from yourself is painful so exaggeration is necessary for separation.</p> <p>I think that PGP suffers from anxiety which makes social threats seem more likely and closer than they really are- you're always vigilant and anticipating attacks. It's not easy to live like that</p> <p>It's possible that she's had early contact with a group of people who did not treat her well and who fit the stereotypes.</p> <p>Actually, there is a nearby Posh Town SOME of whose denizens are so artfully, sickeningly politically correct and nature-loving, so preciously bohemian bourgeoise that I can't stand going there-<br /> even though they have very good restaurants and films- even though I'm just as liberal as they are and enjoy many of the same things they do- art, fashion, foreign films, ethnic restaurants.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316293&amp;1=default&amp;2=en&amp;3=" token="Mhk2fif8AmdLDQLnm2vXxKd3jgId_EiILUzTbmfruOU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316293">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316294" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443566103"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>The stuff works. All of the propaganda in the world won't discourage people from seeking a cure. Watch any of the 3,000 YouTube videos - there isn't a single negative posting.</p> <p>As smears go, this one is a little more florid than most.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316294&amp;1=default&amp;2=en&amp;3=" token="cmxOHDkG4D79YceidPWD5HW0pFi_M3AaUqrMsVBpp7w"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">zenpiper (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316294">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316295" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443577251"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Politicalguineapig:</p> <blockquote><p>Suburbs foster a particular environment, in which there is little cooperation, high competitiveness, low services and few social networks that don’t involve one-upmanship.</p></blockquote> <p>I LIVE in a suburb, and I can tell you for a fact that that is not my experience. There is a good deal of cooperation, and services are pretty good.<br /> Please. Just. Stop.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316295&amp;1=default&amp;2=en&amp;3=" token="NkJUTf2b8vXc51MOBluN2q6rqn-4Baa8QbMgi-rYrKo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Julian Frost (not verified)</span> on 29 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316295">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316296" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443606120"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@zenpiper, YouTube videos are not evidence. Try again.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316296&amp;1=default&amp;2=en&amp;3=" token="jpxD5hr4ZUxTf8yoCZQ4ekWUw7_x1Ny6G_PHW6JJ9KQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Julian Frost (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316296">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316297" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443647040"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i> Watch any of the 3,000 YouTube videos – there isn’t a single negative posting.</i></p> <p>Dead people rarely post on YouTube XD</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316297&amp;1=default&amp;2=en&amp;3=" token="LAOEGPVnaFlE-D-pYJA3xe_xEqias1c1GXegkk2q7T4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Box Turtle (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316297">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316298" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443647561"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>I assume [David Noakes] moved to Guersey for the favourable tax, but I think he also hoped that as we were outside the UK/EU there would be less restriction on his activities.</i></p> <p>There was also an element of "Ah, a wee Channel Island far from civilisation, they're all country bumpkins there; I can wander around scattering largesse upon the populace, and they will tug their forelocks and look up to me as Lord of the Manor."</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316298&amp;1=default&amp;2=en&amp;3=" token="EbaLO5sPt5Vn13vHzmhsvQb_L96eK8FpsJQcY0BgRsY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316298">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316299" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443661650"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Pity you dont have the courage to put your own name to this "expose?" Hiding from what? You do not need to stress about being "suicided" as not important enough. Do you know nothing about the FDA at all?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316299&amp;1=default&amp;2=en&amp;3=" token="94uGHgFpq21eX5oLiqtQekOYh0DZl23gWqkAlsnHdhk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Judith Allison (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316299">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316300" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443662331"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Gutless would not post my message!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316300&amp;1=default&amp;2=en&amp;3=" token="_5iS8r-ylguwjRn877Z0bbHA_iBxpOh9RLbBfJmzfco"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Judith Allison (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316300">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316301" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443663317"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Apologies - my initial message posted</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316301&amp;1=default&amp;2=en&amp;3=" token="GHyp7zRL05ubfKF8R0Yx7pUzxaSMlVqN5xmMCi_U8hs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Judith Allison (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316301">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316302" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443663410"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Judith Allison:</p> <blockquote><p>Pity you dont have the courage to put your own name to this “expose?”</p></blockquote> <p>Click on Orac's name at the top of the page. It will take you to the "About" Page that reveals Orac's true name. This is regarded as an unofficial intelligence test. You failed.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316302&amp;1=default&amp;2=en&amp;3=" token="ozm81R-GCL9ovkAD-LimAJosZYdD2ONaNq9ra9yGsbg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Julian Frost (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316302">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316303" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443664703"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Lucky Orac, here is someone from Australia to explain to you what the FDA is!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316303&amp;1=default&amp;2=en&amp;3=" token="lZ6XGkzYMHgzmfQAjA14CK6AaCkJJqeSHC3g3vyiafc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 30 Sep 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316303">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316304" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443678583"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>OT, but could someone please fix the interface? The "recent comments" list is very useful for frequent readers. </p> <p>Thank you.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316304&amp;1=default&amp;2=en&amp;3=" token="0eCbF0473LwJu_KfsVHzLXHLRAN8N6VwztaLJzS4xWg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Sheepmilker (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316304">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316305" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443705920"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"OT, but could someone please fix the interface?"</p> <p>And I want a pony.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316305&amp;1=default&amp;2=en&amp;3=" token="aL6MenInjtRFS5qdyzOTRPADTBq3MzyMCqFYyBF179s"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">rs (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316305">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316306" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443706509"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>And I want a pony.</p></blockquote> <p>Don't go to Popehat with that kind of attitude.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316306&amp;1=default&amp;2=en&amp;3=" token="UiaQkPtha9VLg6AdIwIwnhJ8DZNk5U5NL2LWRptJOsw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316306">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316307" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443708312"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"The “recent comments” list is very useful for frequent readers."</p> <p>It is showing for me on Chrome and Windows Explorer. The latter shows the RSS feed better:<br /><a href="http://scienceblogs.com/insolence/comments/feed/">http://scienceblogs.com/insolence/comments/feed/</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316307&amp;1=default&amp;2=en&amp;3=" token="BeL80tVeFVeh0zMXJlkQSrJOtJ3WPXEb239miZCQhzQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Chris (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316307">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316308" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443708373"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Should clarify MS Windows Internet Explorer shows the RSS feed better than Chrome.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316308&amp;1=default&amp;2=en&amp;3=" token="wUUa244RT2yCGfBLaR_mb0ukz0dWVpnioE0IFJES_Qg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Chris (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316308">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316309" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443708727"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>It's showing for me in Firefox on my laptop and desktop, which both run Ubuntu. It doesn't show on my Kindle-thingy, though, which uses Amazon's "Silk" browser. I thought perhaps it was a new "mobile" interface? It is annoying, in any case.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316309&amp;1=default&amp;2=en&amp;3=" token="IC55N6cMa_0fYs9WbTag3fQ6xJLKYOWVf8yeFXsYyJ8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316309">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316310" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443710652"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"Don’t go to Popehat with that kind of attitude."</p> <p>Heh! Any attitude is acceptable if one only lurks. But just to be clear, I was not criticizing Orac.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316310&amp;1=default&amp;2=en&amp;3=" token="J9sWwsuqpggtbBD14wpD97tvqs-TfXrCNLBEYFdvXXo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">rs (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316310">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316311" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443710868"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>I thought perhaps it was a new “mobile” interface?</p></blockquote> <p>So did I, but it looks just as bad on my phone. No list of recent comments on any device in the place.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316311&amp;1=default&amp;2=en&amp;3=" token="vxZnAoCVNNmysvRjtSiWNQaWvKOmBRNn-sCXCgBKbDE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316311">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316312" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443712069"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>I thought perhaps it was a new “mobile” interface?</p></blockquote> <p>Are you in Alabama? If not, that may be the issue.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316312&amp;1=default&amp;2=en&amp;3=" token="F2GGGDRkOcUZthTg_KSSPsxBhj2PmdBQlGr9yOeHf9A"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316312">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316313" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443713966"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>It looks OK on my Kindle (I prefer the Ocean browser you can get free in the Amazon store) as landscape, though no list of recent comments, but portrait mode looks awful. Whoever tried to make this site mobile-friendly screwed up, which is very easily done, to be fair.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316313&amp;1=default&amp;2=en&amp;3=" token="KQhpfgVo2beYpDAKfwJWYnyJNbhEn_6gKxndSp6laD4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316313">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316314" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443716826"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Whoever tried to make this site mobile-friendly screwed up, which is very easily done, to be fair.</p></blockquote> <p>I've seen some bad mobifications (the first SBM iteration springs to mind), but this absurd. The basic fact of the matter is that mobifying an <i>entire site</i> rather than detecting the user agent and serving the appropriate style is pathognomic of wholesale incompetence, not that there's ever been any question that that was the case hereabouts in the first place.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316314&amp;1=default&amp;2=en&amp;3=" token="C-i19_l_bz-w0iQBYPxkn0NL5F5zJP9nRQbPVec7UrU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316314">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316315" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443717180"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"I’ve seen some bad mobifications (the first SBM iteration springs to mind), but this absurd."</p> <p>What changes? I checked Chrome, Internet Explorer 11 and Firefox, and it looks just the same as before.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316315&amp;1=default&amp;2=en&amp;3=" token="hXNWXa4I_7xD7ehP32CGyo9w6sjFnRQJH-IAHau7gXc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Chris (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316315">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316316" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443717986"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>On my iPhone the stuff on the right hand side of the page is just a grey band. On my PC everything looks fine.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316316&amp;1=default&amp;2=en&amp;3=" token="wKVZySbBE12UrkaU4TmF7P7STYSw3DSXIxG8TkTc8Xk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316316">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316317" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443718089"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Chrome on my iPhone has the same issue.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316317&amp;1=default&amp;2=en&amp;3=" token="4XhLuZG8M28iFLXbqISz47lw1EZpC2OEh5lzOE2oTOY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316317">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316318" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443721793"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Add another reason for me not browsing on my tiny smart phone. This morning RI looked fine on my tablet (though it does have trouble with some pages, for a couple of days a comics site could not be viewed).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316318&amp;1=default&amp;2=en&amp;3=" token="2WZUdYjwOWZ4utW3aCo5TjK_3xt1Xeou2lZVgTIqg24"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Chris (not verified)</span> on 01 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316318">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316319" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443885939"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>All of the "comments" on this site seem to be written by the same person. ScienceBlogs is a fraud set up by Big Pharma to confuse people and create doubt about the murder of Dr. Bradstreet and at least eight other doctors.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316319&amp;1=default&amp;2=en&amp;3=" token="bvcQdjsTw8eR0QbgQQiqijGkhMRP5gCP-THuHk51Wkk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Bill Murphy (not verified)</span> on 03 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316319">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316320" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443919094"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>And we're all Bonnie Offitt.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316320&amp;1=default&amp;2=en&amp;3=" token="Ya18_w13I__NyCqvA2oNawdghvvUh6GBftRbvhKd4hg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 03 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316320">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316321" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443919977"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Does this comment seem to have been written by the same person who wrote your comment? All the comments on all the other blogs? That person must be really busy, to be able to discuss medicine, biology, physics, librarianship, information science, and all the other topics SB covers.</p> <p>Scienceblogs has been around since at least 2006.<br /> I don't know long RI has been here. Your accusation is that Big Pharma plotted, nearly ten years ago, to off "Bradstreet and at least eight other [unidentified] doctors", and included Scienceblogs as part of their planned coverup. All the other blogs are part of the coverup, too, I suppose: or are they just covering up for the coverup? Yeah, right.</p> <p>Betcha a nickel Bill Murphy never shows up to address any of these points.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316321&amp;1=default&amp;2=en&amp;3=" token="sP18vQQ6ch8gTbsHE2bqeSKFp_LKc7UAkNBEZQ2S2Do"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Bill Price (not verified)</span> on 03 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316321">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316322" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443923314"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>create doubt about the murder of Dr. Bradstreet and at least eight other doctors.</i></p> <p>Care to predict who's next? Because if your cool story can explain everything but predict nothing, then sorry, it's not a theory -- it's a brain-fart.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316322&amp;1=default&amp;2=en&amp;3=" token="67xISMRs58SxRpTaLRpmCiieffYZQBq2ANDinxKDQl0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 03 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316322">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316323" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443945327"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I am glad that all of these other faux-people parts of my personality keep commenting while I'm eating, sleeping, or working, so that I/they/we can keep up our goal of doing Pharma's dirty work. The best part is that by splitting myself into so many "posters", I get to keep all of the filthy Pharma lucre! </p> <p>Keep up the good work, other selves!!</p> <p>After all, according to the billions/quadrilliions-of-health-freedom-fighters loon, I/they/we/it have compelled the remaining "cutting-edge" docs to arm themselves and/or hire full-time security to avoid becoming the next Holistic Victim. </p> <p>We/they/I/it/Bonnie are having a real impact!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316323&amp;1=default&amp;2=en&amp;3=" token="NBirjkUQhtL3GLihVrDllTxNj-6vjMYfR9F1_jKAsDc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Dangerous Bacon (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316323">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316324" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443951723"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Dangerous Bacon is correct.</p> <p>As one of his/ our multiple-personae, I/ we am/ are pleased that someone has DISCOVERED my/ our secret.:<br /> it's so much better psychologically to come out and stop pretending that I'm/ we're( an) individual/ s personality/ies with separate lives, talents and abilities. Also I/ we need never to share my/ our profits.<br /><a href="mailto:F@ck">F@ck</a>, I/we am/are legion!<br /> AND fun at parties.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316324&amp;1=default&amp;2=en&amp;3=" token="SOlecqCYDknOvsXxK-hBBKpw96P7uxSQvLIHwDhbZ30"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316324">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316325" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443954660"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As my/one of my feminine self/selves, Denice is dead on target.</p> <p>I applaud her/myself. It is a reminder of why I/she/we are such party animals as well as filthy rich.</p> <p>There's a party in my mind...And it never stops<br /> There's a party up there all the time...They'll<br /> party till they drop<br /> Other people can go home...Other peoplle they can split<br /> I'll be here all the time...I can never quit</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316325&amp;1=default&amp;2=en&amp;3=" token="rX8HV36Ufj60e-jPl1sLoQb1SX371HIGXP-fSTkRtFM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Dangerous Bacon (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316325">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316326" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443960907"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"shill" - the last refuge of the reality-challenged.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316326&amp;1=default&amp;2=en&amp;3=" token="-ieLaJ67pqOdymA5y16LAARymcnE3ieumY8eVsbY_ro"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316326">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316327" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443962239"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Pharmborg!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316327&amp;1=default&amp;2=en&amp;3=" token="Y0xWYE13JBxHHKgpSFyisb81QdMKW3DWymOD1D14880"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">doug (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316327">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316328" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443965698"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Pharma-pharma-pharma-Chameleon!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316328&amp;1=default&amp;2=en&amp;3=" token="3jNHLJjhP7kTtxTq72ZwTKKP5v_fiIBsGNgstGprKnc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316328">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316329" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443967108"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>On my iPhone the stuff on the right hand side of the page is just a grey band.</p></blockquote> <p>Same thing on my Android (in both Firefox and Dolphin), but this was actually a later development; the first version occupied the whole width, with the comically oversized topics block taking up the entire screen on page load.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316329&amp;1=default&amp;2=en&amp;3=" token="yQ3bg2FMSw2B4WyYMYDh1pUTQElepX_-gHs8WsNqAKA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316329">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316330" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443973054"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><b>Oho!</b> I was scouting around for a cached version or stored image to illustrate the before and after to Chris. When this failed, I thought it might be obvious from the CSS. This involved a lot of poking around with random version numbers, but...</p> <p>Blocking h[]tp://scienceblogs.com/wp-content/themes/ngs-science-blogs/ngs-science-blogs-base/css/responsive.css?ver=4.3.1 restores the previous appearance.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316330&amp;1=default&amp;2=en&amp;3=" token="bZ0njQQIfL19mglxOgSNNc3rv-LOMv24oJJiurSRWDc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316330">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316331" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443973596"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>^ Which, by the way goes <b><i>ever further</i></b> to demonstrate the screaming incompetence in play: that's a matter of a tiny bit of JavaScript to choose whether to turn that damn fool wrapper on or off.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316331&amp;1=default&amp;2=en&amp;3=" token="XZd5JcipT3Sggwvbsb31FvbxMeW4XegtiqJDc6sL3wQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316331">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316332" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443978967"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>On another computer that only has Chrome I noticed the lost "recent comments" bit. But it popped up when I widened the window.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316332&amp;1=default&amp;2=en&amp;3=" token="Tmtnsbtrtv7pjvrMgZEYbaFrMIDVRaWi00UJDFI2oJU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Chris (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316332">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316333" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443982275"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>On another computer that only has Chrome I noticed the lost “recent comments” bit. But it popped up when I widened the window.</p></blockquote> <p>So it goes. I'm pleased as punch to be able to dispense with the mess entirely.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316333&amp;1=default&amp;2=en&amp;3=" token="1RUS05YStCIDiWLwW-yUpaze0RB1jjZ6k04SMwtFrEE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316333">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316334" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1443983022"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As my brother says, there are two classes of IT support people. Those who do things for you and those who do things to you.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316334&amp;1=default&amp;2=en&amp;3=" token="3zcfF4snNpykjBvqvJp_uMhRTNpCCpXf4EcHDbzvsSw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">doug (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316334">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316335" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1444015653"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>shay@85:</p> <blockquote><p>And we’re all Bonnie Offitt.</p></blockquote> <p>Except, of course, for Bonnie Offitt, who is really Bill Murphy.</p> <p>Denice Walter@89:</p> <blockquote><p><a href="mailto:F@ck">F@ck</a>, I/we am/are legion! AND fun at parties.</p></blockquote> <p>Wait, we had a party and didn't invite us? Man, this hivemind sucks!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316335&amp;1=default&amp;2=en&amp;3=" token="BVmh9DDqsHrkTuYD9SXYM4dA23XbPPPhD9J3NWETuoc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">has (not verified)</span> on 04 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316335">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316336" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1444032000"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ has:</p> <p>We're ALWAYS having parties because it's always 5 o'clock somewhere.<br /> Read your/ our messages.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316336&amp;1=default&amp;2=en&amp;3=" token="VNosOpvCjtx1PeCaru16OjvKykcOO05duGP4in1E9m8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 05 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316336">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316337" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1445356328"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Quackery?! Total Hypocrisy!<br /> Like "vaccines contain viruses...crazy?!<br /> You know NOTHING about mordern medicine and all its evils.<br /> Ignorant dangerous scum.<br /> Look up IG Farben<br /> the SAME convicted Nazi War criminals that built the Chemical factorys in Auschwitz etc are NWO the Chairmen<br /> etc of the Worlds Largest Chemical/Pharma companys<br /> And I quote for you MORONS....<br /> Of the 24 directors of IG Farben indicted in the so-called IG Farben Trial (1947–1948) before a U.S. military tribunal at the subsequent Nuremberg Trials and<br /> served prison sentences but later became leaders in post war-companies include:<br /> Fritz ter Meer, becoming chairman of Bayer AG<br /> etc....<br /> and whats more the initial Auschwitz drug factorys are STILL in operation....<br /> its so MIND-BLOWING you anti Quacks couldALMOST be excused for your pathetic denial<br /> TRUSTING CONVICTED NAZI WAR CRIMINALS with the WORLDS MEDICINE, WTF do you expect<br /> CHEMO was developed from these same poison factorys that exterminated 6 million Jews and NOT satisfied and STILL in operation CHEMO marches on, a 5 year survival rate eg on STOMACH Cancer of....ZERO.7%<br /> THATS NOT A TREATMENT Thats even worse than Quackery<br /> Thats outright criminal torture and mass murder<br /> JOIN the petition the alllow doctors to use ANY safe alternative RATHER than Big Auchwitz Posions sorry Big Pharma<br /> Get Wise you dropkicks on this site<br /> start doing some real research about the absolutely horrific state of Big Pharma and the torrid health of modern medicine countrys and Total abortion that is Chemo etc<br /> AS for vaccines , you buckhead<br /> LOOK UP the<br /> SBV40 Vaccine which MERCK produced and has<br /> caused CANCER in thousands of kids<br /> Here is an US Official Govt Medical link confirming this<br /> there are millions such cases and these Big Pharma set up Billion dollar Funds to pay for all the tragedy they have cuase<br /><a href="http://www.ncbi.nlm.nih.gov/pubmed/10472327">http://www.ncbi.nlm.nih.gov/pubmed/10472327</a></p> <p>Now<br /> Come Back and Apologize for your absolutely<br /> outrageous and disgusting ignorance at best<br /> and culpability at worst</p> <p>Get Wise<br /> Biog Pharma has some tiny useful elements<br /> but is BASICALLY a MODEL from Death Camps<br /> as THAT is WHERE Big Pharma was BORN</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316337&amp;1=default&amp;2=en&amp;3=" token="7uk7fKSRhnNRBhyuaLPqxaZXXA8Fz5pvQJEZe_RzD8s"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">ken nycieski (not verified)</span> on 20 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316337">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316338" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1445364122"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>Now<br /> Come Back and Apologize for your absolutely<br /> outrageous and disgusting ignorance at best<br /> and culpability at worst</i></p> <p>Forgive me<br /> they were delicious<br /> so sweet<br /> and so cold</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316338&amp;1=default&amp;2=en&amp;3=" token="5Hh4X0RVN-gaperCvUSYuK7qjUHN2TF95pn0xu-ncl8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 20 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316338">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316339" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1445367554"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>its so MIND-BLOWING you anti Quacks couldALMOST be excused for your pathetic denial</p></blockquote> <p>At least Ken managed to acknowledge that he's "pro Quack."</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316339&amp;1=default&amp;2=en&amp;3=" token="ACzAf2j9XGrR-6PBAXxlPOdYkf29Fe_zs5G24yQv5wc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 20 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316339">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316340" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1445368657"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Because RANDOM capitalizations of KEY WORDS are so COMPELLING, y'all.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316340&amp;1=default&amp;2=en&amp;3=" token="l8aaPwxDuIYEg2yCYlX3GjATRsKNkGsYfDYTzYwAZag"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay (not verified)</span> on 20 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316340">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316341" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446302790"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As someone who has healed completely with GcMAF, I feel so sorry for those who can't accept what's really going on here. Open your eyes people - if Noakes and co. weren't on to something, they wouldn't even be worth writing about - this "Quack" article points directly to how threatened some are by the concept of something existing that heals easily and quickly by emphasizing a process the body already uses... it can't be patented, therefore, must be discredited. It works - and it is very powerful and the success stories about GcMAF are true. This article is purposely written to cast doubt and confuse people. The evil in this world is unbelievable.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316341&amp;1=default&amp;2=en&amp;3=" token="TMtf66lo8cDe8Wt72jGOWVHI2hdJgFHVevpWNgGbm1o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Page (not verified)</span> on 31 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316341">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316342" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446321942"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Focussing at the moment on Amanda Jewell as one particular GcMAF fraudster, minions might enjoy the further reports of her activities that surfaced here:</p> <p><a href="http://fromtheslaughterhouse.blogspot.com/2015/10/warning-amandas-1stproengineering-scam.html">http://fromtheslaughterhouse.blogspot.com/2015/10/warning-amandas-1stpr…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316342&amp;1=default&amp;2=en&amp;3=" token="VoFYXQSBKzwQcR3Y3Dxo3raX0EI9A-Sd9PY0X8N_2yE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 31 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316342">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316343" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446324717"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>hdb, my eyes and brain started to glaze over wandering through the page at the link, but I did notice the pic of a woman driving a microscope by clutching one of the ocular tubes - one of my pet peeves when microscopes get used in movies and on TV. Never the focus or stage control knobs, always the oculars.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316343&amp;1=default&amp;2=en&amp;3=" token="W-r0gRr-pfYOVU6hOkk9OyuMoW-UoqUNNC3aoiaOQJ4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">doug (not verified)</span> on 31 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316343">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316344" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446324908"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@hdb 104 i see what you did there. Very nice</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316344&amp;1=default&amp;2=en&amp;3=" token="2LAEFik9J-6Mh7yJ49IZcDq0cFjd5JyFDVIJVr3t5pk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Brook (not verified)</span> on 31 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316344">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316345" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446327591"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>For your further entertainment... not about GcMAF as such, but rather, about the Nagalase testing racket:<br /><a href="http://eusa-riddled.blogspot.com/2015/10/blood-work.html">http://eusa-riddled.blogspot.com/2015/10/blood-work.html</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316345&amp;1=default&amp;2=en&amp;3=" token="taMuBALPehKQ57zJl7VtWDq2-qd-fl_WGP4VElGJN8k"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 31 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316345">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316346" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446338608"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>minions might enjoy the further reports of her activities that surfaced here</p></blockquote> <p>One might note that 1stproengineering.com and .eu are <a href="http://viewdns.info/iphistory/?domain=1stproengineering.com">now</a> cozied up in the same <a href="http://searchdatacenter.techtarget.com/photostory/2240185511/How-its-made-The-modular-data-center/10/Data-center-efficiency-in-a-modular-setting">shipping container</a> (perhaps physically as well, given that the .eu is one down, on .19, in the suballocation, which has about 100 hosts on each.).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316346&amp;1=default&amp;2=en&amp;3=" token="quduT7Ik4BpZcw24l_lGLpFRimXu9LcAN7mqPAfyyp4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 31 Oct 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316346">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316347" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446376021"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>As someone who has healed completely with GcMAF</p></blockquote> <p>Please, do tell us about your healing process! What were you diagnosed with? How did you recover?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316347&amp;1=default&amp;2=en&amp;3=" token="3K3_afH8q2J-o_nAZSt5KV6NWpgAFoQ-QjkYf60GbM0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">AdamG (not verified)</span> on 01 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316347">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316348" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1446384296"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>One might note that 1stproengineering.com and .eu are now cozied up in the same shipping container</i></p> <p>Could that be connected to Amanda Jewell's <a href="http://scienceblogs.com/insolence/2015/09/28/gcmaf-and-an-unscrupulous-quack-profiled-by-the-bbc/#comment-418167">emphatic but since-deleted tweets from a month ago</a>, protesting that the original .com website was down for a few days, OH NOES, Big Pharma must have hacked it with nefarious intentions?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316348&amp;1=default&amp;2=en&amp;3=" token="Ubop7nUij48frhONWE-fiN6x-Wcwoj2lEcEzBey3P8Q"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 01 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316348">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316349" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447015700"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As I understand you are a Quack and paid by the Super Quack</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316349&amp;1=default&amp;2=en&amp;3=" token="1EGGm6zFtDTjvzUDygoZUFiG3kq90XhhOQUmPYXaj-g"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">sspro (not verified)</span> on 08 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316349">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316350" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447202987"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>What outstanding use of logic, evidence and reason, sspro. [/sarcasm]</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316350&amp;1=default&amp;2=en&amp;3=" token="18Pp4bNICMlhRX9clS9N0z6MWMSDe5ObPrhbjKeIHMI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Julian Frost (not verified)</span> on 10 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316350">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316351" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447206356"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I am interested in learning the Origin Story for Super Quack. Pecked by a radioactive duck?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316351&amp;1=default&amp;2=en&amp;3=" token="dKf8RMUvKNUk7D_ah4LCH5ileuxF27bpvccKQiw7c2E"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 10 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316351">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316352" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447229951"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Is that the alter-ego of Howard the Duck?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316352&amp;1=default&amp;2=en&amp;3=" token="pfNPxkxL2S1pYnm09GxXtRpWLyiXuoVD3SMPMROuMjI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 11 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316352">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316353" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447667739"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Tribunal finds GcMaf boss guilty of sex discrimination</p> <p><a href="http://guernseypress.com/news/2015/11/14/tribunal-finds-gcmaf-boss-guilty-of-sex-discrimination-2/">http://guernseypress.com/news/2015/11/14/tribunal-finds-gcmaf-boss-guil…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316353&amp;1=default&amp;2=en&amp;3=" token="XyJUCy5SUNAv91iWGkqmw8OF3iu5vYQG2PkpD70iuHk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">John (not verified)</span> on 16 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316353">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316354" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447678855"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I should say that's the least of his problems.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316354&amp;1=default&amp;2=en&amp;3=" token="_7krPQlw65ZEiks0Ga0z2fvm2Aq7bXseGpsHz72ZgtU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">shay simmons (not verified)</span> on 16 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316354">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316355" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447681528"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>It is an insight into Noakes' general cluelessness, though. What kind of nimrod <b>writes down</b> his sexual-discriminatory employment-related observations all over the paperwork, in the blithe conviction that they deserve to be recorded for perpetuity?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316355&amp;1=default&amp;2=en&amp;3=" token="Qm1Ifj2GfuktA9qORumbZAFGSryhRgQ1D2FHc0jjiLY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 16 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316355">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316356" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1447694904"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I find this part intriguing though : </p> <blockquote><p>The tribunal decision also called it ‘breathtaking’ that Immuno Biotech, even though it was a small company, had no policies or procedures staff could refer to given the products it dealt with.</p></blockquote> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316356&amp;1=default&amp;2=en&amp;3=" token="Hi62NMpQaE80AJvspqGaJ3UaU-N8BYlTrNlYLq8oVUw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">LouV (not verified)</span> on 16 Nov 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316356">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316357" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449163646"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>This article on this blog that makes me a bit suspicious about the attacks on these alternative health doctors is in this passage:</p> <p>"Part of the reason why the British Medicine and Healthcare products Regulatory Agency (MHRA) found that David Noakes’ First Immune manufacturing facility did not meet Good Manufacturing Practice (GMP) standards and expressed concerns over the sterility of the medicine being produced and the equipment being used, leading to further concerns that the product could well be contaminated. Also, the MHRA found that the plasma used to make GcMAF was designated for research purposes only and was therefore not intended to be used to make products to be administered to humans or used in human drug products. It was also pointed out that the filtration system in the manufacturing facility was inadequate."</p> <p>This portion of the article did veritable backflips to try and make readers believe that no GcMAF was actually produced by criticizing the equipment and source plasma, but ultimately, it looks like, despite being called "frauds" by this blog author, David Noakes' seems to have actually made GcMAF. How is he a fraud then? Another disturbing item to mention about that passage that I read was that 10,000 vials that were confiscated and the authorities claimed any of the GcMAF that was made there "could" be contaminated. "COULD"???? Um, don't you have 10,000 vials of the product in your possession? What condition is the product in? The authorities didn't seem to mention whether the actual product contained the effective ingredient and was either contaminated or not? I think with pretty good certainty that we can assume that the 10,000 vials seized by the British authorities is actual GcMAF and it is indeed "sterile" and contaminant-free, otherwise you can BET they would be telling everyone the 10,000 vials were dangerous. They never made the claim and you can BET the British authorities ran tests on those 10,000 vials only to find they were VALID products!</p> <p>Do you see how these arguments are constructed? How those who hate alternative medicine operate? How the government doesn't attempt to make any attempt to ascertain the core facts and tell it to the public? They made every attempt to make this man out to be a 'fraud' but instead offer zero evidence that his product was a fraud.</p> <p>Next, go look on the internet for yourselves. There are now clinical trials in other nations going on for GcMAF. One being done by an Israeli company called, Efranat, I believe. So, if GcMAF doesn't work to treat cancer, then WHY is there so much positive information on the internet about it from actual scientific sources outside the big pharma controlled governments?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316357&amp;1=default&amp;2=en&amp;3=" token="s-nZqPmmV31xxAWLTzuU47wGJVQmgCkU_Oc4gCUMHuc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Hmm (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316357">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316358" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449164035"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Looks like comments are held up for moderation instead of posted. I am curious to find out if my comment I made will be permitted to be seen.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316358&amp;1=default&amp;2=en&amp;3=" token="ICmaJ6vMAsjLUwGM0ZQPEup96S7UltJJCy_KJLZCtOY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Double Hmm (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316358">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316359" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449169246"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>I am curious to find out if my comment I made will be permitted to be seen.</p></blockquote> <p>Oh, look. <i>All</i> new commenters go to the moderation queue.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316359&amp;1=default&amp;2=en&amp;3=" token="5ShKagXJzgfSIMOado55BHXhpBT0FBOytmOCHrcSISI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316359">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316360" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449169491"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>I think with pretty good certainty that we can assume that the 10,000 vials seized by the British authorities is actual GcMAF and it is indeed “sterile” and contaminant-free....</p> <p>Do you see how these arguments are constructed?</p></blockquote> <p>Yes.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316360&amp;1=default&amp;2=en&amp;3=" token="whnsfOCWfczoQDd9QfkOey8ghQQX6MHwf8J126IHDMg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316360">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316361" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449174573"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>There are now clinical trials in other nations going on for GcMAF. One being done by an Israeli company called, Efranat, I believe.</p></blockquote> <p>Ah, but they're no longer calling it 'GcMAF' -- their clinical trial now refers to 'EF-022'.<br /><a href="http://web.archive.org/web/20150813115911/http://efranat.com/About-Us/About-Efranat.aspx">http://web.archive.org/web/20150813115911/http://efranat.com/About-Us/A…</a></p> <p>Last time I looked at the Efranat website, they had scrubbed all reference to Yamamoto -- previously the Godfather of GcMAF and the company's Founder and President, he has been completely unpersonned.</p> <p>Evidently the word had finally reached them that Yamamoto's work was completely fraudulent, and that his 'Socrates Institute" doesn't exist, but by that time they had invested too much of other people's money to simply admit that the company's entire aison-d'etre had evaporated.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316361&amp;1=default&amp;2=en&amp;3=" token="tW4PYMSEaA7Wr_iddLKuxxGksjMJow6yPUJdAyeYgiU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316361">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316362" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449174669"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>but ultimately, it looks like, despite being called “frauds” by this blog author, David Noakes’ seems to have actually made GcMAF.</i><br /> [citation needed]</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316362&amp;1=default&amp;2=en&amp;3=" token="2JYAXqFEhwwp25ZXlWhf12k_Q7-CzNIbVCQvWztLuaw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316362">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316363" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449198489"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Our government is controlled by Big Pharma?</p> <p>Mate, you need to live here and see exactly what a cluster f*ck our government actually is.</p> <p>Oh, and I should remind you that our current Secretary of State for Health is a believer in homeopathy, as are several other members of the party currently in power...</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316363&amp;1=default&amp;2=en&amp;3=" token="LqqDOYoT-4FwWgo0d7ae3t-Mj2gkHShKvQ7AlfeAKto"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Murmur (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316363">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1316364" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1449203660"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>There are now clinical trials in other nations going on for GcMAF. One being done by an Israeli company called, Efranat, I believe.</i></p> <p>More documented version of Comment #127:</p> <p>For everyone's entertainment, here is the Efranat Board-members page from June 2014, glorifying "Prof. Nobuto Yamamoto, Founder and Director" as "pioneer and discoverer of the GcMAF glycoprotein":<br /> h__ttp://web.archive.org/web/20140627193828/<a href="http://efranat.com/About-Us/Board-Members.aspx">http://efranat.com/About-Us/Board-Members.aspx</a></p> <p>A few months later in September 2014 and Efranat are all "Who's that Yamamoto creep, never heard of him!"<br /><a href="http://web.archive.org/web/20140914042632/http://efranat.com/About-Us/Board-Members.aspx">http://web.archive.org/web/20140914042632/http://efranat.com/About-Us/B…</a></p> <p>The May 2015 version of the "About Efanat" page still acknowledged some role of Yamamoto who "licensed his GcMAF related patents to the Company":<br /> ht__tp://web.archive.org/web/20150213094724/<a href="http://efranat.com/About-Us/About-Efranat.aspx">http://efranat.com/About-Us/About-Efranat.aspx</a></p> <p>By August 2015,<br /> ht__tp://web.archive.org/web/20150213094724/<a href="http://efranat.com/About-Us/About-Efranat.aspx">http://efranat.com/About-Us/About-Efranat.aspx</a><br /> Yamamoto has gone down the memory hole, as indeed has the name "GcMAF".</p> <p>Seems to me that if the company had a drug with <b>any actual medicinal value</b>, they would stick to <b>calling it by its original name</b>... rather than changing the label, almost as if the original one had become a flag that signals "grifters and mountebanks".</p> <p>Efranat's founders are completely screwed, they trusted Yamamoto's claims and now they are left holding a brown paper bag full of pus; but they've spent a sh1tload of other people's money so they can't admit that they're screwed, and they are left whitewashing their website in the hope that their investors won't notice the situation. It is to laugh.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1316364&amp;1=default&amp;2=en&amp;3=" token="z1HhVQ2pUbR26vzqiX5qwjnNAMjLgMXGe25_h5VN414"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 03 Dec 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1316364">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> </section> <ul class="links inline list-inline"><li class="comment-forbidden"><a href="/user/login?destination=/insolence/2015/09/28/gcmaf-and-an-unscrupulous-quack-profiled-by-the-bbc%23comment-form">Log in</a> to post comments</li></ul> Mon, 28 Sep 2015 05:00:36 +0000 oracknows 22145 at https://www.scienceblogs.com Medical marijuana and the new herbalism, part 3: Cannabis does not cure breast cancer https://www.scienceblogs.com/insolence/2015/03/25/medical-marijuana-and-the-new-herbalism-part-3-cannabis-does-not-cure-breast-cancer <span>Medical marijuana and the new herbalism, part 3: Cannabis does not cure breast cancer</span> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"><p>It's been a while since I discussed medical marijuana, even though it's a topic I've been meaning to come back to since I first dubbed medical marijuana to be the <a href="http://scienceblogs.com/insolence/2014/07/10/medical-marijuana-and-the-new-herbalism-part-1/">equivalent of herbalism</a> and discussed how the potential of cannabinoids to treat cancer has been, thus far, unimpressive, with <a href="http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-new-herbalism-part-2-the-cult-of-cannabis-cures-cancer/">relatively modest antitumor effects</a>. The reason I refer to medical marijuana as the "new herbalism" is because the arguments made in favor of medical marijuana are very much like arguments for herbalism, including arguments that using the natural plant is superior to using specific purified cannabinoids, appeals to how "natural" marijuana is, and claims of incredible effectiveness against all manner of diseases, including deadly diseases like cancer, based on anecdotes and testimonials. Now, as I pointed out before, not only am I not opposed to the legalization and regulation of marijuana for recreational use, even though I've never tried it myself, but I support it. What I do not support are claims for medical effects that are not backed up with good scientific evidence, and for medical marijuana most claims fall into that category. That's why I tend to view medical marijuana as a backdoor way to get marijuana legalized. Personally I'd rather advocates of marijuana legalization drop the charade, argue for legalization, and stop with the medical nonsense.</p> <p>The last time around, I <a href="http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-new-herbalism-part-2-the-cult-of-cannabis-cures-cancer/">discussed the evidence</a> supporting claims that "cannabis cures cancer" and found them to be wanting based on science. I didn't however, discuss the "cannabis cures cancer" testimonial machine that drives the claim that marijuana is useful for treating cancer; at least, I only touched on it by discussing briefly Rick Simpson, who claims that his hash oil <a href="http://www.hightimes.com/read/rick-simpsons-hemp-oil-medicine" rel="nofollow">cures approximately 70% of patients with terminal cancer</a> and a published anecdote in which it was claimed that hemp oil was effective in treating acute lymphoblastic leukemia. (It wasn't. At least, the evidence presented was not convincing.) Since then, I've wanted to revisit the topic of "cannabis cures cancer" testimonials, and, for whatever reason, now seems like a good time to do it, not the least of which because there was recently a <a href="http://www.bbc.com/news/world-32020114">BBC news report by Alastair Leithead</a> that presented a desperate patient with stage IV presenting cannabis as her last hope for survival. It also featured a cancer patient by the name of Stefanie LaRue who claimed that cannabis had been highly effective against her stage IV breast cancer, even going so far as to add an additional claim, namely that she used only cannabis, no chemotherapy. In this, the news story was horrible and highly misleading, because LaRue's story, as you will see, is far more complex than what is presented, and while it's true that LaRue hasn't had any chemotherapy in the relevant timeframe, that does not mean she did not receive conventional treatment, as you will see.</p> <!--more--><h3>Stefanie LaRue</h3> <p>AFter seeing Leithead's story, I decided to look into the "cannabis cures cancer" testimonial of <a href="http://www.medicaljane.com/2015/02/03/stefanie-larue-cancer-survivor-and-advocate-credits-cannabis/" rel="nofollow">Stefanie LaRue</a>. Hers is a sad story in that she was diagnosed at a young age (30 years old) after her boyfriend found a lump in her breast and misdiagnoses by three different doctors. In many ways, her <a href="http://www.medicaljane.com/directory/professional/stefanie-larue/" rel="nofollow">story</a> is an inspiring one based on her will to fight and her activism, which have led her to have served on the Board of Directors for the Los Angeles Susan G. Komen for the Cure, Southern California’s Breast Cancer Network of Strength, and the USC Norris Cancer Center’s Cancer Survivorship Advisory Council. Near and dear to my heart, she also is very much into rescuing and fostering many wounded, mistreated and special needs dogs. Indeed, I approach this particular testimonial with more than a little trepidation because there's an incredible amount to admire about LaRue and, more importantly, her involvement with Komen and other breast cancer charities means that people I respect and admire (who might read this) very well might know her—or even be friends with her. Still, given the direction her story has taken, I feel obligated to discuss it.</p> <p>Here's a video of her from 2007 when she was still undergoing chemotherapy:</p> <div align="center"> <iframe src="https://www.youtube.com/embed/NBqCqHWILA0" width="480" height="360" frameborder="0" allowfullscreen="allowfullscreen"></iframe></div> <p>Notice the themes we see so often in cancer patients, particularly young cancer patients: <em>Why me?</em> There <em>must</em> be a reason. It can't have "just happened". Breast cancer is a disease of older women. (Indeed, the mean age at diagnosis is around 61.) There <em>must</em> have been something in the environment. Possibly. As has been <a href="http://www.sciencebasedmedicine.org/is-cancer-due-mostly-to-bad-luck/">discussed before</a>, for breast cancer, environment- and lifestyle-attributable causes account for a much smaller fraction of cancer diagnoses than most people believe, and 1.8% of cases of breast cancer <a href="http://scienceblogs.com/insolence/2013/12/16/fear-mongering-over-cell-phones-and-cancer-by-dr-oz/">occur in women 34 and under</a>. Given that there are approximately <a href="http://www.ncbi.nlm.nih.gov/pubmed/24399786">233,000 new cases of breast cancer</a> diagnosed every year in the U.S., that means that close to 4,200 women under 34 are diagnosed each year with breast cancer. Still, being diagnosed with breast cancer at age 30 is unusual; so it's understandable that LaRue would wonder why it happened to her.</p> <p>Worse, LaRue was diagnosed with Stage IV disease, as described in an article by Sonja Renea published on the <cite>Medical Jane</cite> website entitled "<a href="http://www.medicaljane.com/2015/02/03/stefanie-larue-cancer-survivor-and-advocate-credits-cannabis/" rel="nofollow">Meet Stefanie LaRue: Cancer Survivor and Medical Marijuana Advocate</a>":</p> <blockquote><p>Stefanie was sent home several times with several rounds of antibiotics, which is quite telling of younger folks being misdiagnosed. By the time she could be tested thoroughly, the cancer had spread to her bones. Doctors diagnosed her with Stage 4 Metastatic Breast Cancer, which is cancer that has spread beyond the breast to other organs in the body. The prognosis was grim: she was given a year to live, at most.</p> <p>Three weeks later, Stefanie began her first round of chemotherapy. To make matters worse, she had to to [<em>sic</em>] cope with her employer, who showed little sympathy for her situation. Despite her job in commercial real estate being very stressful, she was expected to work through her cancer treatment.</p></blockquote> <p>This is a big problem with health care in the U.S. besides the difficulty many people have affording health insurance, a problem only partially alleviated by the Affordable Care Act (a.k.a. Obamacare), which didn't exist in 2005. You can be diagnosed with metastatic breast cancer and still be screwed as far as work goes. It happens far too often in this country.</p> <p>So LaRue ended up quitting her job and filing for disability. She underwent six rounds of chemotherapy and then a mastectomy. At this point reading her story I had a question. If LaRue had bone metastases, it's not clear to me why her surgeon and oncologist would recommend that she undergo a mastectomy. Three possible reasons suggest themselves to me as a breast surgeon. One is that it was done to prevent the primary tumor from growing through the skin and turning into <a href="http://scienceblogs.com/insolence/2012/09/03/a-different-kind-of-breast-cancer-testimonial/"><em>en cuirasse</em> disease</a>, although usually such surgery is not done right after chemotherapy but when the tumor has started to grow again. Another is that she had a complete radiologic response to the chemotherapy, meaning that all her breast and bone disease disappeared. When that happens and the patient has been rendered "no evaluable disease" (NED), we will often treat her as though she were not stage IV and undertake surgery with curative intent. The final possibility is that surgery was done with the intent of prolonging survival even though metastases were still present. It's been an ongoing controversy in breast cancer over whether removing the primary tumor prolongs survival in stage IV disease or whether the apparent improvement in survival due to surgery is due to selection bias; that is, bias towards healthier patients with less aggressive disease who are chosen to undergo surgery preferentially. More recent evidence suggests that removing the primary probably doesn't improve survival, but that was not at all clear back in 2005. (To be honest, it still isn't quite clear.)</p> <p>On her website, LaRue <a href="http://stefanielarue.com/video-post-with-built-in-video-player/">reports</a> that her tumor was 8 cm in diameter (which is big). Apparently her tumor didn't shrink enough to be removed in a lumpectomy; so she needed a mastectomy:</p> <blockquote><p>After chemo she had surgery to remove the cancer. But her margins were not clear, so another surgery followed. She was left with only skin and a nipple on the right side of her chest. Her breast surgeon had scraped all the way down to the chest wall removing all the breast tissue possible but sparing the skin. Despite the advanced stage of her cancer, she got to keep the outside of her breast because she had a skin-sparing mastectomy. A plastic surgeon was later able to reconstruct her breast, restoring her shape, her femininity and her sexuality.</p></blockquote> <p>At this point in my reading, I was unclear as to why a surgeon would do a skin-sparing mastectomy in a patient with stage IV disease. Most plastic surgeons are reluctant to do reconstruction in such a patient because reconstruction can be a big operation, and if the patient isn't expected to live more than a year it just doesn't make a lot of sense to have the patient spend a significant chunk of her remaining time recovering from surgery, having additional surgeries to "touch up" the reconstruction. The willingness of her surgeon and plastic surgeon to undertake a skin sparing mastectomy and reconstruction suggests to me that she had a very good response to the chemotherapy and/or that her prognosis as a stage IV patient was viewed as being considerably more favorable than usual.</p> <p>Whatever the case, during the chemotherapy that she underwent before her surgery, LaRue looked to alternative medicine to ease her symptoms:</p> <blockquote><p>She found help with an integrative oncologist at UCLA, where she learned how to make changes to her diet, use natural supplements, get acupuncture, and work on personal fitness; all of which are integrative, complementary, and alternative treatments to go along with chemotherapy.</p></blockquote> <p>Now here's the thing. As a patient with stage IV disease, LaRue did <em>really</em> well for eight years. It's hard to find a good detailed description of what happened between November 2005 (when she was diagnosed with breast cancer) and 2013, but she didn't start using cannabis oil until 2013, which means that conventional oncology is what got her through nearly eight out of the nine and a half years she's survived with her stage IV cancer. It's important to remember that when looking at a lot of the articles about LaRue, because before 2013, although she had gone all in for "integrative oncology," she hadn't yet discovered cannabis and was still being treated with mostly conventional medicine. So, between 2006, when she finished her initial treatment, and at least September 2013, when she posted a <a href="https://instagram.com/p/e2bBZwQbIl/">series</a> of <a href="https://instagram.com/p/e2cjJBQbL0/">images</a> to <a href="https://instagram.com/p/e8dmEhwbIX/">Instagram</a> of her <a href="https://instagram.com/p/e-v1LGQbHW/">hospitalization</a> for thoracoscopic surgery, conventional medicine is what kept LaRue alive. So when Sonja Renea of the <a href="http://www.medicaljane.com/2015/02/03/stefanie-larue-cancer-survivor-and-advocate-credits-cannabis/" rel="nofollow"><cite>Medical Jane</cite> website</a> writes that "Stefanie LaRue was 30 years old when she was diagnosed with Stage 4 Metastatic Breast Cancer and given the dismal prognosis of less than a year to live" and follows it up with, "That was nine years ago," she is being deceptive.</p> <p>This is how it's described in the <cite>Medical Jane</cite>:</p> <blockquote><p>In 2013 Stefanie had a Video-Assisted Thoracoscopic Surgery (VATS) and the results were not good. This was now her third reoccurrence of cancer. The chemo sensitivity testing concluded there were five lines of chemo treatments that would work on the tumors.</p> <p>Stefanie declined the treatment. “I did my homework. I researched as much as I could. I watched. I listened. I read. I contacted. I prayed. Most of all, I believed. I weighed my options, which were essentially chemotherapy or cannabis oil, and I decided to take the natural route this time…” she says.</p> <p>Stefanie followed the Rick Simpson Oil (RSO) protocol until she was cancer-free. “Cannabis oil killed all of the tumors in my body. My monthly lab and quarterly scan results are proof that the cannabis oil treatment worked,” she says. Her doctor, who had previously been skeptical, now credits these “alternative” treatments as the reason for her speedy recovery.</p></blockquote> <p>On Instagram, LaRue described it thusly in a <a href="https://instagram.com/p/e-v1LGQbHW/?taken-by=stefanielarue">posting dated October 2, 2013</a>:</p> <blockquote><p>Dear cancer, as we both know, yesterday was a big day of news. And sadly for you, you lost. You lost your "upper hand" you tried to claim in that you were potentially showing up again (unwelcomed in my body) not as a metastatic reoccurrence, but as a possible new primary cancer. Which would have been a much more challenging ass kickin match between you and I. None the less, I would have enjoyed. But since you are now known as the same initial metastatic breast cancer reoccurring, I hope you are preparing for what is coming to you. Because now I have the upper hand. When the chemo sensitivity tests are complete on my biopsy tissue at Caris Labs we will know exactly what to come after you and all your little friends with! Poor you. I know your still cowardly hiding in my body but you have pissed off some pretty important people that care a lot about me and guess what... Now they too are coming in to whip your ass!!!</p></blockquote> <p>We've encountered Caris Labs before in the context of discussing Stanislaw Burzynski's incompetent "<a href="http://scienceblogs.com/insolence/2012/12/13/stanislaw-burzynski-personalized-gene-targeted-cancer-therapy-for-dummies/">personalized gene-targeted cancer therapy</a>." Basically, Caris is a company that will do various genomic tests and immunohistochemistry on a tumor sample to try to identify which targeted agents it might be sensitive to. I've basically discussed how the routine use of such a test is premature, given that there isn't any good evidence that using a test like the one from Caris or other competing tests results in better response rates or prolonged survival, but such tests have still proliferated and their use is not uncommon, even in academic medical centers.</p> <p>In any case, at this point in the fall of 2013, LaRue was facing her third recurrence of cancer. Unfortunately, this is a story very much like the many alternative cancer cure testimonials I've deconstructed over the years in that we lack a lot of key information, which means that I can only speculate. First, we don't know how extensive a cancer recurrence LaRue had. Given that she underwent thoracoscopic lung surgery (a thoracoscope is like a laparoscope, except that instead of letting a surgeon operate in the abdomen it allows the thoracic surgeon to operate in the chest with minimal incisions), presumably she had a lung nodule. In a patient with stage IV disease, most such lesions would be biopsied using a core needle under CT scan guidance, rather than excised surgically through a laparoscope. Why did the surgeon choose this course?</p> <p>A couple of possible reasons suggest themselves from the story. First, perhaps she did undergo a CT-guided core needle biopsy and the diagnosis was uncertain. Certainly LaRue's Instagram posting, in which she gloats over her tumor for not being a new primary tumor but just the same as the other recurrences of her original tumor, suggests that this could be the case. After all, a new suspicious lung nodule in a breast cancer patient is usually considered a new metastasis until proven otherwise. In any case, in patients with metastatic disease, a tissue diagnosis is always imperative before beginning treatment if at all feasible. Another possibility is that this tumor, whatever doctors thought it was before surgery, was the only site of disease detectable. In such a case, particularly in a young patient who had been doing well for nearly eight years even if she did have stage IV disease, strong <a href="http://thoracicsurgery.stanford.edu/patient_care/pulmonary_metastasectomy.html">consideration would be given for excising the cancer</a> and eliminating the only known site of disease even though the evidence that metastasectomy (removing the metastasis) will prolong survival in breast cancer is <a href="http://www.ncbi.nlm.nih.gov/pubmed/23391172">mostly without controls</a> and thus prone to selection bias. (Metastasectomy of liver and lung metastases can definitely prolong survival in colorectal cancer.) Still, there is evidence that in select patients removing pulmonary metastases can result in significant survival benefit. Whether LaRue is one of those select patients is unclear.</p> <p>So here's what I think probably happened. After surgery LaRue (understandably) did not want to undergo further chemotherapy. For whatever reason, she <a href="https://instagram.com/p/fwPlrjQbMJ/">latched</a> on to <a href="https://instagram.com/p/fzLgOjQbCX/">Rick Simpson's hemp oil</a> as the treatment that would control her cancer. How she found out about it and why she became convinced it would cure her, it's hard to say from publicly available information. In the <cite>Medical Jane</cite> story, LaRue proclaims that "cannabis oil killed all the tumors in my body" and that her "monthly lab and quarterly scan results are proof that the cannabis oil treatment worked." It is, of course, impossible to confirm or dispute this assessment without knowing what all her scans showed.</p> <p>There is, however, a photo on Instagram of <a href="https://instagram.com/p/g4Cd1nwbO4/?taken-by=stefanielarue">LaRue receiving a shot</a>, which she identifies as <a href="http://www.xgeva.com/denosumab.html">Xgeva</a>, which LaRue described as "bone mets maintenance." And <a href="http://www.drugs.com/xgeva.html">so it is</a>. It's a monoclonal antibody against the RANK ligand, a protein that acts as the primary signal for bone removal, and it prevents fractures in patients with bone metastases. So this implies that LaRue still has bone metastases. It also makes one wonder what other non-chemotherapy conventional therapy she might be taking. There's also a post by her on Twitter asking about <a href="https://twitter.com/stefanielarue/status/394916758345109504">Afinitor</a> (everolimus):</p> <div align="center"> <blockquote class="twitter-tweet" lang="en" xml:lang="en"><p>New treatment protocol side effects (third reoccurrence) should I take or seek other alt options? <a href="https://twitter.com/hashtag/cancersucks?src=hash">#cancersucks</a> <a href="http://t.co/hlAbCaa462">pic.twitter.com/hlAbCaa462</a></p> <p>— Stefanie LaRue (@stefanielarue) <a href="https://twitter.com/stefanielarue/status/394916758345109504">October 28, 2013</a></p></blockquote> <script src="//platform.twitter.com/widgets.js" async="" charset="utf-8"></script></div> <p>Afinitor is a drug that inhibits an enzyme called mTOR and is used in cancer that is positive for the estrogen receptor after it develops resistance to anti-estrogen therapy. Apparently she did not take Afinitor, because on March 14, 2014 LaRue posted a photo on Twitter: </p> <div align="center"> <blockquote class="twitter-tweet" lang="en" xml:lang="en"><p> This is about the time when getting <a href="https://twitter.com/hashtag/treatment?src=hash">#treatment</a> really sucks! <a href="https://twitter.com/hashtag/zoladex?src=hash">#zoladex</a> <a href="https://twitter.com/hashtag/injections?src=hash">#injections</a> <a href="https://twitter.com/hashtag/stomach?src=hash">#stomach</a> <a href="https://twitter.com/hashtag/fuckcancer?src=hash">#fuckcancer</a><a href="http://t.co/MwNIqvwm0k">pic.twitter.com/MwNIqvwm0k</a></p> <p>— Stefanie LaRue (@stefanielarue) <a href="https://twitter.com/stefanielarue/status/442107579833921536">March 8, 2014</a> </p></blockquote> <script src="//platform.twitter.com/widgets.js" async="" charset="utf-8"></script></div> <p>In the photo, LaRue is receiving an injection of Zoladex (<a href="http://en.wikipedia.org/wiki/Goserelin">goserelin</a>), a drug used to suppress production of sex hormones. In other words, six months after her thoracoscopy, LaRue was receiving conventional medical therapy, specifically a treatment to shut down her ovaries' production of estrogen. Thus, LaRue appears to be the case of a cancer patient who chose unproven alternative medicine but at the same time continued to receive conventional medical therapy for her cancer and did very well. As is the case with most such patients, she attributes her excellent outcome, at least after her most recent relapse, far more to the alternative treatments (in this case, Rick Simpson's hemp oil) than she does to the conventional therapy she is also taking, even after her discovery of hemp oil. I also can't help but point out that the very fact that LaRue survived nearly eight years with stage IV cancer before discovering hemp oil is a pretty strong argument that from a biological standpoint her tumor is pretty indolent, as some tumors positive for the estrogen receptor are; so it's not surprising that she would still be alive a year and a half after her thoracoscopy on Zoladex and Xgeva alone (plus whatever other conventional medical therapy she is receiving). Only LaRue and her oncologist know for sure, though, and her oncologist can't tell anyone without her permission.</p> <p>Finally, there's the claim that LaRue is now cancer-free, without having undergone chemotherapy this time around, a claim repeated in <a href="http://www.bbc.com/news/world-32020114">Leithead's credulous interview</a>. There's even a brief scene showning a radiology report, which, if you freeze frame, indicates that there are still lesions in her spine that could be consistent with healing metastases, but there are no new ones. What does this mean? Who knows? Without her full clinical history and full knowledge of what she is taking in addition to the cannabis, it's impossible to tell.</p> <h2>Cannabis versus breast cancer</h2> <p>As much as I admire the grace and determination with which Stefanie LaRue has endured over 9 years after her cancer diagnosis, as a cancer doctor it bothers me profoundly that she has allowed herself to fall under the spell of the "cannabis cures cancer" alternative medicine crowd, in particular Rick Simpson. I discussed Simpson the <a href="http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-new-herbalism-part-2-the-cult-of-cannabis-cures-cancer/">last time I wrote about cannabis and cancer</a>. As I said at the time, Rick Simpson is just like cancer quacks the world over, who have no firm evidence to back up their miraculous-sounding cure rates and excuse their failures by blaming the treatment patients had before they started the quackery. Quacks like Rick Simpson do those who think that cannabinoids have promise in treating cancer no favors.</p> <p>I also discussed how the vast majority of studies touted by the "cannabis cures cancer" advocates tend to be preclinical studies in cell culture or animal models that show relatively modest antitumor effects due to various cannabinoids. Indeed, this article on <cite>Medical Jane</cite>, "<a href="http://www.medicaljane.com/2015/02/28/studies-suggest-cannabinoids-may-fight-certain-forms-of-breast-cancer/" rel="nofollow">Studies Show Cannabinoids May Help Fight Triple-Negative Breast Cancer</a>", fails to provide particularly convincing evidence that they do. Before I look at the studies, I can't help but note that triple negative breast cancer is breast cancer that makes neither the estrogen receptor (ER), the progesterone receptor (PR), nor overexpressed HER2. Yet the article invokes Stefanie LaRue, who clearly has ER(+) breast cancer.</p> <p>Another thing that needs to be pointed out. Every single one of the studies invoked by <cite>Medical Jane</cite> has nothing to do with hemp oil, be it Rick Simpson's hemp oil or some other type. Each of the studies examines either purified cannabinoids or, in the case of <a href="http://pubs.acs.org/doi/abs/10.1021/acs.jmedchem.5b00078">this study</a>, a chemically modified cannabinoid. <a href="http://www.molecular-cancer.com/content/9/1/196">This study cited in <cite>Molecular Cancer</cite></a>, for instance, looks Δ9-tetrahydrocannabinol, the most abundant and potent cannabinoid in marijuana, and JWH-133, a non-psychotropic CB2 receptor-selective agonist. Both inhibit the growth of HER2(+) breast cancer cells in cell culture and in mice, but the concentrations needed are pretty high, with an IC50 (concentration that is 50% of maximum inhibition) in the range of 5 to 10 μM, concentrations achievable with injection of purified compound but certainly <a href="http://www.skepticalraptor.com/skepticalraptorblog.php/medical-marijuana-hitting-bong-science/">not by smoking pot</a></p> <p>You are also unlikely to achieve these levels by drinking hemp oil, which, by the way, usually <a href="http://en.wikipedia.org/wiki/Hemp_oil">contains so little THC</a> that it is below the limit of detection for common assays and manufacturers brag that it's impossible to fail a drug test if you're consuming hemp seed oil because "THC levels in our products are barely measurable." Of course, I do realize that Rick Simpson calls his oil hemp oil even though it's really cannabis oil derived from the buds rather than the seeds, but even he <a href="http://cannabisni.com/how-to-make-hemp-oil-by-rick-simpson" rel="nofollow">brags</a> that "following the dosage previously described, many people can take the full treatment and never get high," which implies that his oil achieves nowhere near the concentration of THC in the blood necessary to be active against cancer. Moreover, oral bioavailability of THC from such oils is <a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2689518/">notoriously low</a>, between 4-20%, making it unlikely that concentrations well above the 10 μM necessary to inhibit or kill more than 50% of the cancer cells are achievable with oral dosing.</p> <p>Thus, the various studies cited, such as <a href="http://www.moloncol.org/article/S1574-7891(14)00295-6/fulltext">this one</a>, which shows inhibition of the epidermal growth factor pathway by purified cannabidiol (CBD), a non-psychotropic cannabinoid; <a href="http://www.molecular-cancer.com/content/9/1/196">this one</a>, the aforementioned study that examines purified Δ<sup>9</sup>-THC and JWH-133 against HER2(+) breast cancer; and this one, which also examines CBD in breast cancer, are interesting and very preliminary. Moreover, they all examine cannabinoids purified from cannabis, and one even examines a chemically modified cannabinoid. In other words, even if cannabinoids make the jump from preclinical models to humans, these studies do not support the use of medical marijuana, either smoked as the plant or ingested as an oil, to treat breast cancer. They also do not suggest sufficient activity to produce miracle cures of stage IV cancer as described by Rick Simpson. Indeed, a <a href="http://www.ncbi.nlm.nih.gov/pubmed/25669486">recent review</a> concludes that "current preclinical data does not yet provide robust evidence that systemically administered Δ<sup>9</sup>-THC will be useful for the curative treatment of cancer," although CBD might have a role based on preclinical data.</p> <p>Neither cannabinoid, however, is likely to be curative for advanced cancer. It's possible that specific cannabinoids might have a role to play in the multimodality treatment of cancer, but, given what we know about them from preclinical studies, it's highly unlikely that cannabinoids, medical marijuana, or Rick Simpson's hemp oil can cure stage IV cancer of any kind.</p> <h3>Hope versus hype</h3> <p>I have no doubt that Stefanie LaRue honestly believes that Rick Simpson's hemp oil is the reason why she's still alive today and doing so well. I can't help but point out that Stanislaw Burzynski's patients, for example, also honestly believe that his antineoplastons are what saved their lives, even though even Burzynski can't produce good evidence that they have antitumor activity. Depressingly, it just goes to show how even such an accomplished woman can fall prey to the same human cognitive shortcomings that we all share and confuse correlation with causation. If it were just her, I wouldn't have felt obligated to write this post, but LaRue makes it very clear that not only does she believe that Rick Simpson's hemp oil allowed her to heal herself of her longstanding metastatic cancer:</p> <div align="center"> <blockquote class="twitter-tweet" lang="en" xml:lang="en"><p>Did you know that the Rick Simpson hemp oil is being used to treat cancer patients? I'm one of them. And it's working <a href="http://t.co/XGX9tzJHTo">pic.twitter.com/XGX9tzJHTo</a></p> <p>— Stefanie LaRue (@stefanielarue) <a href="https://twitter.com/stefanielarue/status/485112138982100996">July 4, 2014</a></p></blockquote> <script src="//platform.twitter.com/widgets.js" async="" charset="utf-8"></script></div> <p><a href="https://youtu.be/6BwICYqHWPw">But she plans on becoming an evangelist for Rick Simpson's hemp oil and medical marijuana</a>:</p> <div align="center"> <iframe src="https://www.youtube.com/embed/6BwICYqHWPw" width="640" height="360" frameborder="0" allowfullscreen="allowfullscreen"></iframe></div> <p>In this video she notes that she's had multiple recurrences and they're all gone, after which she challenges the viewer to "explain that." Believe it or not, personally, I'd be overjoyed if something as simple as hemp oil could treat stage IV cancer so effectively. I really would, as it would mean that I'd rarely have to see a breast cancer patient die. However, although I can't be sure without a lot more information (which is highly unlikely to be forthcoming) and I do have to concede the possibility, albeit remote, that Rick Simpson's hemp oil is the reason why LaRue has survived a year and a half since her last new metastasis, I nonetheless suspect that it is far more likely than not that it is the Zoladex and the Xgeva (not to mention whatever other conventional treatments that LaRue may be taking that she hasn't mentioned on social media) that are keeping her going now, combined with her disease's already-demonstrated indolent biology.</p> <p>And long may they continue to do so!</p> <p>For nearly eight years, Stefanie LaRue fought a battle with courage, inspiring intelligence, and grace. Her story was (and still is) a story of hope for women with stage IV cancer that they can live a long time with the disease with good quality of life. Unfortunately, a year and a half ago her story took a turn into pseudoscience, becoming a cautionary tale of how even the most intelligent, ambitious, and determined person can be subject to magical thinking. This would not be an issue with me were it not that, inadvertently, and with the best of intentions, LaRue has declared her determination to promote Rick Simpson's hemp oil as a cancer cure, using her own story as an example of what it can do. Given her proven history of advocacy and her numerous accomplishments with organizations like the <a href="https://www.linkedin.com/in/stefanielarue">Komen Los Angeles County Affiliate from 2008 to 2010</a> (before she discovered hemp oil), I can't help but be worried that she will in her quest to save women from stage IV breast cancer end up doing exactly the opposite for some women.</p> <p>I still hold out hope that, given her history, LaRue will eventually realize that her true story is far more a cause for hope for women with stage IV disease than her current belief that cannabis is what has kept her alive.. Thanks to advances in breast cancer care, more and more women with stage IV disease are living a lot longer than expected, even ten years, all with no need to resort to unproven treatments promoted with testimonials, like Rick Simpson's hemp oil.</p> <p>That's the <em>real</em> reason for hope.</p> </div> <span><a title="View user profile." href="/oracknows" lang="" about="/oracknows" typeof="schema:Person" property="schema:name" datatype="">oracknows</a></span> <span>Wed, 03/25/2015 - 02:00</span> <div class="field field--name-field-blog-tags field--type-entity-reference field--label-inline"> <div class="field--label">Tags</div> <div class="field--items"> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> <div class="field--item"><a href="/tag/popular-culture" hreflang="en">Popular Culture</a></div> <div class="field--item"><a href="/tag/quackery-0" hreflang="en">Quackery</a></div> <div class="field--item"><a href="/tag/skepticismcritical-thinking" hreflang="en">Skepticism/Critical Thinking</a></div> <div class="field--item"><a href="/tag/bbc" hreflang="en">BBC</a></div> <div class="field--item"><a href="/tag/cannabis" hreflang="en">cannabis</a></div> <div class="field--item"><a href="/tag/hemp-oil" hreflang="en">hemp oil</a></div> <div class="field--item"><a href="/tag/rick-simpson" hreflang="en">Rick Simpson</a></div> <div class="field--item"><a href="/tag/stefanie-larue" hreflang="en">Stefanie LaRue</a></div> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> </div> </div> <div class="field field--name-field-blog-categories field--type-entity-reference field--label-inline"> <div class="field--label">Categories</div> <div class="field--items"> <div class="field--item"><a href="/channel/medicine" hreflang="en">Medicine</a></div> </div> </div> <section> <article data-comment-user-id="0" id="comment-1291976" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427273144"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Thank you for such a thorough, rational, and compassionate piece. </p> <p>"Cannabis healed me". I'd like to just chalk it up to having been pummeled silly by all the years of conventional therapies. I can only hope that she'll eventually give appropriate credit to the doctors and the drugs and the sharp, shiny instruments that brought her to this place</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291976&amp;1=default&amp;2=en&amp;3=" token="zeEcTt10tNoFinWacFr5sOmdJO-goe5RHkLm7UqcrYE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Notchka (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291976">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291977" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427274011"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>And I will note, I agree with Orac's sentiment that doctors, especially Oncologists, that have to deal patients through the worst experiences of their lives &amp; see many of these patients die, even with the best standards of care available, would give their right arm for a "miracle cure."</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291977&amp;1=default&amp;2=en&amp;3=" token="K8wsoXGFlR0nXXkwek75pLyCRf47R4h4PzKBxE6oyjM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291977">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291978" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427279132"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>...where she learned how to make changes to her diet, use natural supplements, get acupuncture, and <b>work on personal fitness</b>; all of which are integrative, complementary, and alternative treatments to go along with chemotherapy.</p></blockquote> <p>Did I miss the memo? When did nutrition and exercise become complementary or alternative medicine, rather than standard-of-care science based medicine?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291978&amp;1=default&amp;2=en&amp;3=" token="UHE7e2Tb3FBLzifyTqO7UeK-2ik4f2_hZOdFIHTAav8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JGC (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291978">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291979" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427280065"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I assumed Bob Marley's case would have been the "ne plus ultra" regarding the efficacy of cannabis Tx for cancer.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291979&amp;1=default&amp;2=en&amp;3=" token="6lGqnPCLGbFIOuSbHZRgDW9_380VR4Cf9XPolnO3bSo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">John Danley (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291979">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291980" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427280381"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As a former breast cancer patient who was familiar with Stephanie LaRue's story, I read this piece with particular interest. Definitely, a remarkable young woman facing her disease with grace and courage. </p> <p>But I was dismayed (although not surprised) that she has become an advocate for Rick Simpson Oil. After all, the stress of living with Stage IV cancer - however well you are doing - has to be incredibly stressful and multiple recurrences would certainly highlight your vulnerability to<br /> "miracle cures". </p> <p>Although I am going into my fourth year NED, I still belong to an on-line community for breast cancer patients and one of the major discussions on the alternative therapy treatment boards is about Rick Simpson Oil and how it can "cure" cancer. How, after taking the oil for a number of weeks, you feel so wonderful, that you KNOW it just has to be working, destroying the tumor inside of you. It amazes me that few on the thread suspect that that "wonderful" feeling has nothing to do with your tumor being cured and everything to do with the fact that you're probably high.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291980&amp;1=default&amp;2=en&amp;3=" token="WoCbTq7E0WubPmIAxqineLwYUKj2LuswP4xskm8Ze20"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Selena Wolf (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291980">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291981" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427280388"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Sorry, but it is mean and bullying to take issue with a nice-looking young woman who is recommending woo for cancer.</p> <p>Didn't we learn anything from the Ainscough debacle?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291981&amp;1=default&amp;2=en&amp;3=" token="yRck9DmhH4oa1TkamVB2ZZvLEdwbntaTyVpqGrY4wxs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Dangerous Bacon (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291981">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291982" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427282555"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ #6 DB: Yes... Why are these celebrated altie testimonials always by a gorgeous babe?! And the tear jerking "vaccine injury" &amp; death cases are invariably described as a precious, joyful, loving, beautiful, intelligent &amp; talented child too! Never an HPV "injury" story about a drug addled teen runaway street prostitute that was sexually abused by their stepfather!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291982&amp;1=default&amp;2=en&amp;3=" token="tx2rxM67PX_daA1FWf0ipmxIlfOjx2GFbBiRayz_o14"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">RobRN (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291982">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291983" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427283002"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Dangerous Bacon, Jess Ainscough's case is quite different from Stefanie LaRue's case. LaRue has been deeply involved in breast cancer advocacy and raising funds for breast cancer research. IMO, LaRue likely has a good knowledge base about sham "miracle cures", yet she's done a U-turn and is now advocating for the all purpose medical marijuana cure (for "sugar diabetes" and a variety of cancers).</p> <p>I'm relying on Orac to fill in the multiple omitted pieces about Stefanie LaRue's breast cancer staging and disease progression, which somehow are missing.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291983&amp;1=default&amp;2=en&amp;3=" token="kULOFsKSx6_QbY7l7XtIlMexwsVvSzCWjql7t49wdks"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">lilady (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291983">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291984" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427283092"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Really really sad that she fell for that deluding freak! Hope that she will realize the truth.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291984&amp;1=default&amp;2=en&amp;3=" token="970GJ8bUZmaRgbN9RaUZMnGuFxWyTjUYcCb7JcLD-B4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">ken (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291984">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291985" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427283442"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I was in a double blind study-I was shocked when I learned I had a placebo effect. Really a skeptic now!<br /> Patients should be educated about placebo effects.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291985&amp;1=default&amp;2=en&amp;3=" token="vUhZDcaMq7JTRMPcudsE3DBeutfLyHhQv_CXi4YIKuY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">ken (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291985">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291986" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427284285"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@#6 Give me a break with this. It may be mean and bullying to call out a person publicly for the choices they've made in their personal lives, but when that person starts publicly advocating that other people make the same choice it becomes 100% appropriate to call them out on it.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291986&amp;1=default&amp;2=en&amp;3=" token="E9g2oyHPAj496EZwHfYPK0uIhQMNAZCMpDdDL2WrQGc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Wolfbeckett (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291986">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291987" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427284423"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Dangerous Bacon, Jess Ainscough’s case is quite different from Stefanie LaRue’s case. LaRue has been deeply involved in breast cancer advocacy and raising funds for breast cancer research</p></blockquote> <p>Unfortunately, she still is, although she hasn't been on the board of Komen LA County for several years. Her Instagram and Twitter accounts not infrequently show her giving talks using Komen slide sets. That's part of what bothers me. After eight years of being a fantastic role model for enduring stage IV breast cancer with grace, knowledge, and hope, she's become a spokesperson for Rick Simpson's hemp oil quackery <em>while still engaging in her previous breast cancer advocacy activities</em>, although it's not clear if she is more or less active than she was before on that front. I rather suspect it's less, with the rest of her advocacy energy being taken up promoting Rick Simpson's hemp oil nonsense. It's the kind of "integration" that could do great harm, particularly if she convinces women with earlier stage, potentially curable breast cancer to choose Simpson's hemp oil instead of standard of care treatment. It's the kind of activism that will lead to preventable death.</p> <p>Basically, she's got such a large store of good will built up from her previous activities and her longstanding bravery in the face of stage IV cancer that her word carries a lot of weight among women with breast cancer.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291987&amp;1=default&amp;2=en&amp;3=" token="L3wJpUBF73fVwN4lGP08GTaIvzmSBLmTOZcj1_WGu2Q"></drupal-render-placeholder> </div> <footer> <em>By <a rel="nofollow" href="http://scienceblogs.com/insolence" lang="" typeof="schema:Person" property="schema:name" datatype="">Orac (not verified)</a> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291987">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291988" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427284596"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>It’s the kind of “integration” that could do great harm, particularly if she convinces women with earlier stage, potentially curable breast cancer to choose Simpson’s hemp oil instead of standard of care treatment. It’s the kind of activism that will lead to preventable death.</p></blockquote> <p>Yeah, it both bums me out and raises my hackles, as a friend of a close friend basically went that route - cannabis oil <i>instead</i> of real medical treatment for what would have been curable breast cancer - and died from it not long ago.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291988&amp;1=default&amp;2=en&amp;3=" token="1WsZJitgZyMyXj1Lyr_mStxTTajyCdtgwXaqASnJVdA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291988">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291989" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427285292"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Although the cases are *very* different, I think the fact that these women are conventionally attractive is important. Their appearance is a huge factor in the marketability of their advice. </p> <p>These three faces lend themselves very well to peddling all things natural-whole-pure-clean-nontoxic-ancient-balanced-intuitive-cleansing-nutritious-organically-grown-detoxifying.</p> <p><a href="http://i56.photobucket.com/albums/g195/webbsite/cancergals_zps77uxz4b4.jpg">http://i56.photobucket.com/albums/g195/webbsite/cancergals_zps77uxz4b4…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291989&amp;1=default&amp;2=en&amp;3=" token="SmYHr1AzCTWOgD4qkpEUATn-A2EOUAOMDo34c1ahU1Y"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Notchka (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291989">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291990" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427285560"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I know someone who is privately smoking marijuana to "cure" her recently diagnosed early stage breast cancer. I think it might be DISC (is that right for ductal in situ carcinoma?). She has said nothing about whether she will pursue conventional treatment, so I suspect she may have decided this is a superior substitute from having been a champion of hemp products for a while. </p> <p>This is not looking good, and so far I can't figure out how to challenge her without alienating her. She seems blissfully convinced that she has found a secret cure. I am feeling very, very not-good about this situation.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291990&amp;1=default&amp;2=en&amp;3=" token="vY1BhmaVrhkIY5BkmyuMCAl_M-GDiSEs0Qi1VG2Iydw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Sara (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291990">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291991" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427286816"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ John Danley:</p> <p>Whilst I know that you're joking...<br /> unfortunately, Mr Marley wound up taking woo for his cancer at the infamous Josef Issels clinic in Germany: there's even a documentary of his last days. It was truly heart-rending to watch how he shivered in the frozen landscape when he could have been at home amongst friends, family and... er..<br /> lush tropical greenery.</p> <p>AFAIK he never advocated for <a href="mailto:c@nnabis">c@nnabis</a> for cancer.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291991&amp;1=default&amp;2=en&amp;3=" token="C7cTnab0mY9QTbNhuKF2hTU3irja6-tCbYWJPVKmqc4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291991">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291992" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427287804"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Sara</p> <p>If I recall correctly, and Orac can correct me if I'm wrong, people diagnosed with DCIS have a reasonable chance that they will never develop invasive cancer. It's possible that the person you know won't ever progress. And, because she's choosing marijuana, may convince herself that her chosen treatment is what kept her healthy, rather than the nature of DCIS itself.</p> <p>Search this blog for DCIS to get some more info that might help you out.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291992&amp;1=default&amp;2=en&amp;3=" token="8GpDSzBMNMFuITjOfERhzvFnkrQTcfOCbJot_K6SPew"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Todd W. (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291992">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291993" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427288640"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"Personally I’d rather advocates of marijuana legalization drop the charade, argue for legalization, and stop with the medical nonsense."</p> <p>Exactly this. Counterproductive laws should be changed, rather than BS 'science' used to sneak drugs in the back door. Marijuana is a generally pleasing recreational drug, not a fecking panacea, and it's frustrating to advocate for legalization and find oneself surrounded by the crunchy alt med types (like I'm not surrounded by them enough already).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291993&amp;1=default&amp;2=en&amp;3=" token="9dN7RM-_hwRZWxUBC9-x9m60f2YCT6ZFU8pdVcTIctc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Roadstergal (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291993">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291994" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427290425"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I attended two Komen luncheons in Los Angeles for Metastatic patients where this young woman was a moderator/speaker/prancer. Oh, the prancer part. Silk cami short shorts, stiletto heels. She is so full of herself she does not inspire, she turned me off so much I will NEVER go to another Komen event. Not that i wanted to but it should not be because the other participants are offensive.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291994&amp;1=default&amp;2=en&amp;3=" token="77CXp07JXv1ePXC0KjsUzszMWwpXGGO3eHLjPhGRFEw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Norma Desmond (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291994">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291995" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427291420"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Stefanie LaRue is confusing/conflating the tranquilizing effects of her daily CBD tincture doses and her rescue inhaler (CBD vape pen) with her recent clean bone scan. Could we state that correlation does not imply cure?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291995&amp;1=default&amp;2=en&amp;3=" token="vXowZLlBwljg1Pc_To0X5HSrE0mFxOHhXAynsz_nSzI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">lilady (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291995">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291996" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427292402"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>#6 - I, at least, read this as sarcasm. Such poopyheads we all are, amirite?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291996&amp;1=default&amp;2=en&amp;3=" token="d5GsHdM1ScbPEf3FosNhFtHDYS0IJazfcSHxPkPgJ64"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Emma Crew (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291996">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291997" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427293395"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Emma Crew<br /> yes, I was waiting for the call to recalibrate sarcasm meters.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291997&amp;1=default&amp;2=en&amp;3=" token="yo7wzrjOEx5NltcIU47gZnWQ5fOpLLgOX1Wh6ZpvDG4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Peter Dugdale (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291997">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291998" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427296277"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@#20 and#21 I think it just goes to show how lame people that sincerely post that kind of thing really are that some of us (who shall go unnamed *cough cough*) can't tell sarcasm from sincerity in a post like that.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291998&amp;1=default&amp;2=en&amp;3=" token="MUkx8j0cUAzIAlsT67C6DbdTMI48EcKRPe1ddxipTjk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Wolfbeckett (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291998">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1291999" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427297233"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Nothing useful to add, so let me wish Ms LaRue many more years.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1291999&amp;1=default&amp;2=en&amp;3=" token="dWiGE_OA7NSFlS2CDCA6RzQY_LRO17vXa8CyGgH8GF0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1291999">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292000" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427299755"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Not that I don't disagree with a majority of the way this topic presents, pot as being promoted as a "cure," but I tend to disagree with the summation in one paragraph.</p> <p>Orac: "What I do not support are claims for medical effects that are not backed up with good scientific evidence, and for medical marijuana most claims fall into that category. That’s why I tend to view medical marijuana as a backdoor way to get marijuana legalized. Personally I’d rather advocates of marijuana legalization drop the charade, argue for legalization, and stop with the medical nonsense."</p> <p>From my home state (CO), we weighed this from some big picture items. Pot was mainly seen as a palliative, still is, but not really a curative against cancer. </p> <p>Also, kids/young adults were also showing up at the ER under the influence of Spice (-- why not just use the real stuff without risking your life on that crap?). Terrible stuff.</p> <p>We didn't see medical m. as a replacement for evidence-based medicine, but more as an effective palliative for cancer, burn, chronic pain patients without nearly the deleterious effects of other drugs like opioids. So, the activists &amp; voters (and some in the medical community as well, and not a small number of medical professionals, either) pressed for a change in policy to gamble on a medical designation.</p> <p>There are problems in that it's not pharmacy regulated. But, what can we do without a better research classification. Doing the holistic route for distribution was a bad idea, yes lucrative for some, but we have a drug being distributed by individuals with no professional oversight. Pros &amp; cons on that, for sure; it's not perfect.</p> <p>Another point, there are clinical trials underway for evidence-based uses in cases of Dravet's in pediatrics. Granted, for a refined product. The big problem in research and finding evidence-based uses has been with a misapplied control substance rating that has been more political than medical. Now, we have it as a class II for research.</p> <p>Going a step further into recreational use -- once a cartel from Mexico gunned down someone enjoying a jet ski on a lake, the voters pretty much decided to immediately marginalize the cartel economic base, and at least try to put the market in the hands of a state taxing authority. Obviously, we'd much rather have non-violent manufacturers willing to work with a taxing &amp; enforcement authority. At least at the local/state level.</p> <p>Going back to what evidence-based means. Not entirely a charade when it comes to research. More trial work needs to be performed, it's not backed up because of the overly restrictive class policy. Maybe we will see a change in favor of more medical uses in neural pathology. But certainly yes, there is no basis to say that this drug is curative against any cancer pathways, only palliative.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292000&amp;1=default&amp;2=en&amp;3=" token="EDXrIEZDneYeALH0nO5x4SpZ4wT2RG8ET9KTvZsUAFk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">MarkN (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292000">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292001" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427299916"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>We don't have a really good handle on what percentage of pre-invasive breast cancer (ductal carcinoma in situ, or DCIS) will progress to invasive tumor.</p> <p>"The percentage of DCIS that is ‘nonprogressing,’ that is, would not develop into invasive disease even if untreated, is unknown. A recently published Markov model that incorporates data from multiple mammography screening trials estimates the incidence of DCIS that will progress into invasive breast cancer if untreated at 100–270 per 100,000. The model estimates that women can survive with nonprogressing DCIS for over 30 years while the average time prior to progressing from DCIS to invasive cancer is 3 months. The model further assumes that these invasive breast cancers will remain in a preclinical state, on average, for 2½ years. Thus, women with progressing DCIS have slightly less than 3 years between DCIS incidence and clinically detected invasive breast cancer."</p> <p><a href="http://www.ncbi.nlm.nih.gov/books/NBK32580/">http://www.ncbi.nlm.nih.gov/books/NBK32580/</a></p> <p>One problem with assuming that DCIS will remain in situ and treating it with cannabis, mushrooms or whatever, is that DCIS can co-exist with invasive carcinoma, and the biopsy may only sample the in situ part. This argues strongly for evidence-based therapy and followup.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292001&amp;1=default&amp;2=en&amp;3=" token="XO8OURL0SSAzBAJKckPu-W63poNaSauBjJkFkKUgAnY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Dangerous Bacon (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292001">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292002" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427301248"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>“Personally I’d rather advocates of marijuana legalization drop the charade, argue for legalization, and stop with the medical nonsense.”</p> <p>Exactly this. Counterproductive laws should be changed, rather than BS ‘science’ used to sneak drugs in the back door.</p></blockquote> <p>Unfortunately, the tactic seems to have been the only effective approach to date.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292002&amp;1=default&amp;2=en&amp;3=" token="PzDGOVpVMi5QtTDci-LF6eNESGm_BN4hLdtjDFR8xTY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292002">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292003" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427301398"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Dangerous Bacon #26</p> <p> I think that quoted statement is kind of vague. To me that implies that ~200 women out of every 100,000 in the general population will develop a case of DCIS that will end up progressing. It says nothing about what percentage of biopsy-diagnosed DCIS will progress without treatment.</p> <p>A quick Google search turned up a small 2005 study that found progression to invasive cancer in 13 of 28 women with low grade DCIS who did not have their DCIS excised or otherwise treated. These women, based on their low grade DCIS, probably fit into the lowest risk cohort for progression. </p> <p>Based on the Early Breast Cancer Trialists Collaborative Group metaanalysis, after excision of DCIS, about 30% of women will have a recurrence of disease after surgery alone; around half of these recurrences will be DCIS and the other half will be true invasive cancer. Radiotherapy can reduce this risk by about half (about 15% recurrences within 10 years, again with half of recurrences as DCIS and half as invasive cancer). </p> <p>Based on this, I suspect that, among all women with DCIS, at least half, probably more, could expect progression to true cancer without treatment. Even among the very lowest risk, untreated DCIS would have a very high risk of progressing to cancer.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292003&amp;1=default&amp;2=en&amp;3=" token="RCanN5ujHyEv1JQu2-7KVjllXPhdZrB0xz5yNz2GEwc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JK (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292003">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292004" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427302237"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Unfortunately, the tactic seems to have been the only effective approach to date.</p></blockquote> <p>I don't believe either Washington or Washington, DC went through the legal "medical" marijuana stage. There's a proposed constitutional amendment in Ohio that would also bypass that argument and go straight to recreation (much like the Ohio casinos bypassed the larval riverboat stage).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292004&amp;1=default&amp;2=en&amp;3=" token="wHIz-plORSsE2u5yTG2dl0f2PGow6eiItJB9O46V9fE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292004">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292005" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427303899"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Washington (state) had medical marijuana starting in 1998, actually.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292005&amp;1=default&amp;2=en&amp;3=" token="9Fhj6i7yqR0qhtgFpW96l5IAWNageONCI-36NbKFUYU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292005">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292006" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427304048"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>And DC had it starting in 2010.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292006&amp;1=default&amp;2=en&amp;3=" token="4vMzjhZjLovnjwhtj8YxWDuvfAr8DtLiK0HCQEelzQE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292006">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292007" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427304416"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>the Ohio casinos bypassed the larval riverboat stage</i></p> <p>Now I am trying to imagine what a larval riverboat would look like.<br /> In the ideal world, H.R. Giger would have illustrated Martin's "Fevre Dream".</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292007&amp;1=default&amp;2=en&amp;3=" token="SrzrbSfLImZgxWmOfMezUHWzJewJxjLqi9Hr4Z7NJFo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292007">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292008" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427304507"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>MOB@28: Washington state had/has a real half-baked (if you'll forgive the pun) approach to 'medical' MJ, in that it wasn't illegal, but it wasn't exactly legal either. And when recreational pot was legalized the state didn't do anything to address the disparities in the law between recreational and medical pot. So it's been a real mess.</p> <p>On a more useful front there has been work in WA to get formal permission from the Feds to study pot. Basically the state research institutions (the big universities) want to be 100% sure that they won't lose federal funding if they study pot. Fear of losing funding has been a big issue for getting good scientific data on pot.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292008&amp;1=default&amp;2=en&amp;3=" token="2cbLS2fZys3e-kQ1DGFBi71CcOze3pI2zl2L-clOph0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JustaTech (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292008">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292009" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427304977"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>There’s a proposed constitutional amendment in Ohio that would also bypass that argument</p></blockquote> <p>The <a href="http://www.cleveland.com/open/index.ssf/2015/02/ohio_marijuana_legalization_pr_1.html">remaining one</a> (the other failed to get 1000 valid signatures) is competing with <a href="http://www.dispatch.com/content/stories/local/2015/03/24/medical-marijuana-group-wants-to-expand-ohio-house-bill.html">HB 33</a>.</p> <p>D.C. had medical marijuana with Initiative 71. Washington state allowed medical marijuana in 1998.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292009&amp;1=default&amp;2=en&amp;3=" token="PZn7B1L-NgiziOK7ebnPQUjPSXIsXeTC2ee6GmMYaJ4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292009">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292010" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427305777"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Washington state had/has a real half-baked (if you’ll forgive the pun) approach to ‘medical’ MJ, in that it wasn’t illegal, but it wasn’t exactly legal either. </p></blockquote> <p>It was a pretty standard situation, actually, in that it was still illegal on the Federal level (of course) but legal for medical use only within the state. It was never decriminalized during the "medical only" period, if that's what you mean. I do recall the state police making a statement at some point, I think when I was in college, that they basically weren't really going to bother with enforcement anymore.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292010&amp;1=default&amp;2=en&amp;3=" token="_VfWNt3IxlkTCd1BSPLcc5kyR0Kr19MqL-_7NHakP9g"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292010">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292011" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427319782"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>The point that I should have made more clearly in the first place – individual jurisdictions aside – was that medicalizing the issue actually succeeded as the thin edge of the wedge. The overt-legalization dominoes maybe could start toppling or something once some concrete, positive fiscal results show up from states that have gone whole-hog, but it just wasn't going anywhere on its own.</p> <p>I can't remember whether I've mentioned this, but maybe over a space of six to seven years ago, I shared a back porch with neighbors who – after being really secretive for a long time after they moved in – turned out to be stoners of the first water, seemingly as a primitive way of, ah, managing marital stresses, and engaging company when taken individually.</p> <p>One fine afternoon, I was chatting with the wife on the porch, and she expressed a desire to move to California so that she would have easy access to "medical" marijuana. I mentioned that this wasn't exactly the idea and (naively) that flagrant abuse – given her list of "indications" – of the law could, you know, undermine access to people who could at least make a plausible case.</p> <p>The husband eventually came from whatever chores or Burning Man esoteric duties he had been attending to, and even he concurred. The only obstacle they seemed to have was the mercurial nature of home-delivery services.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292011&amp;1=default&amp;2=en&amp;3=" token="v2kvYNXvtiLxWlpvH33axWfSVl3Eqx8uH_1SJXqaIrM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292011">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292012" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427320188"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>^ Grumble.</p> <p>"The husband eventually came from whatever chores or Burning Man esoteric duties he had been attending to, and even he concurred. The only obstacle they seemed to have was the mercurial nature of home-delivery services."</p> <p>Seriously, he went through a very late night phase of bow-drilling that lasted for weeks. I'd love to catch up with him, but I never heard back after returning a phone call he left about a year ago.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292012&amp;1=default&amp;2=en&amp;3=" token="DLb-2ZJKIjoUGQgKuZ-fyBnOGxj1S4JEfZTZkbNO7gk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292012">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292013" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427321011"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I have a very good friend back in Washington - he's about 80 years old now - who got a medical card quite some time ago, I <i>think</i> for arthritis, but I'm not sure. He used to bus up to Tacoma to pick up some "boo" every so often. (I think this was all through the VA, oddly enough. He served in the period between Korea and Vietnam and has some very interesting and entertaining stories to tell about the experience.)</p> <p>Speaking of noisy neighbors late at night, I lived on a sailboat for a time in college - money issues, basically I knew a lady who didn't feel like paying moorage so I paid it, like a hundred bucks a month, and lived on the boat.) There was a Vietnam vet who lived in the boat next to me - it turned out, oddly enough, that he knew a woman who'd taught in my high school and died quite suddenly of a brain aneurysm - and he was a banjo enthusiast, but pretty much strictly between the hours of 2 and 4 in the morning.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292013&amp;1=default&amp;2=en&amp;3=" token="g00oBE1PaLfcwDs0DoXp34GONVv9byfoPNi90DgjX1o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292013">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292014" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427324755"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Speaking of noisy neighbors late at night</p></blockquote> <p>Oh, no, making fire was very quiet, and I kept later hours myself. I just didn't interrupt him.</p> <blockquote><p>and he was a banjo enthusiast, but pretty much strictly between the hours of 2 and 4 in the morning</p></blockquote> <p>I will confess that I have <b>once</b> committed long-form, rule-free banjo "exploration" during such hours, but I at least had had a couple years' training in how to mechanically operate the device.</p> <p>I'm at risk of wondering whether Bela Fleck and Easley Blackwood have ever been seen together.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292014&amp;1=default&amp;2=en&amp;3=" token="kB4t2lF91KCCQiOJe2dyZgPXz4YSP5dlREYg23ixbI4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292014">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292015" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427325685"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Well, he was actually pretty good, so I didn't mind <i>too</i> much. I'm not a terribly good sleeper, myself, and have been keeping increasingly odd hours now that I'm on fellowship and not teaching at 9 am every morning.</p> <p>He was a lot better, in any case, than a guy I lived with in my last year of college. It was a house of (I believe) 7 people, and I was the only female on the premises. One of our housemates - Sebastian - was big into the banjo, but he only ever played <i>two freaking songs</i> over and over again. "King of the Road" and "Big Rock Candy Mountain." I <i>used</i> to like those songs.</p> <p>He wasn't even supposed to be living there originally in the first place, but our a**hole housemate Mike (who I actually like anyway) moved him into the attic that his room opened into so he could split his rent with him.</p> <p>I remember when Sebastian's girlfriend at the time broke up with him; he was caterwauling all day and night, and at one point emoted, "She doesn't even like my <i>banjo playing</i>!" We were all like, "Sebastian, <i>nobody</i> likes your banjo playing."</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292015&amp;1=default&amp;2=en&amp;3=" token="nqzmurQ61_SJ77Fa6zd198aI7OvMcsO6DrKD6KF0w24"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292015">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292016" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427327023"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I remember, actually, walking upstairs and seeing him, Sebastian hanging around one day - I knew the guy from various situations - and I said, "What are <i>you</i> doing here?" And he goes, "Aw, I <i>live</i> here now, dawg." He was forever ending every GD sentence than way.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292016&amp;1=default&amp;2=en&amp;3=" token="NgkPJg1NQ1kC-uRJQp4j6FMAFYOkxhEbqWFHtn1hFAs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292016">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292017" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427330505"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Seb was just a harmless, if obnoxious, idiot, anyway. My buddy, the one who's about 80 these days, used to chide me about my digs:</p> <p>"You're living with a bunch of <i>barbarians</i> over there."</p> <p>"Yeah, pretty much."</p> <p>"Do they even know who <i>Ornette Coleman</i> is?"</p> <p>"Nah, but maybe I'll play him for 'em some day."</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292017&amp;1=default&amp;2=en&amp;3=" token="MdKiFEArUEhUcjCcEWsME6Bj8pgnfiIgiq_2rk9E3Pg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JP (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292017">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292018" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427331099"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Wolfbeckett @23 - no need for self-reproach: you might not come here so often. Regular lurkers know it could only have been sarcasm from Narad.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292018&amp;1=default&amp;2=en&amp;3=" token="lZYzY39iAbjfL-SJdPNIfVt1ESawoc7rjhMd1Wk83aM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Peter Dugdale (not verified)</span> on 25 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292018">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292019" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427347022"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>is there any other chemical compound that any one knows of that causes apoptosis in cancerous cells? If there was would you take it if all conventional treatments had failed to halt your cancer?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292019&amp;1=default&amp;2=en&amp;3=" token="Oc0dCeNrOyivDw15ub5IzDdaWH5P6D13lHLjg-Jj8p8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">john green (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292019">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292020" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427347253"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Also given the fact that cannabis is a shedule 1 class B drug in the UK , how is it possible to obtain pre clinical human data ? have you actually met anyone who has successfully shrunk tumors , say an astrocytoma....would you like to ? would you like to have access to Bio chems work at madrid university showing THC to cause apoptosis (automated cell death) ...</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292020&amp;1=default&amp;2=en&amp;3=" token="rZfI6sbUENFGdCIT-518VDGJzCFUPMqnsw6dntZLhd4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">john green (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292020">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292021" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427351634"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@john green - don't be coy. If you are aware of published research showing that cannabis is an effective anti-cancer drug, please share a link to it. Thanks.</p> <p>Re: "given the fact that cannabis is a shedule 1 class B drug in the UK , how is it possible to obtain pre clinical human data ?" - There certainly are issues with doing legal studies in the UK and USA, however these are not the only countries with first class research institutions. Perhaps some researcher in The Netherlands, Spain, Portugal, or Germany would have an easier time. Uruguay could also become a center for cannabis research.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292021&amp;1=default&amp;2=en&amp;3=" token="I0dapomx6wSsF-hAf0XA_QL4eNF1hrvPuEA52Zs11Ok"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292021">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292022" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427351687"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>In regard to my comments above about Washington - clearly I remembered wrong. I should check my facts before posting. I retract my statement.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292022&amp;1=default&amp;2=en&amp;3=" token="KTEFNBGimPuHzCeH5KVdt_1Is97CW1Dd5dRvCkD34vE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292022">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292023" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427352739"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Given that according to Encyclopedia Britannica "Apoptosis also may occur when a cell becomes damaged or deregulated, as is the case during tumour development and other pathological processes. Thus, when functioning properly, the body can induce apoptosis to rid itself of cancer cells." it seems evident that cannabis isn't the only chemical on the world able to induce apoptosis in cancer cells. And ten there is also this, "apoptosis-inducing therapies may actually select for cancer cells resistant to apoptosis."</p> <blockquote><p> have you actually met anyone who has successfully shrunk tumors [?] </p></blockquote> <p>Why yes, I have. I know several persons who have had their tumors shrink via conventional cancer treatments. Depending on ones interpretation it might be the persons with the cancer, the radiologist or the doctor prescribing or the nurses administering the chemo who you were asking about. </p> <p>If you have good quality evidence provide it, rather than hint its existence.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292023&amp;1=default&amp;2=en&amp;3=" token="97k8X9hBX4au2D_K_APFuMxDZHRq-sW-pldMeprZdCw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">gaist (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292023">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292024" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427353980"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"is there any other chemical compound that any one knows of that causes apoptosis in cancerous cells?"</p> <p>There's nothing special about inducing apoptosis - it's long been a property of anticancer drugs. For instance, here is the abstract of a paper from 1992:</p> <p>"Most of the cytotoxic anticancer drugs in current use have been shown to induce apoptosis in susceptible cells. The fact that disparate agents, which interact with different targets, induce cell death with some common features (endonucleolytic cleavage of DNA, changes in chromatin condensation) suggests that cytotoxicity is determined by the ability of the cell to engage this so-called 'programmed' cell death. The mechanism of the coupling of a stimulus (drug-target interaction) to a response (cell death) is not known, but modulation of this coupling may affect the outcome of drug treatment. This review surveys the recent evidence which supports the idea that the drug-target interaction per se is not the sole determinant of cellular sensitivity of cytotoxic drugs. Studies of the signals which might engage apoptosis, the genes which modulate it and the biochemical process of drug-induced apoptosis itself are described, where possible, for glucocorticoids, topoisomerase inhibitors, alkylating agents, antimetabolites and antihormones."</p> <p><a href="http://www.ncbi.nlm.nih.gov/pubmed/1327566">http://www.ncbi.nlm.nih.gov/pubmed/1327566</a></p> <p>The big difference with cannabis, of course, is that it hasn't been shown to be an effective anticancer drug.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292024&amp;1=default&amp;2=en&amp;3=" token="9PhGYjBDSGjbSksoOLUbEHbCFHE7Wb5yUQe3_XDRikk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Dangerous Bacon (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292024">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292025" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427377097"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I find it rather shocking that anyone can think they are informed about this topic, yet consider inducing apoptosis to be a unique property of hemp oil. Simply amazing. That other cancer therapies include apoptosis is not exactly a secret. The paper Dangerous Bacon linked to has been cited over 800 times, a quick search finds reams and reams of papers written on the apoptotic properties of various treatments.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292025&amp;1=default&amp;2=en&amp;3=" token="IayIIVQo3E-DKOq0NgiyYkH2DB-whIJUnZ6Hxl61bsY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Travis (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292025">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292026" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427377829"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>There's a big unspoken problem here, and I see it clinically out here in the wild west. These medical marijuana dispensaries act as unregulated quasi-pharmacies. Imagine a pharmacy staffed with untrained techs who were competing with their local neighbors, so encouraged to say less and less honest things about their products. So, not a surprise that the dude with the dreads at "Surreal Medical" (yes, this really exists) is telling a cancer patient that his dank can treat her cancer. And, as some of you point out above, it's not a shock that a desperate or uninformed patient may believe it.<br /> Right now in the US, any healthfood store person / reiki therapist / pot dispensary person can say whatever they want about anything they sell. Licensed providers have to stay within informed consent and full disclosure about the risks and benefits of their treatments. This tilts the playing field in a scary way, and it needs to get fixed right away.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292026&amp;1=default&amp;2=en&amp;3=" token="mhBHBuHnPYd2sP1-4KOUiUSZRGpbzNLPTOiSsnsn2pg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Matt B (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292026">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292027" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427380243"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>There are <a href="http://www.ncbi.nlm.nih.gov/pubmed?term=induces%20apoptosis%5BTitle%5D">a few other substances</a> that induce apoptosis.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292027&amp;1=default&amp;2=en&amp;3=" token="bduWYxqnGMD_b-Fp9A8XAqO7Wij-8SYyCVcWl45NoqE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292027">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292028" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427380473"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"That’s why I tend to view medical marijuana as a backdoor way to get marijuana legalized."</p> <p>Come on, David, it's not like you to hold back! "Tend"? A year or so after Michigan's MM voter proposition went into effect, the Kalamazoo Gazette did a story on a local doctor that opened a MM practice. He stated that he charged, IIRC, $190 per "patient" and he insisted that he didn't just blindly hand out the cards to everyone and that he "only" approved people's requests 90% of the time! Now, if the DEA found out that were you handing out Oxycontin scripts to 90% of the people that walked through your door and asked for one, how fast do you think they'd shut you down!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292028&amp;1=default&amp;2=en&amp;3=" token="FBc4stf78iJjJ-AIYkGsRbpJDfcWl30pdUHafvJfq-M"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Gizmo (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292028">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292029" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427380976"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"...would you like to have access to Bio chems work at madrid university showing THC to cause apoptosis (automated cell death)"</p> <p>In a test tube or in situ?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292029&amp;1=default&amp;2=en&amp;3=" token="eOCaDb0MAlUq6XKcl_vXUKOrDXYI0M06GZH3urNZOhM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JayK (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292029">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292030" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427381752"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Matt @51: On Rainier, or on Lake City Way?</p> <p>I've found that the recreational pot shop (between the church and the bar) has done way more to improve the neighborhood than anything else that had been on that site. And with the bouncer outside it's a lot safer too.</p> <p>The "medical" shops are all really sketchy, probably at least in part because the owners don't want to put a lot of money into a store that might get shut down at any time.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292030&amp;1=default&amp;2=en&amp;3=" token="duaF9cAa3GYm9cwSu84A-pVPXH38m6N-A1Xnu_8mV3I"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JustaTech (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292030">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292031" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427383166"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"He stated that he charged, IIRC, $190 per “patient” and he insisted that he didn’t just blindly hand out the cards to everyone and that he “only” approved people’s requests 90% of the time"</p> <p>That's another beef I have with 'medical' marijuana. It's just a racket for docs to hand out weed cards. I suppose it's better than the money going to cartels, but it still grates on me. If this is the way we have to go to get to legit legalization, so be it, but let's move in that direction sooner rather than later. I hope CO's outcomes will help with the momentum.</p> <p>Also, because.<br /> youtu.be/U4r1hUXeRA0</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292031&amp;1=default&amp;2=en&amp;3=" token="VFCe-ZkrGl0faLbv0QabjbsZF9zJoEva6vxszzE0MjQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Roadstergal (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292031">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292032" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427385429"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p> There are a few other substances that induce apoptosis. </p></blockquote> <p>I took a quick look, and didn't see this listed…<br /><a href="https://xkcd.com/1217/">https://xkcd.com/1217/</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292032&amp;1=default&amp;2=en&amp;3=" token="zydaC6VhUIFGSHPEzuzEPYv-i4uaYoMijC5uXWtvyhA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Johnny (not verified)</span> on 26 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292032">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292033" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427475867"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>On the other hand, I'd imagine that Gerson doesn't induce much apoptosis.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292033&amp;1=default&amp;2=en&amp;3=" token="VHqCgUjx-B0HIIvQ229CtJHV8FRxV4pesknOO-qdLsQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">justthestats (not verified)</span> on 27 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292033">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292034" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427476449"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>On the other hand, I’d imagine that Gerson doesn’t induce much apoptosis.</p></blockquote> <p>It does, but it does it all at once. When it's too late to do any good.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292034&amp;1=default&amp;2=en&amp;3=" token="8WuVugJWSz_szDjOpHHc_eWB9cQtgfKrUCGz2nIqarc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 27 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292034">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292035" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427477693"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Narad, back when I was a music grad student in Chicago, I had to get some stuff out of the storage area behind the recital hall and accidentally walked in on Easley Blackwood playing the piano shirtless. I'm not sure which of us was more embarrassed. Never saw him with a banjo, but he did have an awesome party trick of performing a Bach two part invention by whistling one part and singing the other.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292035&amp;1=default&amp;2=en&amp;3=" token="pU0xpBuu-oRwJQ-Z2poIKfFbNDVXhQ8sg8Y5eM_AWNE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Emma Crew (not verified)</span> on 27 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292035">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292036" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427481114"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Thanks for addressing this, Orac. I haven't read it or the comments fully yet, but looking forward to doing so tomorrow. </p> <p>I plan to continue taking cannabis extracts, before and after surgery. It helps me sleep, it helps me stress less about having breast cancer, it improves my mental well-being overall (not just when I'm high) and if it happens to cause apoptosis and impede metastasis and tumor growth as well, all the better. And if I decide to go with chemo, radiation, hormone therapy and targeted therapy, it'll help me get through all that crap as well.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292036&amp;1=default&amp;2=en&amp;3=" token="LV4k6sIygwMHmwrGOpVL6Frn9LTCyW8Do6bIMPQyBWs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">AndiCBD (not verified)</span> on 27 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292036">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292037" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427485242"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Ken: "I was in a double blind study-I was shocked when I learned I had a placebo effect. Really a skeptic now!<br /> Patients should be educated about placebo effects."</p> <p>No, you're still a gullible tool, a living placebo effect.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292037&amp;1=default&amp;2=en&amp;3=" token="IoVUgXWgnj0_4TbFLDJeCX8xGmh0P8WB3cCdyeDnVKw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Politicalguineapig (not verified)</span> on 27 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292037">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292038" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427768929"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I agree with the fact that medical marijuana has no proof that it can cure cancer, but I do disagree that it is only being said to be used for medical purposes to become legalised, the use of marijuana for the treatment for cancer patients is a vital role due to the fact that it helps relieve pain in a natural way and helps patients relax and sleep better.<br /> u15067841</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292038&amp;1=default&amp;2=en&amp;3=" token="3DJUsR6CGuqbTVjD7QL34pdpdg_9NQFFMnbhZMIN9z4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Megan (not verified)</span> on 30 Mar 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292038">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292039" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1427874760"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I agree with the author. There has been no scientific evidence supporting the claim that medical marijuana cures cancer. Legalising it for medical purposes has its advantages and disadvantages. As much as it will help the patient, it will also lead less educated patients into believing that it cures cancer, when that is not true.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292039&amp;1=default&amp;2=en&amp;3=" token="q7qhWrGbbvZgPmTIjozrR7Ewzx7up0MVkI5pLru8k9k"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Palesa Zulu (not verified)</span> on 01 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292039">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292040" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428038399"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Marijuana cannot cure cancer. I agree with the notion that it may ease the pain that patients who suffer cancer feel.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292040&amp;1=default&amp;2=en&amp;3=" token="nMStdRsqa-xnizOTCjIIhgqU8Rpy3or36CebrwK0bnk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Amy Whitfield (not verified)</span> on 03 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292040">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292041" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428086082"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>For being a scientist and surgeon, it looks like you have not done your through research. It looks like you are going off of your opinion on the situation instead of actual research and science of the plant.<br /> No matter what you look for you are only going to look for the negative side effects of this plant.<br /> Can you tell me how many people have died from cannabis?<br /> Now, tell me how many people have died from radiation therapy and chemotherapy?<br /> Tell me, what are the side effects of cannabis versus the side effects of chemotherapy?<br /> Are you not aware of the research conducted on cannabis? or the patent held by the federal government for cannabis for not only cancer but also for HIV/AIDS? I feel bad for people like you that misguide others and continue the "reefer madness" psychological programming.<br /> You are a surgeon, you should know the research behind things before you make assumptions that are misguiding to the whole public and do not have, what you call, "science" to back it up.<br /> You mention that there are no trials out there looking at cannabis, however there are.<br /> You do not want to think that plants are a good medicine to use, because the FDA does not approve them, but yet the FDA has approved additives and other ingredients such as aspartame, food colorings, BPA, etc..that clearly cause cancer which you should know being a surgeon.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292041&amp;1=default&amp;2=en&amp;3=" token="D1xHCJP-ura7GvgyeuGbkY_hxaPjEOLnkNSCqmW91Fk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Arizona ND (not verified)</span> on 03 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292041">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <div class="indented"> <article data-comment-user-id="0" id="comment-1292042" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428086839"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Holy hell. "Reefer madness"? Seriously? Did you even frikkin' read the post? I said I was in favor of outright legalization of marijuana. What I don't buy are the claims that cannabis can cure advanced cancer, and I was very clear about the reasons why based on the research.</p> <p>As for there being no trials about cannabis, there is one, but it's not convincing and only applied to brain cancer, as I discussed in this post:</p> <p><a href="http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-new-herbalism-part-2-the-cult-of-cannabis-cures-cancer/">http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-…</a></p> <p>If there are any other clinical trials of cannabis as a cancer treatment (not as an adjunct), then, please, show me. If there are, they aren't published yet.</p> <p>Seriously, you only serve to reinforce all the negative things I think about naturopaths.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292042&amp;1=default&amp;2=en&amp;3=" token="b0gPUJER3-nemKjBC7a3pT6zYrxAiF1tOEkTaNt23BQ"></drupal-render-placeholder> </div> <footer> <em>By <a rel="nofollow" href="http://scienceblogs.com/insolence" lang="" typeof="schema:Person" property="schema:name" datatype="">Orac (not verified)</a> on 03 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292042">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> <p class="visually-hidden">In reply to <a href="/comment/1292041#comment-1292041" class="permalink" rel="bookmark" hreflang="en"></a> by <span lang="" typeof="schema:Person" property="schema:name" datatype="">Arizona ND (not verified)</span></p> </footer> </article> </div> <article data-comment-user-id="0" id="comment-1292043" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428089145"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Holy hell. “Reefer madness”? Seriously? Did you even frikkin’ read the post? I said I was in favor of outright legalization of marijuana.</p></blockquote> <p>doncha love it when someone goes off onto a canned rant without really having heard what you said.<br /> I've experienced it a lot from skeptics - not you personally, but many times.<br /> It's like I'm talking to a vending machine, not a person. I say something - whirr, blatt ... out comes Canned Skeptical Speech #42.<br /> One wants to kick the "vending machine", maybe it would turn back into a person if kicked.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292043&amp;1=default&amp;2=en&amp;3=" token="vpxZpHl_5Y8BliCF2kU8fHQj2XvjdAgu2wE1h2w1zMw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Beth (not verified)</span> on 03 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292043">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292044" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428417084"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Breast Cancer </p> <p>A study published in the US National Library of Medicine, conducted by the California Pacific Medical Centre determined that cannabidiol (CBD) inhibits human breast cancer cell proliferation and invasion. They also demonstrated that CBD significantly reduces tumour mass. </p> <p>“Cannabidiol (CBD), a cannabinoid with a low toxicity profile, down-regulated Id-1 gene expression in aggressive human breast cancer cells in culture”</p> <p><a href="http://www.ncbi.nlm.nih.gov/pubmed/20859676">http://www.ncbi.nlm.nih.gov/pubmed/20859676</a></p> <p>A study published in The Journal of Pharmacology and Experimental Therapeutics determined that THC as well as cannabidiol dramatically reduced breast cancer cell growth. They confirmed the potency and effectiveness of these compounds.</p> <p>“Cannabidiol is the most potent inhibitor of cancer cell growth.”</p> <p><a href="http://jpet.aspetjournals.org/content/early/2006/05/25/jpet.106.105247">http://jpet.aspetjournals.org/content/early/2006/05/25/jpet.106.105247</a></p> <p> A study published in the Journal Molecular Cancer showed that THC reduced tumour growth and tumour numbers. They determined that cannabinoids inhibit cancer cell proliferation, induce cancer cell apoptosis and impair tumour angiogenesis (all good things). This study provides strong evidence for the use of cannabinoid based therapies for the management of breast cancer.</p> <p>“Δ9-tetrahydrocannabinol, the most abundant and potent cannabinoid in marijuana…reduce tumor growth, tumor number, and the amount/severity of lung metastases in MMTV-neu mice.”</p> <p><a href="http://www.molecular-cancer.com/content/9/1/196">http://www.molecular-cancer.com/content/9/1/196</a></p> <p>There is also many studies out there in regards to lung cancer, prostate cancer, pancreatic, brain, liver and oral cancers. </p> <p>As a matter of fact, the US Government holds a patent on “cannabinoids as antioxidants and neuroprotectants.”</p> <p><a href="http://www.google.com/patents/US6630507">http://www.google.com/patents/US6630507</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292044&amp;1=default&amp;2=en&amp;3=" token="FAE9nRyfVFoNXs4M1UNKGil95yLeannA8wkxjYZbp_A"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Arizona ND (not verified)</span> on 07 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292044">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <div class="indented"> <article data-comment-user-id="0" id="comment-1292045" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428417346"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Huh, did you read the post? Or maybe this post as well?</p> <p><a href="http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-new-herbalism-part-2-the-cult-of-cannabis-cures-cancer/">http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-…</a></p> <p>I discussed several of those studies, all of which are preclinical and should be treated as such, namely as highly preliminary.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292045&amp;1=default&amp;2=en&amp;3=" token="c79incHZNW1J3aLIkuqsrSTNs0ViDJXpCRr450iD35M"></drupal-render-placeholder> </div> <footer> <em>By <a rel="nofollow" href="http://scienceblogs.com/insolence" lang="" typeof="schema:Person" property="schema:name" datatype="">Orac (not verified)</a> on 07 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292045">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> <p class="visually-hidden">In reply to <a href="/comment/1292044#comment-1292044" class="permalink" rel="bookmark" hreflang="en"></a> by <span lang="" typeof="schema:Person" property="schema:name" datatype="">Arizona ND (not verified)</span></p> </footer> </article> </div> <article data-comment-user-id="0" id="comment-1292046" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428418998"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>As a matter of fact, the US Government holds a patent on “cannabinoids as antioxidants and neuroprotectants.”</p></blockquote> <p>ZOMG, you mean... <b><i>it's just like antineoplastinoids?!??</i></b>. Let's see:</p> <p>"We claim:<br /> "1. A <b>method</b> of treating diseases caused by oxidative stress, comprising administering a therapeutically effective amount of a cannabinoid that has substantially no binding to the NMDA receptor to a subject who has a disease caused by oxidative stress."</p> <p>Well, not exactly, if memory serves.</p> <p>Remember, all patents on products of nature have been fully and finally nullified by <i>Association for Molecular Pathology v. Myriad</i>. Of course one can patent synthetic cannabinoids. So?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292046&amp;1=default&amp;2=en&amp;3=" token="YIADCe4S3nqBti6HRhjee4AdVOobkXvwE_DFwOiXJkA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 07 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292046">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292047" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1428419498"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>A study published in the US National Library of Medicine</p></blockquote> <p>Oops.</p> <p>Then again, it's always nice when someone tips a <a href="http://www.collective-evolution.com/2013/08/23/20-medical-studies-that-prove-cannabis-can-cure-cancer/">cut and paste</a>.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292047&amp;1=default&amp;2=en&amp;3=" token="I5IIoqxhy9ilRe9K3KsHDU4e13DxAl975Mn7H8ujINM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 07 Apr 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292047">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292048" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1433149554"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Why go the expensive treatment in hospitals whereby Marijuana/Cannabis oil is here to clean you from cancer and many more illnesses …</p></blockquote> <p>That would be because there's actual evidence in teh form of large scale, porperly dewsigned and controlled clinical trials which demonstrate the medical interventions available in hospitals are actually effective treatments for various types of cancer, while there is<i><b> no</b></i> evidence demonstrating Marijuana/Cannabis oil represent effective treatments for cancer.</p> <p>Next question?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292048&amp;1=default&amp;2=en&amp;3=" token="VD_jx3RW8X4eh00s6gUZM00eDzneN35H53N8gV2OmBE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JGC (not verified)</span> on 01 Jun 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292048">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1292049" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1433149587"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@James - I believe the FDA would like to have a word with you.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1292049&amp;1=default&amp;2=en&amp;3=" token="vGbBxmTKNsyyoWydopZOstN6PZM-iqp4ctOCtgiJDMg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 01 Jun 2015 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1292049">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> </section> <ul class="links inline list-inline"><li class="comment-forbidden"><a href="/user/login?destination=/insolence/2015/03/25/medical-marijuana-and-the-new-herbalism-part-3-cannabis-does-not-cure-breast-cancer%23comment-form">Log in</a> to post comments</li></ul> Wed, 25 Mar 2015 06:00:59 +0000 oracknows 22016 at https://www.scienceblogs.com Shame on the BBC: False Balance in #ClimateChange discussion https://www.scienceblogs.com/gregladen/2014/02/19/shame-on-the-bbc-false-balance-in-climatechange-discussion <span>Shame on the BBC: False Balance in #ClimateChange discussion </span> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"><p>The BBC stepped in it. First, they engaged in a totally absurd "false balance" presentation regarding climate change, then in response (link below) they aired very reasonable complaints by listeners, and to this, they responded officially that everything is fine, you can go home and lock your doors and windows, nothing to see here, our balance is in balance, thank you very much. Or words to that effect. If I was British I would be ashamed of the BBC for this, but since I'm not British I'm peeved. </p> <blockquote><p>Should the Today programme have invited Lord Lawson, a former Chancellor of the Exchequer and now chairman of the Global Warming Policy Foundation, to comment on climate change? On Thursday morning, as the floods across Britain continued to make the headlines, Feedback listeners poured scorn on a Today programme discussion between Lord Lawson and Sir Brian Hoskins, a government climate change adviser from Imperial College in London. We'll hear why they were so angered by the debate.</p></blockquote> <p><a href="http://www.bbc.co.uk/programmes/b03ttmdw#t=18m58s">Click here to listen.</a> I think the link is already cued up where you need to be. </p> <p>The commenter just after 20 minutes was brilliant. </p> </div> <span><a title="View user profile." href="/author/gregladen" lang="" about="/author/gregladen" typeof="schema:Person" property="schema:name" datatype="">gregladen</a></span> <span>Wed, 02/19/2014 - 04:57</span> <div class="field field--name-field-blog-tags field--type-entity-reference field--label-inline"> <div class="field--label">Tags</div> <div class="field--items"> <div class="field--item"><a href="/tag/alt-truth" hreflang="en">Alt-Truth</a></div> <div class="field--item"><a href="/tag/climate-change-0" hreflang="en">Climate Change</a></div> <div class="field--item"><a href="/tag/global-warming-1" hreflang="en">Global Warming</a></div> <div class="field--item"><a href="/tag/bbc" hreflang="en">BBC</a></div> <div class="field--item"><a href="/tag/denialism" hreflang="en">Denialism</a></div> </div> </div> <section> <article data-comment-user-id="0" id="comment-1455755" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1392831877"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Greg, here's what to do about that:</p> <p>Find some way to "social-weaponize" the whole concept of "balance" until the media outlets never want to hear that word again. For example:</p> <p>When a TV station runs a piece about economics, they get a deluge of email demanding they "show balance" by interviewing prominent Marxists for counterpoint.</p> <p>When they run a piece about medicine, they get a deluge of email demanding they "show balance" by putting homeopaths and faith-healers on the air.</p> <p>When they run a piece about evolution, an email deluge demanding equal time for young-Earth creationism. No doubt this is already going on, so piggyback on it with the "reality is whatever I believe it is" meme (below).</p> <p>And any reference to the Moon landings ...heh heh, out come the conspiracizers demanding equal time to prove it never happened.</p> <p>Create a vast network of fictitious personae who are ready to demand "balance" for everything that gets broadcast, the more mundane the subjects and the more absurd the "balance," the better. And when it comes to climate change, the "balance" they should be demanding should also include references to abiotic oil theory (more quackadoodle nonsense, I'm sure you've heard of it), and wild conspiracy theories ideally including 9/11 stuff. </p> <p>There are probably gazillions of science undergrads who would love to sign up for doing something like this. They might even start sharing material and competing for "not even wrong" awards for the most well-crafted absurdisms. All they need is to create one or two fictitious email addresses each and then go to town. </p> <p>Key meme: "Editor: It doesn't matter whether you think it's true or real or not. It's an opinion that people hold. Reality is whatever people think it is. If your audience thinks the sky is purple with pink polka dots, it's not up to you to tell them it's blue, it's up to you to find someone who agrees with them, so they'll keep watching. Your job is to tell people whatever they want to hear, period."</p> <p>The goal is to make the word "balance" become so thoroughly associated with quackadoodle nonsense that no sane editor on the planet ever wants to hear that word again. And the way to do it is by relentlessly attacking the idea that there is any such thing as objective reality, because that will inevitably generate a backlash.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455755&amp;1=default&amp;2=en&amp;3=" token="aHakbtSkW8NIB0Xyaf5Ja5CKtLcik41NThhzEdKloMA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">G (not verified)</span> on 19 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455755">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1455756" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1392850142"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Nice Idea G but the problem is the editors will soon catch on and ignore the email. Not to mention that the vast majority of the media in North America is owned by right wing corporations who won't go along regardless. No matter what the hoi polloi want they will get fed what the beltway thinks.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455756&amp;1=default&amp;2=en&amp;3=" token="z7puXtnr9a-k-ubBuMPaNm8lUu-uk2CMbWr1C18cm9k"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Smarter Than Your Average Bear">Smarter Than Y… (not verified)</span> on 19 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455756">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1455757" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1392871142"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>G - you've basically just described the situation we have now (with the sole exception of the Marxists). In fact, on most of the topics you mention, the crazies <i>already</i> get more airtime than the sane people. You're making the classic mistake of assuming that editors and journalists care more about truth than money. They already believe that "Your job is to tell people whatever they want to hear, period.” That's how we got into this mess in the first place.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455757&amp;1=default&amp;2=en&amp;3=" token="zWSLMTCh4Wpg-3g-evPvH71ZCYsJVHvSQLkbkb684w0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Dunc (not verified)</span> on 19 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455757">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="31" id="comment-1455758" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1392880115"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Media Matters does a good job of a strategy something like this.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455758&amp;1=default&amp;2=en&amp;3=" token="fWSYS-TdtaJU-HIcKxs80ziOrbKSxqaCFxPYF94g8DE"></drupal-render-placeholder> </div> <footer> <em>By <a title="View user profile." href="/author/gregladen" lang="" about="/author/gregladen" typeof="schema:Person" property="schema:name" datatype="">gregladen</a> on 20 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455758">#permalink</a></em> <article typeof="schema:Person" about="/author/gregladen"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/author/gregladen" hreflang="en"><img src="/files/styles/thumbnail/public/pictures/HumanEvolutionIcon350-120x120.jpg?itok=Tg7drSR8" width="100" height="100" alt="Profile picture for user gregladen" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1455759" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1392892733"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>The problem with some media outlets and how the present climate change discussion is in the percentages. Ninety-five percent or better of the World's climate scientists back anthropogenic global warming. But when a media outlet presents a "balanced" discussion they have essentially stamped the issue as half for and half against. Giving the less-than 5% a 50% or larger cut of the media pie is disingenuous at the least, disastrous for us all at the worst.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455759&amp;1=default&amp;2=en&amp;3=" token="hWtR7w9OsMyioi7DPPsH9gU45oPwPW8MglmqQAT-j2Q"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Richard Chapman (not verified)</span> on 20 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455759">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1455760" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1392954929"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>This is the problem of media everywehre around the world. They just follow thier channel policy and forget the fact thousands of people die because of one environmental hazard or the ther. We must point out their not unbiased coverage</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455760&amp;1=default&amp;2=en&amp;3=" token="f0VA9IXEtv_C7fBOF3p2ccAyA3DzqK6BwvBYSAisnEc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Mi Muba (not verified)</span> on 20 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455760">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1455761" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1393076778"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I actually complained to the BBC about the original interview, but forgot to complain to Feedback as well. Next time (and by the sound of it, there will be a next time), I'll do both.</p> <p>Yep, the BBC still thinks that if you have a top scientist, and someone who rants for a living, then thats balance. Even worse, they employ people like Justin Webb to conduct the interview. Although not as pompous as James Naughtie, he's certainly the master of the non-threatening interview. </p> <p>Whe he was BBC's American editor, I saw him interview Carly Fiorina in 2008, when he didn't bother to ask a followup question which would have meant her basically saying Palin was an idiot, and he announced a new opinion poll a couple of days before Obama won saying that McCains numbers were excellent in one poll. From looking at 538 everyone knew that the poll consisted of the southern equivalent of 'three rather mangy cows, a dachshund named Colin, and a small hen in its late forties'. Basically, he's a bit of a dead loss, unlike his new colleage Mishal Husain, who is both an excellent presenter and a dream (be still my beating heart...).</p> <p>The BBC still has a problem with climate change in its news coverage, despite having been warned about it. Hopefully, calling them out on it will make a difference.</p> <p>However, it would help if they could find a climate scientist with the sort of appeal and media charisma that so many of the other sciences seem to possess, and that regularly appear on the BBC.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455761&amp;1=default&amp;2=en&amp;3=" token="gEf6jxAj4b4isO02zgMNXo5eEXAcDf9l6exO869Wvnk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">MikeB (not verified)</span> on 22 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455761">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1455762" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1393163628"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>OK, I've noew heard back from the BBC - I'll post it in full (sorry for the length)</p> <p>'We forwarded your complaint to Ceri Thomas, Head of Programmes at BBC News who responds as follows:</p> <p>“The BBC is committed to impartial and balanced coverage of climate change. Furthermore we accept that there is broad scientific agreement on the issue and reflect this accordingly. Across our programmes the number of scientists and academics who support the mainstream view far outweighs those who disagree with it. We do however on occasion, offer space to dissenting voices where appropriate as part of the BBC's overall commitment to impartiality. The BBC Trust, which oversees our work on behalf of licence fee payers, has explicitly urged programme makers not to exclude critical opinion from policy debates involving scientists.</p> <p>As was clear from the discussion, there is no conclusive proof as yet of a direct link between the storms hitting the UK this year and climate change. It was therefore reasonable for Justin Webb to ask Sir Brian Hoskins about the limits of scientific knowledge, in particular how the lay person should judge the evidence. But he also rigorously challenged Lord Lawson – in particular on his assertion that focusing efforts on developing green energy sources was a waste of money and that resources would be better spent on improving our defences against bad weather. Both lines of questioning were designed to help listeners judge how to assess the recent bad weather in the context of climate change.</p> <p>Scientists do have a crucial role to play in this debate. ‘Today’ has a track record of interviewing distinguished experts on climate change such as Lord Krebs, Sir John Beddington and Sir Mark Walport; all three have appeared on the programme in single interviews in recent months. But politicians and pressure groups also have their place and in six weeks of flooding, this was the first interview on 'Today' with a climate change 'sceptic.'</p> <p>Whilst there may be a scientific consensus about global warming - that it is happening and largely man-made - there is no similar agreement about what should be done to tackle it; whether money should be spent, for example, on cutting carbon emissions or would be better used adapting our defences to the changing climate. Lord Lawson is not a scientist, but as a former Chancellor of the Exchequer is well qualified to comment on the economic arguments, which are a legitimate area for debate.</p> <p>We believe there has to be space in the BBC’s coverage where scientific consensus meets reasonable argument about the policy implications of that consensus view. That said we do accept that we could have offered a clearer description of the sceptical position taken by Lord Lawson and the Global Warming Policy Foundation in the introduction. That would have clarified in the audience’s minds the ideological background to the arguments.</p> <p>I hope this helps explain our thinking.”</p> <p>We’d also like to assure you we've registered your complaint on our audience log. This is an internal report of audience feedback which we compile daily and is available for viewing by all our staff. This includes all news editors and presenters, along with our senior management. It ensures that your points, along with all other comments we receive, are considered across the BBC.'</p> <p>Can anyone see the get out clauses?<br /> Although the BBC does feature climate scientists in the news, it tends to then qualify the hell out of what they say. Lots of 'it could be', 'some say', 'scientists say', etc. Although climate deniers have no qualifications or expertise, its fine to have them on as 'dessenting voices', becuase its all about 'policy' (even though its actually about the science).<br /> Yes, we have actually interviewed proper scientists, but tended to get our no-nothing presenters to ask them daft questions culled from the Daily Mail's website. The fact that 97% or more actual scientists have no problem with the science means that when we've invited 3 or more to speak to use, then we need a buffoon as well to balance things up (the scientist to buffoon ratio being 3-1). Justin Webb 'rigorously' challenged Lawson to talk rubbish (and off the point rubbish) for quite a long time.<br /> 'But politicians and pressure groups also have their place' - and its been six weeks of them talking rubbish, so we just couldn't help ourselves in getting in someone who knows nothing.<br /> 'Lord Lawson is not a scientist, but as a<br /> former Chancellor of the Exchequer is well qualified to comment on the economic arguments, which are a legitimate area for debate.' We'd matched him up with a scince bloke, than that an economics bloke - so thats all right.<br /> 'We believe there has to be space in the BBC’s coverage where scientific consensus meets reasonable argument about the policy implications of that consensus view.' - We think that Lawson is a Lord, and although barking, we think sounds important.</p> <p>Basically, the BBC is scared of its own shadow, and consistantly thinks that this sort of nonsense provides balance. The denier drones who will email BBC News after very story about AGW scare them much more than those of us who email to complain after this sort of rubbish. Its time for actual scientists to call them out, and embarrase them. They've been warned already.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1455762&amp;1=default&amp;2=en&amp;3=" token="SRuP_t9Bh-iVdBmuDtAQ4QOXhr5YbPZJdO5G09KMn5Y"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">MikeB (not verified)</span> on 23 Feb 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1455762">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> </section> <ul class="links inline list-inline"><li class="comment-forbidden"><a href="/user/login?destination=/gregladen/2014/02/19/shame-on-the-bbc-false-balance-in-climatechange-discussion%23comment-form">Log in</a> to post comments</li></ul> Wed, 19 Feb 2014 09:57:39 +0000 gregladen 33058 at https://www.scienceblogs.com Don't miss this episode: Dolphins using puffer fish toxins to "get high" https://www.scienceblogs.com/lifelines/2014/01/02/dont-miss-this-episode-dolphins-using-puffer-fish-toxins-to-get-high <span>Don&#039;t miss this episode: Dolphins using puffer fish toxins to &quot;get high&quot;</span> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"><p>A new documentary from BBC called "Spy in the Pod" has captured what they claim to be footage of dolphins using puffer fish to reportedly "get high". According to a quote from the Daily Mail, "Zoologist and series producer Rob Pilley said that it was the first time dolphins had been filmed behaving this way." The toxins apparently have a narcotic-like effect on the dolphins. </p> <iframe width="560" height="315" src="//www.youtube.com/embed/PGbDYYf4vxc" frameborder="0" allowfullscreen=""></iframe><p> <strong>The "Spy in the Pod" two-part series begins tonight at 8:00pm on BBC1.<br /></strong></p> <p>Additional source:<br /><a href="http://www.dailymail.co.uk/sciencetech/article-2530664/High-not-dry-Dolphins-filmed-chewing-toxic-puffer-fish-enjoy-narcotic-like-effects.html">Daily Mail</a></p> </div> <span><a title="View user profile." href="/author/dr-dolittle" lang="" about="/author/dr-dolittle" typeof="schema:Person" property="schema:name" datatype="">dr. dolittle</a></span> <span>Thu, 01/02/2014 - 12:21</span> <div class="field field--name-field-blog-tags field--type-entity-reference field--label-inline"> <div class="field--label">Tags</div> <div class="field--items"> <div class="field--item"><a href="/tag/life-science-0" hreflang="en">Life Science</a></div> <div class="field--item"><a href="/tag/bbc" hreflang="en">BBC</a></div> <div class="field--item"><a href="/tag/dolphin" hreflang="en">dolphin</a></div> <div class="field--item"><a href="/tag/drug" hreflang="en">drug</a></div> <div class="field--item"><a href="/tag/high" hreflang="en">high</a></div> <div class="field--item"><a href="/tag/narcotic" hreflang="en">narcotic</a></div> <div class="field--item"><a href="/tag/toxin" hreflang="en">toxin</a></div> </div> </div> <section> <article data-comment-user-id="0" id="comment-2509194" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1388749533"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>On the other hand, </p> <p>"Tetrodotoxin simply doesn’t make sense as a drug (and let’s be honest —if it did, humans would be snorting it off bathroom counters already)."</p> <p><a> blogs.discovermagazine.com/science-sushi/2013/12/30/stoned-dolphins-give-puff-puff-pass-whole-new-meaning/</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=2509194&amp;1=default&amp;2=en&amp;3=" token="swy6oTEkTzmjEhxOP2yJwbGfSA3fMIdmPu9xsyauKYM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">GregH (not verified)</span> on 03 Jan 2014 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-2509194">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> </section> <ul class="links inline list-inline"><li class="comment-forbidden"><a href="/user/login?destination=/lifelines/2014/01/02/dont-miss-this-episode-dolphins-using-puffer-fish-toxins-to-get-high%23comment-form">Log in</a> to post comments</li></ul> Thu, 02 Jan 2014 17:21:25 +0000 dr. dolittle 150163 at https://www.scienceblogs.com Odds and ends left over after the Panorama Burzynski Clinic report: Burzynski versus his own SEC filing https://www.scienceblogs.com/insolence/2013/06/05/odds-and-ends-about-burzynski-clinic <span>Odds and ends left over after the Panorama Burzynski Clinic report: Burzynski versus his own SEC filing</span> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"><p>I realize that I've been focusing on Stanislaw Burzynski the last couple of days, but it's just been one of those weeks. Between the release of Eric Merola's latest paean to the Brave Maverick Doctor and BBC Panorama's report on Burzynski and his activities, it's been an eventful week. My review of the <a href="http://scienceblogs.com/insolence/2013/06/03/in-which-the-latest-movie-about-stanislaw-burzynskis-cancer-cure-is-reviewed-with-insolence/">second Burzynski movie</a> and the <a href="http://scienceblogs.com/insolence/2013/06/04/stanislaw-burzynski-versus-the-bbc/">Panorama report</a> explain a lot, but there are some loose ends left over. So I might as well take care of that today before resuming regular blogging topics. (Yes, I know Stanislaw Burzynski is a regular blogging topic, but too much of a bad thing can get tiresome, no matter how much outrage I feel and express over his activities, leading to heapin' helpings of not-so-Respectful Insolence.</p> <p>As devastating as the Panorama story was, complete with Burzynski smirking his usual annoying, smug smirk and asking the reporter if he has Alzheimer's disease because he's asking him the same question (stay classy, Stash, stay classy), there were a lot of aspects dealt with little or not at all. First and foremost of those issues not dealt with whose absence was a huge mistake was the issue of the most recent FDA investigation of the Burzynski Clinic. It's so bad that Josephine Jones is openly wondering <a href="http://josephinejones.wordpress.com/2013/06/03/did-burzynski-lie-to-the-bbc/">whether Burzynski lied to the BBC</a>. Regular followers of the Burzynski saga will remember that in January the FDA showed up at Burzynski's operations to investigate. As Merola likes to harp on, FDA investigators stayed until March. Currently, we are awaiting the FDA's decision, which is usually posted to the FDA website in the form of a formal letter. In any case, the reason this is relevant is because the FDA put a clinical hold on antineoplastons and barred the enrollment of any new patients on any of Burzynski's protocols. Moreover, in response to a <a href="http://scienceblogs.com/insolence/2012/11/07/stanislaw-burzynski-slapped-down-by-the-fda-once-again/">warning letter from the FDA</a> last fall about promoting an unapproved drug, in January the Burzynski Clinic removed all references to antineoplaston therapy on its website, which is rather like Major League Baseball removing all references to, well, baseball on its website.</p> <!--more--><p>To recap, we know that last year a child suffered a <a href="http://scienceblogs.com/insolence/2013/02/08/will-the-fda-finally-slap-down-stanislaw-burzynski-for-good/">severe adverse reaction to antineoplaston therapy</a>, which led to the FDA putting a clinical hold on antineoplastons for children. Then, in January apparently, the clinical hold was placed on antineoplastons for adults as well, although apparently patients already receiving them could continue to do so. Actually, I wondered about that when I saw a rather fascinating part of the Panorama report, namely a tour of Burzynski's manufacturing facility, which, we are told, can crank out 300 L of antineoplaston solution per day.</p> <p>Which brings us to one of the odds and ends I wanted to touch upon, and it's an issue that <a href="http://josephinejones.wordpress.com/2013/06/03/did-burzynski-lie-to-the-bbc/">Josephine Jones</a> touches on as well. Throughout Eric Merola's infomercial for Burzynski and the BBC Panorama report, we are told by Burzynski, his acolytes, and his shills that antineoplastons will be approved by the FDA "soon," that he's been doing the trials to gain FDA approval over the last 15 or 20 years, and, oh, by the way, not to worry. We have been promised repeatedly that all those phase II clinical trials that Burzynski registered will similarly be published "soon." Even Pete Cohen, Hannah Bradley's partner, showed up on BBC Radio 5 promising that Burzynski is furiously submitting manuscripts for publication. But what's really happening?</p> <p>Josephine Jones points us to this recent <a href="http://www.sec.gov/Archives/edgar/data/724445/000110465913045361/a13-13348_110k.htm">SEC report</a> for the Burzynski Research Institute for the fiscal year ending February 28, suggesting that we read the section entitled <em>Partial Clinical Hold on Phase II and Phase III Clinical Trials</em>. So I did. Now I'm not a businessman, and I don't understand anything but the very basics of business. A lot of these SEC reports might as well be Greek to me, but I do know cancer science. I also know what Burzynski and his acolytes have been saying, one of which is that the phase III trial wil probably never be done because it's "too expensive." Yet in the report, we read:</p> <blockquote><p> On February 23, 2010, the Company entered into an agreement with Cycle Solutions, Inc., dba ResearchPoint (“Research Point”) to initiate and manage a pivotal Phase III clinical trial of combination Antineoplastons A10 and AS2-1 plus radiation therapy (RT) in patients with newly-diagnosed, diffuse, intrinsic brainstem glioma. Research Point has secured interest and commitments from a number of sites selected. Upon completion of this assessment, a randomized, international Phase III study will commence. The study’s objective is to compare overall survival of children with newly-diagnosed, diffuse, intrinsic brainstem glioma (DBSG) who receive combination Antineoplastons A10 and AS2-1 plus RT versus RT alone. </p></blockquote> <p>Three years should be plenty of time to line up clinical sites for a phase III trial. Of course, given that after three years the clinical trial hasn't been opened, more than likely no reputable institution wants to partner with the Burzynski Research Institute, and ResearchPoint collected its checks. Then came the partial clinical hold, which affected this phase III trial as well as all the phase II trials, and, fortunately for patients, Burzynski's antineoplaston operation is shut down. Revealed in the SEC report, of all places is why.</p> <p>It's a long excerpt, but I think it's important. There's a lot of legalese and FDA bureau-speak, but the meaning should be fairly clear to a layperson:</p> <blockquote><p> In a letter dated June 25, 2012, the Company informed the FDA of a serious adverse event which may have been related to the administration of Antineoplastons. On July 30, 2012, the FDA placed a partial clinical hold for enrollment of new pediatric patients under single patient protocols or in any of the active Phase II or Phase III studies under IND 43,742. The FDA imposed this partial clinical hold because, according to the FDA, insufficient information had been submitted by the Company to allow the FDA to determine whether the potential patient benefit justifies the potential risks of treatment use, and that the potential risks are not unreasonable in the context of the disease or condition to be treated. The FDA cited 21 C.F.R. § 312.42(b)(2)(i), 21 C.F.R. § 312.42(b)(1(iv), and 21 C.F.R. § 312.42(b)(3)(i), as grounds for imposition of a clinical hold; and 21 C.F.R. § 312.305(a)(2), a criteria for expanded access use. The FDA advised the Company that until it resolved the matter to FDA’s satisfaction, the Company could not enroll new pediatric patients in any protocol under such IND. The Company later notified the FDA in a September 24, 2012 letter that it was closing pediatric protocol BT-10 (under IND 43,742) for enrollment effective September 25, 2012, and that it would also terminate the protocol once all active patients had completed the study. </p></blockquote> <p>In other words, no more antineoplastons for children, not now, and, hopefully, not ever. Burzynski can continue to treat children on his protocols who had already started treatment, but that's it. This is very good news. After all, the Burzynski Research Institute is shutting down the pediatric protocol.</p> <p>This ultimately led to the partial clinical hold being extended to adults:</p> <blockquote><p> In a teleconference on January 9, 2013 between the FDA and the Company, followed by a letter of the same date, the FDA notified the Company that the agency was placing IND 43,742 on partial clinical hold, due to a lack of a complete response to the issues raised by the FDA and what the FDA deemed a misleading, erroneous, and incomplete investigator brochure. The FDA cited 21 C.F.R. § 312.42(b)(2)(i) and 21 C.F.R. § 312.42(b)(1)(iii), as grounds for imposition of a clinical hold. The FDA further advised the Company that until it resolved the matter to the FDA’s satisfaction, that the Company could not enroll new adult or pediatric patients in any protocol under such IND. The FDA also placed protocols B-52 and B-54 on clinical hold due to what the FDA deemed to be an unreasonable and significant risk of illness or injury to human subjects. The FDA cited 21 C.F.R. § 312.42(b)(2)(i) and 21 C.F.R.§ 312.42(B)(1)(i), as grounds for imposition of a clinical hold. The FDA advised the Company that until it resolved the matter to FDA’s satisfaction, the Company could not legally conduct the identified clinical studies under such IND.</p> <p>In a letter dated April 9, 2013, the Company responded to the issues raised by the FDA in its January 9, 2013 letter to the Company. In a letter dated May 9, 2013 from the FDA, the FDA advised the Company that the Company’s April 9, 2013 letter was not a complete response to all the issues listed in the FDA’s letter dated January 9, 2013, and the FDA also identified the issues that were not fully addressed by the Company’s response. The FDA further advised the Company that until it satisfactorily addressed all the issues in the FDA’s letter dated January 9, 2013, that the FDA could not complete its review, and the clinical hold could not be removed. </p></blockquote> <p>So basically, the FDA extended its clinical hold; the Burzynski Research Institute answered the FDA's charges; and the FDA was not satisfied. Until the Burzynski Research Institute can adequately address those concerns, there will be no new patients enrolled. If I were a betting man, I'd bet that no new patients ever will be enrolled because maybe, just maybe, the FDA is finally cracking down on Burzynski for real. At least, that's whI hope. I'm all too aware that it looked just as bad for Burzynski in the 1990s, which was the last time the FDA made a serious run at the Burzynski Research Institute, and Burzynski managed to slither away, to come back bigger and stronger than ever. Even so, Burzynski's own SEC filings suggest that all the bold talk of imminent approval of antineoplastons by the FDA and publication of the papers that will prove to the world that antineoplastons work are pipe dreams, stories to keep the marks on board and hoping. Indeed, even the report seems to concede that antineoplastons will likely never be approved, even going so far to point out that "the Company cannot predict if and/or when it will submit an NDA [New Drug Application] to the FDA, nor can the Company estimate the number or type of additional trials the FDA may require." Burzynski also warns that "there can be no assurance that an NDA for Antineoplastons, as a treatment for cancer, will ever be approved by the FDA."</p> <p>That hardly sounds as though antineoplastons will be approved "soon." After all, an NDA hasn't even been submitted, and Burzynski is saying in his own SEC filings that he can't predict when an NDA will be filed. Presumably if Burzynski were truly on the verge of getting antineoplastons approved by the FDA he would have said so in his SEC filing. That's why his SEC filings are so revealing. Burzynski can distort, exaggerate, and even lie to the public, but lying on an SEC filing would carry serious consequences.</p> <p>Notwithstanding the response results of the trials that have reached a Milestone, management believes it is likely that the FDA may require additional clinical trials based upon such protocols to be conducted by an institution not affiliated with the Company or Dr. Burzynski before advising that an NDA filing is warranted. In addition, the FDA has indicated it will not accept the efficacy data, but will accept toxicity data generated by the Phase II study according to Protocol CAN-1 because the trial was partially retrospective. At this time, the Company cannot predict if and/or when it will submit an NDA to the FDA, nor can the Company estimate the number or type of additional trials the FDA may require. Further, there can be no assurance that an NDA for Antineoplastons, as a treatment for cancer, will ever be approved by the FDA.</p> <p>No assurance can be given that any new IND for clinical tests on humans will be approved by the FDA for human clinical trials on cancer or other diseases, that the results of such human clinical trials will prove that Antineoplastons are safe or effective in the treatment of cancer or other diseases, or that the FDA would approve the sale of Antineoplastons in the United States.</p> <p>Another interesting tidbit in the SEC filing is Burzynski's report of the results of several of his clinical trials. They aren't really "results' per se, in that the information presented really isn't provided in a form that really allows other investigators to evaluate it and potentially replicate it. Basically it's a big table listing Burzynski Research Institute clinical trials and response rates reported. One thing that I noticed right away is that in most trials, the number of evaluable patients is smaller, sometimes much smaller, than the number of patients accrued. This is a huge red flag. For instance, in trial BT-20, there were 40 patients accrued by only 22 were evaluable. This sort of dropoout rate is a huge red flag. We don't know the reasons for this dropout rate. It could certainly skew the results, but even that's impossible to tell from just a table of response rates and no further information. Of course, I realize that this is an SEC filing, not a scientific paper in the peer-reviewed literature, but if Burzynski has all this data to produce this table it boggles the mind that, given at least a decade and a half since these trials began, he hasn't been able to publish any meaningful data thus far. That he hasn't been able to do so is also a big red flag.</p> <p>One can't help but wonder why BBC Panorama didn't look at this information. It could easily have fit into the narrative. Imagine a more prepared reporter, faced with the confident and sarcastic bloviation from Burzynski that antineoplastons will be approved "soon," pulling out Burzynski's own SEC filings and telling him that that's not what he said in those filings. I can only imagine two reasons Bilton didn't do that: The report wasn't out when the interview occurred (which is possible, given the mentions of a date in early May) or lack of preparation. If it were the former situation, a more prepared reporter could have hammered Burzynski on how he could possibly say so confidently that antineoplastons were going to be approved "soon" with partial clinical holds by the FDA on children since the fall of 2012 and on adults since January 2013. These are hardly the sorts of issues that suggest imminent approval, contrary to Burzynski's statements, which now must be viewed, in my opinion, as outright lies. Indeed, even if the SEC filing wasn't published yet at the time this interview took place, imagine a voiceover tacked on after Burzynski's statement pointing out that his own SEC filings contradicted his assertions. Moreover, bringing up these issues would arguably have fit into the narrative perfectly to point out that Burzynski is still promoting antineoplastons through surrogates by saying that FDA approval is imminent when, according to his SEC filing, he apparently hasn't even filed an NDA yet. As much as the BBC got right in its coverage of Burzynski, aspects of its Panorama episode on Burzynski were pure frustration to those of us who have been following Burzynski for a while.</p> </div> <span><a title="View user profile." href="/oracknows" lang="" about="/oracknows" typeof="schema:Person" property="schema:name" datatype="">oracknows</a></span> <span>Wed, 06/05/2013 - 00:00</span> <div class="field field--name-field-blog-tags field--type-entity-reference field--label-inline"> <div class="field--label">Tags</div> <div class="field--items"> <div class="field--item"><a href="/tag/bioethics" hreflang="en">Bioethics</a></div> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/clinical-trials" hreflang="en">Clinical trials</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> <div class="field--item"><a href="/tag/antineoplastons" hreflang="en">antineoplastons</a></div> <div class="field--item"><a href="/tag/bbc" hreflang="en">BBC</a></div> <div class="field--item"><a href="/tag/panorama" hreflang="en">Panorama</a></div> <div class="field--item"><a href="/tag/personalized-gene-targeted-cancer-therapy" hreflang="en">personalized gene-targeted cancer therapy</a></div> <div class="field--item"><a href="/tag/phenylbutyrate" hreflang="en">phenylbutyrate</a></div> <div class="field--item"><a href="/tag/stanislaw-burzynski" hreflang="en">Stanislaw Burzynski</a></div> <div class="field--item"><a href="/tag/bioethics" hreflang="en">Bioethics</a></div> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/clinical-trials" hreflang="en">Clinical trials</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> </div> </div> <section> <article data-comment-user-id="0" id="comment-1228576" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370408402"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Stan is basically stuck in a Catch-22 situation. Enough people are now aware that he has had long enough to gather 'data' and prove whether his treatment works or not, and what the side effect profile actually is. If he publishes, then he'll have to properly reveal his protocols, and the real identity of the drugs (PA, PAG, PB, all of which are off-patent and can be bought easily), and then other doctors around the world can start using them, so nobody needs to come and pay him $$$$$$. If he doesn't publish, or show enough evidence of efficacy, enough people are now suspicious that it's no good (putting off potential patients), and the FDA can clamp down properly. In which case, no more patients and no more $$$$. Either way he loses, and hopefully thirty years of audacious claims and misled patients comes to an end.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228576&amp;1=default&amp;2=en&amp;3=" token="vyJAMllJc_-utvHenndtJnRM6Jkht0T_HkTgIPKy_Jw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">K (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228576">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228577" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370410252"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Depending on whether or not Burzynski is listed as an officer of the company, he's not "strictly" held to the statements in the SEC filing.....because of Sarbanes Oxley &amp; other financial regulatory changes, the CEO / CIO of any company can be held criminally-liable for misinformation contained in any SEC filings (they are required to sign-off on all information as "factually accurate and correct).</p> <p>Again, if Burzynski isn't listed as an officer, he can say whatever he wants about ANP or any other treatments, since he's not "officially" part of the leadership of the clinic.</p> <p>Of course, it would be interesting to take a run at the new head of PR for the company to explain the discrepancies between what Dr. B has stated publicly and what the Clinic is telling to the Government (and potential investors).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228577&amp;1=default&amp;2=en&amp;3=" token="BAJsuMKpJyOd0tGtD2TTrGsbcZ6Ft1aWic45waiRHAk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228577">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228578" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370413059"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>If the Panorama team were aware of the SEC filings it would be unlikely to report them. </p> <p>The programme is pitched at a certain level, a level which seems to decrease year on year, and trying to even explain what SEC filings were would take up a fair bit of time. </p> <p> You'll have noticed that the language/tone of the programme isn't exactly high-brow. The target audience of BBC1 isn't intellectuals or professionals. The content is made so that it's understood by, and accessible to, as large an audience as possible, so that the channel can grab the largest audience share.</p> <p> Although BBC1 do put out some absolute gold sometimes, it's almost all from the Wildlife dept. We're talking about a channel where, of the five largest viewing figures in the channel's history, four of those slots are occupied by Eastenders.</p> <p>They don't want to turn viewers off by being too technical or in-depth, so Panorama's "investigations" are, all too often, just human interest stories masquerading as hard-hitting investigative journalism. There are a few good episodes from the last few years, but even a stopped clock is right twice a day.</p> <p>I'd love to see a full-length documentary into Burzynski on BBC4, or even a strong segment on Newsnight, Jeremy Paxman would rip Scamley up one side and down the other, but I doubt it will ever happen.</p> <p>I really hope this is the end of the Piss-poor Protocol. Now if only someone could clamp down on his fantasy "gene-targeted therapy".</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228578&amp;1=default&amp;2=en&amp;3=" token="mnWXmvD2iLS6gE4UxturF1aRrZWURIWT3N21la7Zvjg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228578">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228579" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370413475"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>A potential reason for a high dropout rate is that the patients may be unable to complete a full treatment (whatever that is), likely due to inability to pay. Not only is charging for participation in clinical trials unethical, it also screws up the study because financial limitation interferes. (And provides a delay before starting treatment that makes a handy excuse.)</p> <p>If Burzynski really wanted to get these trials completed, he would set things up so that the barriers to enrolling were as small as possible. For these desperate people seeking hope, the biggest barrier -- and what we've seen delays the start of treatment by significant months because of the up-front charges and then causes dropouts when they cannot continue to pay -- is $$. And his mansion and I-came-here-with-nothing tale suggests that these costs and that barrier are significantly higher than necessary.</p> <p>Several patient stories have mentioned the escalation in charges and additional fees as they progress. In some cases is seems to result in taking every penny they can raise, much sooner than they anticipated, and then forcing them to drop out. In some cases they suspend treatment while trying to get more money, which is hardly a way to test a protocol. It does make them easy to exclude -- even from a collection of anecdotes -- while taking everything.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228579&amp;1=default&amp;2=en&amp;3=" token="HrjXNE_yk72jx-rGKvSBSmc1Z7Ro4uql-OX22AKgASE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Patricia (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228579">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228580" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370414108"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Meanwhile, I'm curious how his pushing off responsibility onto others squares with him being the one who is personally paid rather than the clinic (or the treating physician). How are these funds classified (e.g. for taxation)?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228580&amp;1=default&amp;2=en&amp;3=" token="5d24vzxeP7-7PP_Tmu5puzNJWNdI_3640G2RR7P6mP0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Patricia (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228580">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228581" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370414826"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Also not mentioned is that donations to the clinic are preferred by personal check made to DR B (or at least, that used to be the case). Dodgy as hell.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228581&amp;1=default&amp;2=en&amp;3=" token="fUZ-EkXq1Xanan5Kl_UNH437s4gRhinjWd_Q_TSdTTk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">K (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228581">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228582" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370414962"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Patricia - after reading through some of the financials, it certainly appears to be a pretty messy situation over there.</p> <p>1) Burzynski owns the building where the Clinic is based &amp; he charges the Clinic rent.</p> <p>2) Burzynski also provides all of the operating capital for the Clinic, but charges back for (again rent) and other expenses related. This allows him to skim off any and all profits from the clinic in the name of "expenses" leaving them to report either a small loss or net-neutral revenue.</p> <p>3) Members of the IRB (which are supposed to be Independent of the organization they oversee) are actually sitting on the Clinic's Board of Trustees.</p> <p>This is a very complex web of financial arrangements that allow the Clinic to operate, Burzynski to take all of the profits as "business expenses" related to the Clinic, and basically makes the Clinic report "Zero" Profit &amp; not pay taxes on it.</p> <p>Scary stuff.....</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228582&amp;1=default&amp;2=en&amp;3=" token="alIcTbygilx6-iBvRoo2OCyBf1ziAkjr5khBIHo-ppg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228582">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228583" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370415310"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I predict that Stan will do a swift ass-covering exercise with the antineoplastons. He won't publish his "results" (he doesn't want to, obviously [presumably ANPs are useless] and if tried he'd be laughed out of the building), and so he thinks he can weasel out of presenting any meaningful data by pretending the nasty FDA has stopped him being able to.</p> <p>Once this particular failed bridge is burnt he will be able to concentrate on his new scam, "gene targeted" therapy.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228583&amp;1=default&amp;2=en&amp;3=" token="-8xPwpLbi_wxvoepa8FEvRptLiaEfE4pTajU0heqhfg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">dingo199 (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228583">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228584" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370417345"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>But "gene targeted" therapy is done through Caris testing and uses approved Big Pharma drugs (eg Tarceva etc), which come with huge cost and a raft of potential adverse effects. So he'll quickly lose the support of the "no chemo"/alt-med brigade.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228584&amp;1=default&amp;2=en&amp;3=" token="_EMdpc8SvCxh_GFyVsQ2_ugnmcRIQ6yocYdWnwTKcYY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">K (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228584">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228585" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370418777"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As SB is making lots of statements that run contrary to the information contained in the SEC statement he could be in real trouble for market manipulation. As a publicly traded company you can't state "we're doing great" when you're doing lousy. It would be poetic justice if he goes down for SEC violations, like Al Capone went down on tax evasion charges.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228585&amp;1=default&amp;2=en&amp;3=" token="pJ-GnZb7mSTS78bhBgG4JFenXE4OBSzA6x9SIWLddLw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Mu (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228585">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228586" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370419270"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>For those of us in North America who have not been able to see the Panorama episode yet, the entire 30-minute segment has just been posted on YouTube:</p> <p><a href="http://www.youtube.com/watch?v=GdZf5_El1Pw&amp;feature=youtu.be">http://www.youtube.com/watch?v=GdZf5_El1Pw&amp;feature=youtu.be</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228586&amp;1=default&amp;2=en&amp;3=" token="n3IrG5ogHjRksUeMuxtFJv1Gac7gfNUqVGOe11nzyMc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Marc Stephens Is Insane">Marc Stephens … (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228586">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228587" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370419499"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I'm confused: a few minutes ago the entire 29 minute episode was there (I swear!); now it's just a three-minute snippet that gets cuts off midstream. Did the BBC pull the entire episode for some copyright reason? This is very frustrating as I just set aside a half-hour to watch it.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228587&amp;1=default&amp;2=en&amp;3=" token="fhYhEFqZR5_g_7g0W_sM_NaoRGoSA3mpCWhXa9bbJ00"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Marc Stephens Is Insane">Marc Stephens … (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228587">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228588" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370419817"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Lawrence @2: IANAL, but don't the liability provisions of Sarbanes-Oxley only apply to official financial statements of the company? He gives the straight story in the SEC filing because doing otherwise would be a felony. As for what he says to the public, there is an abracadabra involving the words "forward-looking statements" which he can invoke to make shareholder lawsuits disappear. Anything he says about putative publications or prospective FDA approvals would qualify as "forward-looking statements." I haven't checked his press releases, but Burzynski would be stupid not to take advantage of that loophole, and I haven't seen any evidence Burzynski (or his lawyers, who should have pointed out this rule to him if he had been unaware of it) is stupid. Maybe he got careless, but I would expect that Burzynski has covered his posterior.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228588&amp;1=default&amp;2=en&amp;3=" token="oQ7s8-2tkPL1Scn2fGi3Ng-mJ9cIu3eRf-F6x2UY9PM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Eric Lund (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228588">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228589" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370419991"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Here's the link to the BBC iPlayer: <a href="http://www.bbc.co.uk/programmes/b02vdg1t">http://www.bbc.co.uk/programmes/b02vdg1t</a><br /> I believe the word "proxy" might help you with an internet search as to how to watch it.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228589&amp;1=default&amp;2=en&amp;3=" token="rxYyrnBPGnhFkRzlq1xNdCIckQzx6DEafOJla2s2FcY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">K (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228589">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228590" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370419932"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Lawrence : thanks.</p> <p>Though how does he pull claiming the money is expenses (and the clinic is responsible, not him) when it's paid to him personally, directly by the patients? </p> <p>And who owns his house? Building and maintaining that must be hugely expensive, hard to do that without personal taxable income. Or does he somehow charge that to the clinic too?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228590&amp;1=default&amp;2=en&amp;3=" token="SD64yFaB2wSLfDv-xxyZ-z6DAYa90CjEF9V73ZH41nI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Patricia (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228590">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228591" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370420441"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>It seems the full Panorama episode is back up on YouTube at the link I posted above.</p> <p>Patricia: in 2010, according to Harris County records I easily found online, his property taxes alone were over $100,000.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228591&amp;1=default&amp;2=en&amp;3=" token="JTsAFkm946VXT0MmSdL8WwoWcVcKipFXo6JhGLS-iqU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Marc Stephens Is Insane">Marc Stephens … (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228591">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228592" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370420513"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Mu - depending on how the ownership is structured, you'd be surprised at what people can get away with.....</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228592&amp;1=default&amp;2=en&amp;3=" token="yhDH1tkXLpJRxWGq0qfM6D6h6bpEtJnc34_s5qRWKsc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228592">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228593" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370420629"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Eric - if Burnzynski isn't an "officer of the company" it really doesn't matter, since he wouldn't have to sign off on the financial statements.</p> <p>In fact, in reading the filings, Burzynski is presented as more of a landlord / consultant, than an actual owner or partner in the company / clinic.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228593&amp;1=default&amp;2=en&amp;3=" token="w406tEQBkE65dSGLVMq0fgFQDeeWQtYkx6hn5FHJReU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228593">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228594" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370421663"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Then if he's not actually part of the company, why does it say this on the Burzynski CLinic website:<br /> "Donate to Clinical Trials &amp; ResearchThe Burzynski Clinic accepts monetary dontations toward the continuation of the Clinical Trials and Research. You donate by check or Money Order payable to: S.R.Burzynski, M.D., Ph.D. Please note that donations are not tax deductible."<br /><a href="http://www.burzynskiclinic.com/donate.html">http://www.burzynskiclinic.com/donate.html</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228594&amp;1=default&amp;2=en&amp;3=" token="NZ4voaLrAhdj2SbfjfM0esWtpRNN8-9Ugw1xqQ3q54k"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">K (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228594">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228595" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370422034"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>A move to Mexico might be the next step. Tijuana here we come!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228595&amp;1=default&amp;2=en&amp;3=" token="BeuWueDPMsLmWASw0mJeXc8fYr-aZeOJ3lLg3lTKFOw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lancelot Gobbo (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228595">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228596" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370422346"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Ah yes, Brave Maverick Doctor (TM) forced to leave the US because of Big Government Interference (TM).</p> <p>This has all the hallmarks of a continuing alt-med saga.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228596&amp;1=default&amp;2=en&amp;3=" token="yAerdSZlJu2guRA305KutFVIYKFJaxNx5Kd3r7xnD0s"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">nastylittlehorse (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228596">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228597" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370423079"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Then if he’s not actually part of the company, why does it say this on the Burzynski CLinic website</p></blockquote> <p>To maintain the illusion that he funds the Clinic's "work" through his "private practice." (I haven't gone back to check whether Scamley's signature actually appears anywhere on the 10-K.)</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228597&amp;1=default&amp;2=en&amp;3=" token="NnR27YDgUrU05s3B9fxFj9y91mcRBafW4nwqhGmqhgI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228597">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228598" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370423002"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Here is a very interesting summary:</p> <p><a href="http://www.ratbags.com/rsoles/history/2012/0324the-burzynski-clinic.pdf">http://www.ratbags.com/rsoles/history/2012/0324the-burzynski-clinic.pdf</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228598&amp;1=default&amp;2=en&amp;3=" token="646qg1g-JHi01VMcPzkFWN68ZqqUl7b0TtVR0MQHoDc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228598">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228599" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370424982"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Burzinsky is an officer of the company, I took a look at the latest SEC filing. He is listed as the President and a Director.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228599&amp;1=default&amp;2=en&amp;3=" token="J-Gn2s_QY3sPg7lb9r3-77WqOmeB0tzLP7peepOLFWo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Suzanne (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228599">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228600" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370426270"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>OT - but is reportage of alt med fol de rol and ri-ra in Texas** ever truly OT @ RI?</p> <p>At AoA today, Dan Burns outlines AJW's appeal ( no, not THAT appeal- that one's over and done with) wherein we learn that:<br /> the BMJ attorneys resemble a tornado,<br /> AJW's rep, McBride, has a free legal clinic for parents of children in special education and has a child with ASD, AND<br /> you can still donate money to help Andy.</p> <p> "'Science'' blogs is mentioned and rather interesting similes/ metaphors are employed in both post and comment ( "get away car", "get in bed", "wriggle" et al).</p> <p>** -btw- I am trying to figure out if Austin is in the crappy part of Texas or the really crappy part of Texas ( i.e, the steamy hot and,humid flood plane or the burnt out, inhospitable-to-life desert)? The map does very little good for me but I'd guess the former.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228600&amp;1=default&amp;2=en&amp;3=" token="HuKoiFQdsA85sr7UD2JKtYLNx4y9Sj9ngxEruvZrMdg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228600">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228601" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370427100"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>One thing that I noticed right away is that in most trials, the number of evaluable patients is smaller, sometimes much smaller, than the number of patients accrued. This is a huge red flag. For instance, in trial BT-20, there were 40 patients accrued by only 22 were evaluable. This sort of dropoout rate is a huge red flag. We don’t know the reasons for this dropout rate.</p></blockquote> <p><a href="http://theotherburzynskipatientgroup.wordpress.com/2013/03/21/burzynski-patient-andrea-w-s-story/">Andrea W's story</a> may give us a clue as to one of the reason's for the high dropout rate:</p> <blockquote><p>On October 1 [Andrea's] brain swelled massively, just as her flight home was beginning its descent. Henry Friedman, a neuro-oncologist at Duke University, and Victor Levin, a brain-tumor specialist at MD Anderson Cancer Center in Houston, and Boehm, her neurosurgeon, say she should never have traveled any distance from a hospital emergency room. Counters Burzynski: “It’s not up to us; that’s up to the local physician.” Boehm says the Burzynski clinic never called to ask him whether Andrea was fit to fly.</p> <p>The patient history in Burzynski’s report to the FDA states that Walsh did not die under his care. She is listed as having withdrawn from treatment September 30, two days before she died. But according to the [W]s and [Andrea's friend], a nurse, Andrea was still receiving antineoplastons just before she boarded the plane. “If she withdrew, why was she carrying a suitcase full of the medicine?” [her father] asks. Burzynski says he listed [Andrea] as having withdrawn on September 30 because that was the last day she was treated.</p></blockquote> <p>For further context, Andrea learned about 10 days earlier that her tumor had doubled in size. Burzynski told her she had to come down to the Clinic or she would be dropped. The day before she left the Clinic to return home, Burzynski told her that the tumor was breaking up, that it was shrinking. <b>Her family then paid the standard $7,000 payment for the next months round of medication</b>.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228601&amp;1=default&amp;2=en&amp;3=" token="VtSlqrZJF2IV9JqDIQ2GhZUDJ2FHDAfhpbHBsmFVKGg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">W. Kevin Vicklund (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228601">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228602" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370427731"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Just reading these stories makes me feel sick, I can't even begin to imagine how awful it must be for the families.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228602&amp;1=default&amp;2=en&amp;3=" token="eufjejZM-Cx0HDaWdIdWPNP_N4Cm4ulJwMSv7iuqLdw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">K (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228602">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228603" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370427464"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Denice Walter - Austin is actually in a fairly nice part of Texas. It is not as hot and humid as Houston, though slightly more so than Dallas. Winter is basically a non-event. Summers tend to be hot and dry, with high temperatures in the 30-41 C range. It's reasonably green, though not as forested as east Texas. Normally it's not nearly as arid as El Paso, though I understand that the last couple of drought years have taken their toll.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228603&amp;1=default&amp;2=en&amp;3=" token="ur_gvYYFes1-XXT06HUakhn8nOuC62im1TAbSMxD4Ew"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228603">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228604" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370427712"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I think Austin is the best of Texas, the gateway to the beautiful hill country and home to my favorite bat colony. It's wonderful, art and music based culture is peppered, like most culturally interesting places, with the credulous and fear-based. It's a miracle that anyone survives a liberal arts education. I say that as a liberal and an artist.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228604&amp;1=default&amp;2=en&amp;3=" token="3olsfna6Tm4Djuy2tEXsipzT81g0eSTILcq0u2wcFbo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Pareidolius (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228604">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228605" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370427791"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>You know, Cancer sucks no matter who you are &amp; who treats you....but, at least by committing to treatment options that have sound science &amp; results behind them, you are giving yourself the best possible chances of survival.</p> <p>There is a special place in Hell for the people that work with Dr. B and continue this charade for him...I won't even mention here the "good doctor" belongs.....</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228605&amp;1=default&amp;2=en&amp;3=" token="ISuKqy9KOooFB_tbBqcnFbHI0IwdBXVMOs1xPWkvSVY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228605">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228606" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370428286"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>As for Count Stan, what a reprehensible piece of work. If he's delusional and well intentioned, that's scary and awful. If he's deliberately scamming, that's worse. After seeing him speak in person, I can't get his doppelganger's voice out of my head . . . Phez <i>vahn</i> cleenical trial, mwa ha ha! Phez <i>too</i> cleenical trial, mwa ha ha! Phez <i>tree</i> cleenical trial mwa ha ha. . . .</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228606&amp;1=default&amp;2=en&amp;3=" token="kX1vNZLy5R4jbjSLU4pNMBcnBsYu78TnYUT_QE75ghs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Pareidolius (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228606">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228607" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370432747"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>It’s a miracle that anyone survives a liberal arts education.</p></blockquote> <p>Depends on what you mean by the term, I suppose.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228607&amp;1=default&amp;2=en&amp;3=" token="P5ozX3B_RSrG141LbUba3IFeNZ7M0CoxAOQUyULcYY4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228607">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228608" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370432945"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>And who owns his house?</i></p> <p>A good question. I can only speculate, but it's entirely possible that someone as savvy (or well-advised) and amoral as Burzynski might have incorporated himself. Not necessarily the same corporation as his clinic--if a corporation doesn't have tradable shares, they don't have to disclose anything to the SEC.</p> <p>I know a guy, who coincidentally lives in Houston (I have no idea whether he and Burzynski know each other), who, along with his siblings and parents, incorporated his family. Among other things, that lets them write off one family gathering--excuse me, Board of Directors meeting--per year. (Or at least it did at the time he mentioned this corporation to me.)</p> <p>There are a few states more corporate-friendly thanTexas, but not many. (Delaware, of course, was the winner of that race to the bottom.)</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228608&amp;1=default&amp;2=en&amp;3=" token="L_f-U9fRcBmLeYojEacYgbB6UiC5NOsVPamKWFuB_a4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Eric Lund (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228608">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228609" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370436362"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>OT -- but is it ever truly off topic @ RI etc etc?</p> <p>A competent actress joins the pro-vaccination movement, or fill in your own comment about the Germ Slayer:</p> <p><a href="http://www.cnn.com/2013/06/05/health/gellar-pertussis/index.html?iref=allsearch">http://www.cnn.com/2013/06/05/health/gellar-pertussis/index.html?iref=a…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228609&amp;1=default&amp;2=en&amp;3=" token="drJsrhEvf4CIs5ASrqNafsG-Eye3cyPh4ijrm484FNI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Bob G (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228609">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228610" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370437543"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>My stomach is turning reading these patient stories too, the people are already so desperate and then the demands pile on. I'm also starting to think that the high dropout rate isn't a bug, it's a feature.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228610&amp;1=default&amp;2=en&amp;3=" token="kvTjsl4YrBLXtbFRUILYrYitQAdXTkTNb6IoXrLPw3I"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Patricia (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228610">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228611" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370439442"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Bob - "Buffy - the Anti-Vax Slayer!!!" Yay!!!!</p> <p>Good for her, glad to have her on board!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228611&amp;1=default&amp;2=en&amp;3=" token="12kTX705yXOFxljgK0ECBmR03IeRSQXQUQYfspxEfmc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228611">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228612" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370440515"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>SEC filing talk. For once, something in my wheelhouse.</p> <p>“the Company cannot predict if and/or when it will submit an NDA [New Drug Application] to the FDA, nor can the Company estimate the number or type of additional trials the FDA may require.” Burzynski also warns that “there can be no assurance that an NDA for Antineoplastons, as a treatment for cancer, will ever be approved by the FDA.”</p> <p>Those lines are more or less boilerplate in SEC filings for companies with drugs in clinical testing. I'm working on one currently in a Phase III that we know works (currently approved outside of the US) and in all likelihood will be approved in the coming years, and we still have similar lines in the SEC filings. Just because... you don't know. Something might come up, something you didn't expect, and against all logic, the trial fails. Negative language is in there to protect you from investors. If the trial fails, you want to be able to point to the filings and say "Look, see? We told you it might fail". If you put in assurances that it will pass, and for whatever reason it fails, you end up in trouble with the SEC and your investors.</p> <p>The best you can usually do is to say "While we expect that we will be able to file an NDA by [Date X], there can be no assurance, and we may never be able to file an NDA for [Drug Product Y]"</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228612&amp;1=default&amp;2=en&amp;3=" token="J0lRkyEaXO9DdICOW-G7u11KLgKgAb2zZuTRvhEyIVQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Andrew S. (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228612">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228613" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370440557"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>(the above is not to say I think that Burzynski is legit. In my opinion, he's the worst kind of quack. But I don't necessarily think conclusions can be drawn just because of language in his SEC filings)</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228613&amp;1=default&amp;2=en&amp;3=" token="BuCszx4yq1IIZQWeqwfnfjiLmAa_F3Zki8qpWTGnIiI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Andrew S. (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228613">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228614" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370442055"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Andrew - I find most SEC filing to be so full of boiler-plate language as to be nearly useless for deciphering real information from them....</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228614&amp;1=default&amp;2=en&amp;3=" token="xOHWOtW0heti_Eez_Nc9OYu3Dg89oKqcg88CmZ61UiY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228614">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228615" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370444328"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Eric Lund and Patricia,</p> <p>According to tax records (link below), the house is listed in his name and his wife`s. No fancy incorporation sleight-of-hand here.</p> <p>And his property taxes have gone down in the past few years. This year he *only* owes $86,000. The appraised value of the house and land have also gone down, now sitting at $4.35 million from a high a couple of years ago of close to $6 million.</p> <p>You can look back at the past few years of tax history here:</p> <p><a href="http://www.hctax.net/Property/TaxStatement?Account=1298230010001">http://www.hctax.net/Property/TaxStatement?Account=1298230010001</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228615&amp;1=default&amp;2=en&amp;3=" token="sfNS-298I9umQ8fkI__k8hqYS-EpurRK7QInSeKJ82A"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Marc Stephens Is Insane">Marc Stephens … (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228615">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228616" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370444452"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Looking at the comments on CNN makes me appreciate what we see here.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228616&amp;1=default&amp;2=en&amp;3=" token="9VIzWOkS3G5kiLQoVbv2zmLxx5qe2wK9ErGjvYKK_7c"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228616">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228617" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370446019"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Apologies for the OT cross-post (though are anti-vax antics ever OT here?) but Slate’s Bad Astronomy blog just posted a long piece about RFK Jr.’s antivax tendencies: <a href="http://www.slate.com/blogs/bad_astronomy/2013/06/05/robert_f_kennedy_jr_advocate_for_antiscience_and_antivaccination.html">http://www.slate.com/blogs/bad_astronomy/2013/06/05/robert_f_kennedy_jr…</a></p> <p> Lilady and Lawrence, heads up…I can't see any AoA bots in the comments yet, but they will no doubt turn up. There are some jabs (ha!) at AutismOne and St. Andy Fakefield in there too.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228617&amp;1=default&amp;2=en&amp;3=" token="LSDqGAIXoSWqnTkxqX0XVJVjbIGm8W0-8jZj4KYEOqE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Edith Prickly (not verified)</span> on 05 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228617">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228618" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370494716"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I wonder how many people went through his clinic to buy that $6 million house and how many survive today.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228618&amp;1=default&amp;2=en&amp;3=" token="wZql8LvLMoYOlzsEifKnP7SqQ97NmQCcVNCLHA_F8bI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Adam (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228618">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228619" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370501549"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Edith Prickly</p> <p>Phil Plait and his regulars can handle the anti-vaxxers pretty well. That's actually where I got started before I began reading RI more regularly. It's also where my antiantivax.flurf.net site had its first iteration.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228619&amp;1=default&amp;2=en&amp;3=" token="8WjPJaZueMMYGGqiqrEkdLh8nvv0LO7jNZEe2i1zzdk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Todd W. (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228619">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228620" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370502737"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Todd - unfortunately, the volume of comments now over at Slate makes it nearly impossible to track and comment what is being written about. I still love it &amp; Phil is definitely on my Hero list.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228620&amp;1=default&amp;2=en&amp;3=" token="9GXJWcSB272lYc7rJF64q5dgwRi6MpzvlZhq5CsyjOo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228620">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228621" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370506155"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>- I Observed your talk with Martin Vizzard yesterday<br /> - a lot of smart people her so I maybe you don't need my input, about <b>why SB is BS and why it matters</b><br /> 1. <b>Breaks the too Good/Bad to be true rule</b>, (it is possible for a small clinic to be be innovative, but 20 without acceptance is too long)<br /> 2. <b>NO Method Explanation</b> : Lack of accepted scientifc explanation for the method<br /> 3. <b>NO PROPER Evidence </b>(replicated multiple times, randomised, double blind studies)<br /> Usually 3. validates 2. .. Now occasionally the results come first, and then the science is worked out later, but 20 years with no NO PROPER Evidence published is unbelievable<br /> 4. <b>Moral argument</b> : What real Jesus keep his miiracle technique secret ?<br /> - So does SB work better than chance ? NO ALMOST CERTAINLY NOT</p> <p><b>WHY It Matters</b><br /> - <b>When people believe in "alternative Medicine" SOME stop taking is REAL MEDICINE</b><br /> ( ..so over the group it becomes HARMFUL to overall heath.)<br /> - <b>He sucks money away from real research</b> : Campaign money raised to send UK kids to his clinics might otherwise go to real charities</p> <p>- We saw from Martin that they are not promoting it as a MAGIC SOLUTION, but just say "there is a chance it can help" so sucking people in. Now we now that in any sickness a certain percentage will get magically better whatever happens and that is the game that SB is playing<br /> .."look A-F died, but G &amp; H have lived 5 over years".. Now we know that would have happened ANYWAY<br /> - And he is helped by this "Not Pure enough justification" effect (when something fails people post justify it by saying "It works, but I just didn't do it early/thoroughly enough")</p> <p>- 2 other points<br /> 1. CANCER DOES NOT KILL US ..It's life that kills us. We are sure to die, but sometimes sickness brings the end earlier than we might like.<br /> 2.<b> GREAT PAIN Treatment available now</b>, so people like Martin don't have to suffer pain like years ago</p> <p>- So while he is right to research opportunities of Genuine clinics. He should not feel the guilt of "I did not nothing", because the odd of spontaneous remission are within Normal medicine are greater than with "alternative Medicine"</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228621&amp;1=default&amp;2=en&amp;3=" token="Vla7dNlZ1QA_aHQFvE_Xz2UnfXK9sfcQHCA5KsHDTpE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Stew Green (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228621">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228622" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370506760"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Orac - maybe I am stupid<br /> - <b>Patients Dying would explain a high number of drop out rate in the studies.</b> They are usually coming to SB as their last chance. So we are not hoping he can get a 95% cure rate , but something statistically higher than chance. </p> <p>..typo above "20 YEARS without acceptance is too long"</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228622&amp;1=default&amp;2=en&amp;3=" token="fkMdvv3CNANSZnMJdfaw1tgqjWHVT6QRrb5M7t0LT4s"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Stew Green (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228622">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228623" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370508236"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"- Patients Dying would explain a high number of drop out rate in the studies"</p> <p>Surely patient dying and reasons for death are things that any study would be keenly interested in recording and presenting as results. Seems more likely that people are dropping out either because they've heard bad words about the clinic or they're bled dry financially before they can complete.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228623&amp;1=default&amp;2=en&amp;3=" token="pCICd0Bxzl0aDm9dD8rZG4XiGpmsGDEjkvihEPKn4_M"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Adam (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228623">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228624" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370510339"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Adam, we've had at least one report where a patient who died a couple of days after being treated by Burzynski and three days after purchasing a month's supply of medicine was classified as "withdrawn from the study" (see my earlier comment at 26). She didn't even manage to get home from her last treatment before she had to be rushed to the hospital. There is certainly a large number of people dropping out, but if what Andrea's family says is true, Burzynski is cooking the books by claiming some dead patients as unevaluable when they were still on his protocol. Let's be frank - if the allegations are true, he is engaging in research fraud (and quite possibly monetary fraud, since he's reporting results in his SEC filings).</p> <p>Which may be why he doesn't publish.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228624&amp;1=default&amp;2=en&amp;3=" token="z3QnhFuVcwt8sHgAkQmHM3U8457QhdXiq49q8IyKxmQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">W. Kevin Vicklund (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228624">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228625" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370514163"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>here's a link to Andrea W.'s story</p> <p><a href="http://theotherburzynskipatientgroup.wordpress.com/2013/03/21/burzynski-patient-andrea-w-s-story/">http://theotherburzynskipatientgroup.wordpress.com/2013/03/21/burzynski…</a></p> <blockquote><p>Burzynski says he listed [Andrea] as having withdrawn on September 30 because that was the last day she was treated.</p></blockquote> <p>Apparently, patients are only enrolled in a study while they're physically present and receiving treatment at the clinic. If they're sent home with a few week's supplies of ANP's for self-administration they've been withdrawn from the study (until their next clinic appointment, presumably,, when suddenly they're re-enrolled).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228625&amp;1=default&amp;2=en&amp;3=" token="Ar5VBCTVmep3I44JWPZCg5doy3VO79_hNtRCvUF6XsU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JGC (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228625">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228626" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370515206"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Lawrence</p> <p>Unfortunately, Slate's commenting system makes it nigh impossible to follow <i>any</i> conversation. Much preferred when he was over at Discover. But, yeah, it seems the conversation has largely veered off of RFK Jr.s' anti-vaccinationism to focus on piddly tangent topics that were not the main thrust of Phil's post (e.g., GMOs, imagined political motivations, etc.).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228626&amp;1=default&amp;2=en&amp;3=" token="cV4D0oUQocCexJW_yb_lUMTBs1adY4KuPZuFw_mo5Ew"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Todd W. (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228626">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228627" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370528830"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I am not fond of Slate's commenting system either. Plus, Bad Astronomy already has a resident "Chris" who says exactly what I would say, only with more wit.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228627&amp;1=default&amp;2=en&amp;3=" token="is8W-PHgLuybvFQRNTradtBwkj-kHN5IXIT5RgFT2oo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Chris, (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228627">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228628" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370532065"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>Surely patient dying and reasons for death are things that any study would be keenly interested in recording and presenting as results</i></p> <p>This would be true of an honest study where the researcher is seeking the truth.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228628&amp;1=default&amp;2=en&amp;3=" token="9PGVo6neRuTc8k3K3XSyoI2GPPmPIr72cdjZQkx_jNc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228628">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228629" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370562243"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>A new ANP activist/propaganda website has sprung up:</p> <p><a href="http://iwantanp.org/">http://iwantanp.org/</a></p> <p>It's paving the way for the establishment of foreign or overseas antineoplaston clinics and is asking for donations to help fund treatment for people who cannot afford it. </p> <p><i>After 35 years of the inventor, the supporting medical community, and his patients trying to convince the American government and regulatory agencies to be allowed to freely participate in the drug approval process within our so-called "Free Market", it has become apparent that seeking refuge in a non-American country to create a massive tourism industry for cancer patients may be inevitable.</i></p> <p>Whether this fight is won in America, or won overseas, one thing is certain—the only way this fight can be won is if the majority of the world's population understands the problem, and understands what Antineoplastons are.</p> <p><i>If the United States still refuses to allow Antineoplastons into its marketplace, we will then make sure another country will be properly funded to set up the proper channels for Antineoplastons to be approved for their marketplace. Another avenue would be simply opening up a massive Antineoplastons clinic allowing the cancer patients of the world to seek treatment using Antineoplastons. </i></p> <p>Upon gaining either market approval—or the funding the construction of an Antineoplaston clinic overseas, our funds will then go to make sure everyone who cannot afford to travel overseas to receive Antineoplaston therapy—can do so by requesting money through this organization. </p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228629&amp;1=default&amp;2=en&amp;3=" token="gp75jS-_nRXpzAmLc5OZQHRYEZhnlwygd3m3ybq_BtA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Marc Stephens Is Insane">Marc Stephens … (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228629">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228630" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370567803"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@MSII - I wonder if that's the reason old Stan keeps pumping out the ANPs by the gallon?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228630&amp;1=default&amp;2=en&amp;3=" token="2NCKLLSoPbUSXN84ApNRjh2hz2JRxcb9L14gxfm8I2M"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228630">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228631" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370571376"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Lawrence,</p> <p>Maybe he's building an ANP pipeline from Houston to Tijuana even as we speak?</p> <p>But seriously, during the Q&amp;A after one of the recent screenings Merola, Mini B. and the minions on stage implied moving to an overseas clinic might be inevitable if the FDA opposition is insurmountable. And that would be the best thing to happen, as trying to lure patients to Mexico, Brazil, Poland or Costa Rica would be much more difficult than getting them to Texas. Houston has the cachet of being in the USA, where there's a perception that cutting-edge technology and modern facilities exist. I imagine it would be a tougher sell in the UK, for instance, to get families to raise hundreds of thousands of pounds to go to Mexico, home of quacks like Hulda Clark's and Gerson's clinics, or Brazil, where John of Fraud plies his trade.</p> <p>Do you remember the recent stem cell thread where a "journalist" shill piped in to plug a clinic in Mexico? She writes for a "medical tourism" magazine backed by ta consortium of worldwide dubious clinics promising treatments not available (for good reason) in the US. I imagine Burzynski would quickly jump on that bandwagon if he is forced to relocate out of Houston.</p> <p>More than likely he'd simply retire and hand control over to Mini B. to continue the family con.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228631&amp;1=default&amp;2=en&amp;3=" token="MK1-M-OsGqtVtk7evsJBceHnvzujPaQNgdII6CFQMGg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Marc Stephens Is Insane">Marc Stephens … (not verified)</span> on 06 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228631">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228632" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370586634"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Looks like the neoplastin pipe in the US has been turned off, and if the FDA is still run by scientists, it will not be turning on. </p> <p>Habla Espanol Stan?</p> <p>The other option is to go with the Gene targeted therapy route using off the shelf therapies. Doesn't have quite the "Maverick Doctor" appeal.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228632&amp;1=default&amp;2=en&amp;3=" token="3P9AxIq37Hs2saK-QrlS4sAM9NofXp-EUDytCnNee1o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Captian_a (not verified)</span> on 07 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228632">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228633" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370596430"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>And that would be the best thing to happen, as trying to lure patients to Mexico, Brazil, Poland or Costa Rica would be much more difficult than getting them to Texas.</p></blockquote> <p>Not to mention the expense of having to relocate the signage.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228633&amp;1=default&amp;2=en&amp;3=" token="yWO6Sl8rYSDV2I3ejOPLl3eh1dJYHeoB-iPZM5wULEU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 07 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228633">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228634" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370750786"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I was just watching again one of my all-time favourite movies, when one of the scenes put me in mind of Dr B. It seems an appropriate metaphor for Dr B's business methods.</p> <p><a href="http://www.youtube.com/watch?v=ubVc2MQwMkg">http://www.youtube.com/watch?v=ubVc2MQwMkg</a></p> <p>One difference is that in this scene, Tuco ("The Ugly"), although ruthless &amp; amoral, is not running over the graves of his own victims to find the buried gold.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228634&amp;1=default&amp;2=en&amp;3=" token="4axLXQ4YL0ftWFPf7pvoHBjw52aXCJ4vDHnbm28dLmc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">DrBollocks (not verified)</span> on 09 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228634">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228635" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373749070"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Burzynski has worked his ass off for over 30 years and has cured cancers that other wise couldn't have. Its funny you all say how there is adverse reactions to his treatment. Wow a few people had reactions. How many people have had reactions from radiation? Ummm duh radiation will kill cancer lol radiation will zap the hell out of anything. Parasites, viruses, cells, animals duh. Radiation in isolated amounts is the best we can come up with. Zap an individuals immune system when the immune system is obviously compromised in the first place. Its funny that you all cannot see behind the veils. You trust cnn, fox, and the worst ....the FDA. You so easily say things like.... Is this FDA approved?? Well what does that mean and do you not have any concern about pharmaceutical companies paying the FDA for faster drug processes. How is the cure coming? Also if we found a cure for any disease what would happen to all those profits for these companies when the whole world was cured? What would these stocks to if a cure was actually found? The cure is already out but unfortunately there is no money in cures. Wake up people seriously get your head out of the cinnamon toast crunch commercials, drop the dove soap you wash with and stop listening to big industry. Your reality is based on a severely broken system that pays large sums of money to control, and sway public opinion. Or maybe whole grain lucky charms are magically delicious right? Im sure half of you would buy a box today if the FDA approved them as cancer treatment. Wake up for real do research outside of webmd, and all the mainstream research organizations. If you start putting pieces of the puzzle together you can see it clearly but you have to change your sources to find it. You will not find the answers in mainstream media or institutions. Everyone is paid off.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228635&amp;1=default&amp;2=en&amp;3=" token="WFDIAczqV9vfRzAIXR-bcN-JQgU3UOUdvavgrIy9-Rk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Jared Anderson (not verified)</span> on 13 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228635">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228636" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373786071"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Jared -</p> <p>1. How do you know that Dr. Burzynski has a cure for cancer?<br /> 2. Where is the high-quality data that shows how his treatment compares to the standard of care.<br /> 3. Why is this so important to you?</p> <p>Thanks.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228636&amp;1=default&amp;2=en&amp;3=" token="Ixay-Hle4QlC6h6uNm7VkuP585rAZq0UZjslXvbpLpM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228636">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228637" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373788495"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Jared Anderson - Let's suppose as you propose that Whole Grain Lucky Charms were found by the FDA to be a safe and effective cancer treatment. That would mean that there would be a significant body of evidence published and reviewed that said While Grain Lucky Charms were a safe and effective cancer treatment, with specific descriptions for the types of cancers that it can be used to treat and how it can be used for that. If it were a safe and effective treatment for a particular cancer, and you had that particular cancer, and it remained as inexpensive and easy to obtain as it is now - why wouldn't you buy a box? It would seem that turning your back on a proven cheap, safe, effective cancer treatment just because it's a product of a large food company that advertises a lot would be, well, foolish.</p> <p>I personally am not willing to accept that some brave, maverick doctor has a cure just on his/her say so.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228637&amp;1=default&amp;2=en&amp;3=" token="-Kese8Bkpq-zZuK-IjYAAV1htrlRzZpszI7B1Rr2kpY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228637">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228638" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373789681"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Jared,</p> <blockquote><p>Wake up for real do research outside of webmd, and all the mainstream research organizations. If you start putting pieces of the puzzle together you can see it clearly but you have to change your sources to find it. You will not find the answers in mainstream media or institutions. Everyone is paid off.</p></blockquote> <p>I have been involved in medical research, and have known many people, doctors, professors, PhD students and others involved in medical research over the years,. and I have never heard as much as a whisper about anyone being paid off, or suppressing any cures for anything at all. I have heard a lot of grumbling about the lack of money for research grants and fixed term contracts, but conspiracies? Nothing, even when these people have had far too much to drink, and you might think they would spill the beans. Either these people are very good at keeping secrets, and I was never accepted into the inner cabal, or there is no huge conspiracy.</p> <p>Where do you recommend looking for the answers? Let me guess. Natural News, Whale.to? If you believe them, any information they don't agree with is from people who have been paid off, and the lack of information to support their claims is because it has been suppressed by people who have been paid off. You can prove anything, from alien abductions to 9/11 conspiracies if you accept this kind of "research". You should open your eyes and see that you have been misled into believing nonsense. </p> <p>Oh, I almost forgot the requisite "lol duh" and "baa".</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228638&amp;1=default&amp;2=en&amp;3=" token="07gGg-BP9gjHDgOXWkIUFlHWRkD6MNJEDvqi7Yyz-sM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228638">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228639" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373792225"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>*Yawn* another drive by troll spouting the same old nonsense of looking for answers on Google U.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228639&amp;1=default&amp;2=en&amp;3=" token="7o5kS9TkQt5n067jIyTseFjT9ZrHC_1Li9NUkxgRu-4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Agashem (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228639">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228640" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373792906"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>The people who tell us not to trust mainstream media / governmental sources provide ALTERNATIVE MEDIA services: they dream up stories that capture the audience's attention in order to sell advertising, so-called "educational resources" ( books, films, radio channels) and products such as supplements, food, food preparation machines, water filters etc. Usually they include a page called "Store" and some even unabashedly ask for "Donations". Thus they are not informing us out of the goodness of their hearts or out of any respect for veracity but because they want to make money off of their readers.</p> <p>And how do I know this? Because I have surveyed some of the most prolific dens of iniquity for many years and have seen how they have been transformed from purely health concerns to more far-reaching topics ( including economics, politics, general conspiracy mongering) in order to capture readers' attention in any way they could.<br /> In order to make readers believe that they are providing them with beneficial information and that they are "on their side".</p> <p>So that they can sell ad space or products. They masquerade as useful information or as news to hide their prime motive: selling products as well as hope and dreams whilst selling their own personae and creating a career for themselves.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228640&amp;1=default&amp;2=en&amp;3=" token="So5-K01rKX08vXabF43ISA_8SIamFSOWc09JuWtBQ2w"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228640">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228641" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373793085"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>creating CAREERS for themselves...</p> <p>I need to sleep more than I do.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228641&amp;1=default&amp;2=en&amp;3=" token="KRYwW1YNS_vX0tMph6Uwiai_MwnN28ZtEW6bZA57qm0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228641">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228642" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373810793"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>The likes of Jared presumably don't know any scientific researchers, and imagine we are all either evil geniuses cackling about our world domination plans over bubbling test tubes, or nerdy wimps too afraid of our evil genius (reptoid) masters to say a word about the natural cures we routinely suppress.</p> <p>That's why from time to time I trot out my experiences working and socializing with scientific researchers, who are for the most part decent and relatively normal people, and how I have never heard a squeak about any such conspiracies. It's a somewhat futile whackatroll exercise, but I have a vain hope it might sometimes do some good.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228642&amp;1=default&amp;2=en&amp;3=" token="ZSa_p0OIBhe0qIqSMWjN2H5xYFig8MmqQD8o_X8I7A8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228642">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228643" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1373814225"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Multiple Burtrollskis on both SBM and RI the past couple of days. One wonders if Orac's TAM talk has 'ol Stan &amp; Co. worried, one does... :)</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228643&amp;1=default&amp;2=en&amp;3=" token="bEGIj6RWUtDC6-2ymY_0HsaUqGphNhdMqh-72WlQ90U"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Scottynuke (not verified)</span> on 14 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228643">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228644" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375224927"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Why are you all so paranoid about Burzynski? Are you all in fear of losing your jobs or potential income? He must be doing something right as he was granted the right to run clinical trials. His methods can't be any worse than the torture, sickness and death that has occurred from the miserable, outdated and useless chemo and radiation treatments. Let's face it folks, no matter how you spin it, those methods are useless and archaic. THEY DON"T WORK!!! Only for a few cancers and even then, the cancer comes back with a vengeance in many cases. Let's stop harassing and trying to prevent someone who is actually trying to do something to actually treat and possibly wipe out cancer. God knows it's not coming from any pharmaceutical company and yes, I do know what I'm talking about...I worked in clinical drug trials for a major pharmaceutical company. Would you like one of your loved ones to go through the horrendous ordeal of chemo or radiation therapy...or if it were you, would YOU choose to go through that misery rather than a treatment that has no where near the horrendous side effects of the poisonous chemo and radiation? I myself would do anything I could to get to Burzynski's clinic rather then let them inject me with that poison. Face the facts...time for a BIG change in dealing with cancer and many other diseases that Big Pharm is making huge profits from.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228644&amp;1=default&amp;2=en&amp;3=" token="BXQHQepzQIyqP5CRt5_NqUz3MmjBBYEYCY8jI-C0RfM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">francine (not verified)</span> on 30 Jul 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228644">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228645" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375780393"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Well said Francine! I was diagnosed with breast cancer 4 years ago &amp; endured 6 rounds of chemotherapy. I was violently ill from the poisonous mix of several drugs that was pumped into my body. None of these drugs were new or innovative. Just the same old poisonous, cookie cutter regime that's been used for decades &amp; gets given to everyone that has similar breast tumor pathology. These drugs have a long list of very unpleasant side effects and can cause deafness, neuropathy, loss of taste, irrepairable damage to organs &amp; heart muscle as well as the added benefit of potentially causing leukemia down the track. That's just naming a few....<br /> You know what, Bursynski may not be the answer for everyone but as an adult I should have the choice of what treatment I wish to pursue &amp; how much money I want to spend on it. It's my choice about my health. I should'nt be forced into an outdated &amp; clearly ineffective treatment plan just because Big Pharma says so. I know how much money Pharmaceutical companies make as I was employed by them for many years. It's all bullshit. It's not about wellness, it's ALL about profit!!!!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228645&amp;1=default&amp;2=en&amp;3=" token="gtNwTSqpmcH_IGsLUd9SKBNjVWWPHceiBQdN1WALU9k"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Kat (not verified)</span> on 06 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228645">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228646" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375790914"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat,<br /> I notice you complain about the side effects of your cancer treatments, but you show no gratitude whatsoever to your oncologist for saving your life. I firmly believe that if you had used Burzynski's treatments instead you would very likely be dead, <a href="http://theotherburzynskipatientgroup.wordpress.com/">like many other of his patients</a>. If you were very lucky you might have joined the few other survivors of his perpetual and never-published clinical trials as walking commercials for his clinic.</p> <blockquote><p>You know what, Bursynski may not be the answer for everyone but as an adult I should have the choice of what treatment I wish to pursue &amp; how much money I want to spend on it. It’s my choice about my health. I should’nt be forced into an outdated &amp; clearly ineffective treatment plan just because Big Pharma says so.</p></blockquote> <p>You don't think people should have to prove that a cancer treatment is safe and effective before selling it to people? Why hasn't Burzynski published his clinical trial results? Have you read <a href="http://scienceblogs.com/insolence/2013/07/22/how-stanislaw-burzynski-became-burzynski-the-brave-maverick-doctor-part-1/"><br /> Orac's post</a> that describes how Burzynski's lawyer cynically exploited loopholes in the law to allow him to open numerous clinical trials he has no intention of ever publishing. </p> <blockquote><p> I know how much money Pharmaceutical companies make as I was employed by them for many years. It’s all bullshit. It’s not about wellness, it’s ALL about profit!!!!</p></blockquote> <p>Did you and francine work for the same pharmaceutical company? If so you must know how competitive they are, and just how much money a pharmaceutical company can make from a successful cancer treatment. Genentech makes over $1.2 billion every year from Herceptin, for example. Why would any drug company suppress an even more successful cancer treatment? It could put their competitors out of business for good.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228646&amp;1=default&amp;2=en&amp;3=" token="Ryw-gcZ5xiQC_AytBtxs96Ecw0azF_Qt3MoDt2_tabc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 06 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228646">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228647" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375794194"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat, francine,</p> <p>Surely one of you can tell me, then, where the convincing, independently replicated evidence from well conducted studies published in peer reviewed journals that any of Dr.Burzynski's treatments are better in any objective sense than the current standard of care.</p> <p>FWIW - I'd just as soon every treatment that said it could cure cancer better than surgery, radiation, and chemotherapy were actually safe and effective, as I receive no income from the existing stable of treatments. However, I believe that before you start selling people something that is supposed to be a cure, it should be proven safe and effective at least as rigorously as existing drugs were.</p> <p>Frankly, I'm surprised that you aren't concerned that people may be throwing away good money on ineffective treatments. At least in your case, Kat, can I presume that the treatments that you dislike so much (and I can see that they were very unpleasant) may have actually done you some good?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228647&amp;1=default&amp;2=en&amp;3=" token="_dO7TzTDXi2jbVnJZaen0O0CDjqX3gtJW0DbVreLBpM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 06 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228647">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228648" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375844938"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Krebiozen - you need not take my opinion as a lack of gratitude! I was given no other option or treatment plan by my oncologist other than the one carried out &amp; I stuck religiously to her plan. I have a very healthy respect for my Oncologist. That doesn't mean I can't have opinions about the treatments used. Everyone is entitled to their own thoughts &amp; opinions given that we are on a free speech forum.</p> <p>Mephistopheles O'Brien - I am still breathing today, so yes, I guess you could say that it was a preferable outcome. However, I would not say the treatments were good for me. I'm not going to bore everyone with the list of side effects I had the misfortune of experiencing. We all now how unpleasant chemotherapy is. Lets face it.........it's toxic poison. Researched or not!</p> <p>There is always an argument fore &amp; against most things in life. I have watched both Bursynski documentaries &amp; done lots of research &amp; reading on his &amp; other alternative methods. He does not promise cure. Neither does standard treatment of chemo or radiation. All treatments are a life extender, not a cure. My Onc tells me that people who've had cancer are NEVER out of the woods as their original cancer can flare 10 or so years after their original diagnosis. I just feel that people should be able to choose a method of treatment that they feel could be of benefit, no matter how outside the square it is. If you have exhausted standard methods &amp; could benefit from an alternative treatment, why wouldn't you try it? Brain cancers seem to be where Bursynski has had most success &amp; standard treatments have failed miserably. Are the skeptics implying that the success stories that Bursynski's patients share are liars? </p> <p>I'm upset that the FDA has shut down the use of Antineoplastons. Who is it hurting? If people wish to spend top dollar on it, it's their prerogative. We know without a shadow of a doubt that tobacco causes lung cancer &amp; that fatty fast food contributes to heart disease but you don't see people shutting down the doors of Phillip Morris or KFC &amp; McDonalds.</p> <p>Also chemo is NOT safe or overly effective. Thousands of people die each year from the side effects of Chemotherapy &amp; not their actual cancer. If chemo is so effective, why are people all over the globe dying from cancer?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228648&amp;1=default&amp;2=en&amp;3=" token="hBcdzU2JCEB5t0Tpbgzxc_Cf8LbRKBKIOJ-Is06cZi0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Kat (not verified)</span> on 06 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228648">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228649" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375850816"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>I’m upset that the FDA has shut down the use of Antineoplastons. Who is it hurting?</p></blockquote> <p>See The Other Burzynski Patient Group:</p> <p><a href="http://theotherburzynskipatientgroup.wordpress.com/">http://theotherburzynskipatientgroup.wordpress.com/</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228649&amp;1=default&amp;2=en&amp;3=" token="-bVPsKQPsWIXTrldbvX_0MPQJUXl9b9HPmqX6LWFaBk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">LW (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228649">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228650" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375851309"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat, you're employing a pretty blatant double standard. When it comes to chemo, you ask "if chemo is so effective, why are people all over the globe dying from cancer?" implying that you won't regard chemo as truly effective until it manages to <i>eliminate cancer world-wide</i>. </p> <p>When it comes to Burzynski's "treatments", however, you're willing to accept them as effective based solely on the fact that there have been some patients who have received Burzyinski's treatments and had good outcomes. Double standard; chemo is castigated because it's not perfectly good; B.'s treatment is lionized because it's not perfectly bad. What makes you think that's appropriate?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228650&amp;1=default&amp;2=en&amp;3=" token="xdmKgvCHlr8s1IkbWwFToknTFHp56OwQoNF3pXrjTdM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Antaeus Feldspar (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228650">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228651" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375854525"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Besides, mr. Burzynski's 'treatments' seem to have some pretty nasty side effects as well.</p> <p>My mother has had breastcancer and was cured by surgery. She is dead for almost 11 years, but she didn't die from cancer.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228651&amp;1=default&amp;2=en&amp;3=" token="J-OrD5w1q_wTJtjBDJ0tMcVt94QL2YdluuDArOEusVw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Renate (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228651">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228652" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375857463"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Antaeus Feldspar I believe there is a place for standard &amp; alternative treatment &amp; that patients should have a choice of which one they would prefer. My experience with chemo was horrendous! God forbid, if my cancer returns I won't be having chemo again. Double standard or not!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228652&amp;1=default&amp;2=en&amp;3=" token="EYvGQXwTh3R4drzje8uoH0QvoG82iaI-zyELKby9dcY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Kat (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228652">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228653" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375858102"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat,</p> <blockquote><p>Krebiozen – you need not take my opinion as a lack of gratitude!</p></blockquote> <p>I'm glad to hear that. As I wrote before, I very much doubt that Burzynski would have had such success. As I'm sure you are aware, surgery is the mainstay of breast cancer treatment, with chemotherapy and radiotherapy ensuring that all cancer cells have been killed to reduce the risk of recurrence as much as possible. Burzynski's treatment without surgery would likely have been a death sentence, and with surgery would have been a dangerous gamble at best.</p> <blockquote><p>Are the skeptics implying that the success stories that Bursynski’s patients share are liars?</p></blockquote> <p>Having looked closely at many of Burzynski's cases, it seems clear to me that most of his successes are actually due to conventional treatment. In brain cancer, after radiotherapy there is often inflammation that can look the tumor is growing on CT scans, called pseudoprogression. When Burzynski treats these patients and the inflammation resolves, it looks as if his treatment has been successful, whereas it was actually late effects of the radiotherapy. </p> <p>In Jodie Fenton's case if you look closely you see that her tumor had disappeared <b>before</b> she started Burzynski's treatment, very probably it was completely removed during a biopsy unless antineoplastons somehow completely destroyed it after just a few days. That doesn't stop Burzynski and his publicist from claiming her case as a success.</p> <p>The success stories tell us nothing without knowing how many did not survive, and how many would have survived without his treatment. To find out if Burzynski's treatment is truly effective we need to see the results of the clinical trials he has been running for decades. If his treatment works, why hasn't he published? </p> <blockquote><p>I’m upset that the FDA has shut down the use of Antineoplastons. </p></blockquote> <p>I'm upset and angry that Burzynski was allowed to run his endless clinical trials for so long, and bleed so many patients dry of money.</p> <blockquote><p>Who is it hurting? </p></blockquote> <p>It hurts the people who believe his claims and bankrupt themselves pursuing false hope. I'm particularly disturbed when parents from the UK take their children to the Burzynski clinic, depriving them of the excellent care they could receive free of charge from the NHS, and subjecting them to side effects such as extreme hypernatremia. </p> <p>Wouldn't you complain if a pharmaceutical company marketed a cancer treatment that hadn't been tested properly and that had toxic side effects? Why should Burzynski's treatments be judged by different standards? </p> <blockquote><p>If people wish to spend top dollar on it, it’s their prerogative. </p></blockquote> <p>You really see nothing wrong with misleading desperate people into paying hundreds of thousands of dollars for a treatment that almost certainly doesn't work? I think it's despicable. </p> <blockquote><p>We know without a shadow of a doubt that tobacco causes lung cancer &amp; that fatty fast food contributes to heart disease but you don’t see people shutting down the doors of Phillip Morris or KFC &amp; McDonalds.</p></blockquote> <p>No one is claiming that tobacco or fatty foods cure cancer. No one is bringing out movies designed to convince sick and desperate people that these products will help them . You appear to have fallen for Burzynski's sick advertising campaign yourself, hook, line and sinker.</p> <blockquote><p>Also chemo is NOT safe or overly effective. </p></blockquote> <p>Which chemotherapy specifically are you referring to? Some forms of chemotherapy are very effective, some less so. </p> <blockquote><p>Thousands of people die each year from the side effects of Chemotherapy &amp; not their actual cancer. </p></blockquote> <p>Do you have any actual evidence to support this assertion? This sort of misinformation is spread around by well-meaning but ignorant people who are determined to scare cancer patients away from conventional treatment. Oncologists are seeing more and more patients with advanced untreated cancers that they had previously only seen in historical text books, because some cancer patients believe the lies that people like you spread about conventional cancer treatment. Please stop.</p> <p>As UK cancer surgeon Michael Baum wrote on a UK medical professional site:</p> <blockquote><p>In the UK, there is the "cancer act" to protect patients from the claims of CAM in treating cancer, sadly this is seldom enforced. As a cancer surgeon and professor of medical humanities I can attest to the tragic consequences of patients with breast cancer refusing modern humane treatment in place of barbaric alternatives. I call them barbaric as it allowed me to follow the natural history of untreated disease. Although I rarely endorse the use of mastectomy, if there is one thing more barbaric than radical surgery, it's the disease itself being allowed to run riot. The cancer leaves behind a rotting stinking ulcer and a swollen arm as the involved lymph nodes block the drainage from the lymphatics.</p></blockquote> <p>I know this is a brutal quote, but I don't see any other way of getting across to people just how damaging this kind of misinformation about cancer can be.</p> <blockquote><p>If chemo is so effective, why are people all over the globe dying from cancer?&lt;/blockquote<br /> Did you know that in the US the 5 year survival rate after a cancer diagnosis was 48.7% in 1975 and is now 67.6%? If conventional treatment is so useless, how is this possible? </p> <p>More than 90% of breast cancer patients are alive 5 years after diagnosis, compared to 75% in 1975. For non-Hodgkin lymphomas 5-year survival has improved from 45.9% to 71.1% and for leukemias from 33.2% to 59.2% since 1975. </p> <p>What do you think has led to these improvements? Bear in mind that breast cancer surgery is less radical now than it was in 1975, and that the standard treatment for non-Hodgkin lymphomas and leukemias is chemotherapy.</p></blockquote> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228653&amp;1=default&amp;2=en&amp;3=" token="5HRxbfaUJMtoAyPzuySzmdrVP6wdAhW2L3CEVZjzRgc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228653">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228654" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375859173"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Apologies for typos and blockquote fail, which are, I hope, obvious. All statistics from the SEER cancer database, such as <a href="http://seer.cancer.gov/faststats/selections.php?run=runit&amp;output=1&amp;data=4&amp;statistic=6&amp;year=201305&amp;race=1&amp;sex=1&amp;age=1&amp;series=cancer&amp;cancer=90">these heartwarming figures</a> for leukemia 5-year-survival by year.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228654&amp;1=default&amp;2=en&amp;3=" token="HT5N0MadppXhFKz2nCmQBbubRVorOvuKyIATW5gQSRQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228654">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228655" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375860030"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat<br /> If you wre treated for breast cancer in the US by a reputable oncologist, you were not offered a cookie cutter regimen. Tumors are tested to tailor the treatment to the tumor.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228655&amp;1=default&amp;2=en&amp;3=" token="VGFh2hoYL7SlOp8NT_0mZSPlieJzRaNWp29qFRNp-84"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">MIRose (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228655">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228656" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375864321"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Antaeus Feldspar I believe there is a place for standard &amp; alternative treatment &amp; that patients should have a choice of which one they would prefer. My experience with chemo was horrendous! God forbid, if my cancer returns I won’t be having chemo again. Double standard or not! </p></blockquote> <p>Kat, you make the mistake of thinking your opinions and decisions are <i>inherently</i> important to someone here other than you, and that just isn't the case. What <i>makes</i> your decisions, or those of anyone who comments here, important to anyone besides themselves, is the facts and reasoning behind those decisions. </p> <p>Your decisions? It's not even possible to tell whether you understand that decisions <i>should be</i> backed up by facts and reasoning. Certainly I can't picture anyone who actually comprehends that fact treating it as irrelevant that their big "take-away message" is based on a comparison fatally tainted by a double standard.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228656&amp;1=default&amp;2=en&amp;3=" token="O4IguNfPdrfYzJibLPT0wHd7dbgdH0Bkd7Sljs_FYNo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Antaeus Feldspar (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228656">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228657" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375870898"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat,</p> <blockquote><p>I just feel that people should be able to choose a method of treatment that they feel could be of benefit, no matter how outside the square it is. If you have exhausted standard methods &amp; could benefit from an alternative treatment, why wouldn’t you try it?</p></blockquote> <p>I actually agree with you, as long as there is good, solid evidence that it works better than doing nothing, or there is a good, solid reason to think that experimental protocol early in its testing should work better than nothing. You might be surprised at what people claim has cured them of cancer.<br /></p><blockquote>Brain cancers seem to be where Bursynski has had most success &amp; standard treatments have failed miserably.</blockquote> <p>The operative word there is "seems to". As Dr. Burzyinski has not published all his trial data, much less had it replicated and confirmed, we don't know what his success rate is. Also, please define what "failed miserably" means in this context.<br /></p><blockquote>Are the skeptics implying that the success stories that Bursynski’s patients share are liars?</blockquote> <p>By no means. I think everyone here is happy for anyone's good fortune and success in dealing with cancer. However, I for one don't believe these people can know for certainty whether Dr Burzynski's treatments helped them, hurt them, or had no net benefit. Cancer has a highly variable course, and each person's experience is affected by multiple factors. This is particularly true when one has had multiple types of treatments (or things posing as treatments).</p> <p>Not to trivialize it, but some months ago there was someone who argued here that his recurring gout had been repeatedly treated successfully by homeopathic remedies. All he had to do was go through the list of possible gout remedies, try each one in turn, and eventually he'd find the remedy that worked that time. The next time it typically took a different remedy. It was pointed out that gout comes and goes; that homeopathic remedies (at the concentrations he was using) are nothing but water, and that there is no good data that says he was doing anything more than just waiting out each flare-up. He was adamant, though, that homeopathy cured him each time - he just had to get smarter about selecting the correct remedy.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228657&amp;1=default&amp;2=en&amp;3=" token="kMCrd3PkCqYjpzQH-ehlH_rEi6jeYDJmMY0Lha0DOus"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228657">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228658" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375874877"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>It sickens me that so many people immediately assume that skeptics assert deliberate lying, as if we've never brought up possibilities of self-deception, misattribution of cause, coincidences, spontaneous recovery or remission, or any of the other myriad ways people can be fooled into thinking a treatment works when it doesn't.</p> <p>The victims of quackery are still human, which means they're prone to being honestly mistaken. Many of us are hesitant to accuse quacks of knowingly lying because they're also human and prone to the same self-deception. It's very common for a quack to sincerely believe a treatment works when it actually doesn't. I'd even guess it's the overwhelming majority of quacks, probably 90%+</p> <p>The whole reason we do science is because we know that, as humans, we can be fooled by a lot of things. We perform scientific experiments that control for known types of bias and confounding factors before asserting things are as they seem. We want Burzynski to stop stalling and suppressing his own data so that we can see his actual success rate, rather than rely on cherry picked anecdotes.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228658&amp;1=default&amp;2=en&amp;3=" token="O9d0NVRCJd4iT2OiKag3Lt8q2fALpiE99VqadX4lSuM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Bronze Dog (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228658">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228659" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375878792"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat, Burzynski has supposedly enrolled patients into more than 60 clinical trials over the past several decades but he hasn't published results from a single trial. He's sitting on what must be a fairly large body of actual cevidence establishing whether or not antineoplastons are a safe and effective treatment for advanced cancers. </p> <p>Why do you think that is? Why when challenged does he resort to patient testimonials and a couple of paid infomercials to support his claim?</p> <p>There are only two possibilities here. The first is that the evidence from the clinical trials demonstrate antineoplastons do not work , but Burzynski is concealing the evidence to continue to charge desparate people exorbitant prices for something that he knows won't help them.</p> <p>In which case he's a fraud.</p> <p>The other possibility is that the evidence from the clinical trials demonstrate antineoplastons do work but he's concealing the evidence in order to maintain a monopoly on antineoplastons again allowing him to continue to charge desparate people exorbitant prices for treatment. Doing so would mean he's also preventing all other physicians from adopting antineoplastons as standard of care and denying millions of cancer patients all over the world access to a cure for their cancer. </p> <p>In which case he's a monster.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228659&amp;1=default&amp;2=en&amp;3=" token="nX4_obJotm22V0nf1-PHnDNmbH0Y1Dgpa3BkdcBeQSg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JGC (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228659">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228660" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375879413"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Kat@78 -- not to belabor the obvious, but you <i>are</i> still alive, thanks to that horrendous chemo.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228660&amp;1=default&amp;2=en&amp;3=" token="yc4qYi6h04sFC6hGQtwNewa000rirTn9N8QTyKPHvVo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Shay (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228660">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228661" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375880795"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>JGC: there is a third possibility. He may not have really collected any useful data at all, because he was never actually interested in science in the first place. Nothing to conceal, except the fact that he wasn't conducting studies at all. He was just engaging in legal hopscotch to allow him to give untested drugs to humans on the pretense that they work. Which is another form of him being a fraud.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228661&amp;1=default&amp;2=en&amp;3=" token="ORdgRJhc0mqP2iyBbfKu-_Q8d5ALJUVI0z4xeIoUNJg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Calli Arcale (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228661">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228662" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375886092"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Shay - realistically we don't have sufficient evidence to know that the chemotherapy actually helped Kat's condition. There is substantial data to show statistically that it should have improved her survival chances. It is possible there are observations in her medical records that would indicate that the chemotherapy did her some good, but she hasn't let us know that. Orac has pointed out before that in breast cancer the primary treatment is surgery - and that sometimes surgery will get the entire tumor. The chemotherapy may have helped keep the cancer from spreading.</p> <p>This is not to say that chemotherapy is worthless - it has known benefits statistically.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228662&amp;1=default&amp;2=en&amp;3=" token="UavCirHxUARF1wwc9oJLTmyfRAloxD_q143lKu0f84c"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228662">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228663" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375898291"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Point taken, MOB.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228663&amp;1=default&amp;2=en&amp;3=" token="r80F98Lk2v-6RBoSG5ELi5vZ9UzYJaTr5Vq16K4r5YU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Shay (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228663">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228664" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375903357"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Kat,<br /> Any chance you're same "Kat" who promotes Protocel?<br /> This Kat? <a href="http://scienceblogs.com/insolence/2012/06/19/cantron-not-curing-cancer-since-the-1930s/">http://scienceblogs.com/insolence/2012/06/19/cantron-not-curing-cancer-…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228664&amp;1=default&amp;2=en&amp;3=" token="ewRENq63O2AEfV1i5VROQlXFdGS1LqAkD4GBIjWwNaQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">thenewme (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228664">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228665" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375912793"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Chemotherapy may be "horrendous"... but I don't think anyone, especially oncologists, deny this. When my mother was undergoing cancer treatment, her oncologist was upfront about the side effects she might experience, and was given some really good advice on how to manage them. A simple google search of "chemotherapy side effects" listed pages of information from cancer treatment centres about the side effects from chemo, from all over the world.</p> <p>Burzynski, on the other hand, is quite reticent about the many failures of his treatment regime. So even though chemo may be "horrendous," I reckon it's a better option.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228665&amp;1=default&amp;2=en&amp;3=" token="oWdfBgucKHCDmGxb3bMHsp6koSoqM8f4M6tWK8tHEp8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Christine (the Public Servant Christine)">Christine (the… (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228665">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228666" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375915519"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Me too, Christine. My oncologists were very open about potential side effects of chemo and very understanding and helpful in dealing with them. True, the chemo was horrendous but nowhere near as bad as Kat seems to want people to think, and I'm almost 5 years out with no known side effects, and I had the whole gamut (multiple surgeries, harsh chemo, rads). </p> <p>Kat, do you have citations for your grandiose claims that thousands of people die from chemo every year? Or any of your other bogus claims?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228666&amp;1=default&amp;2=en&amp;3=" token="6wA4JFEV2NH1KOJn_HIdZ9Mn2aNLl8ue_bhQupsvNdU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">thenewme (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228666">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228667" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375918852"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Also chemo is NOT safe or overly effective.</p></blockquote> <p>As nobody else seems to have, I'll go ahead and point out that Scamley's <i>magia moczu życia</i> <b>is</b> chemotherapy.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228667&amp;1=default&amp;2=en&amp;3=" token="0yevfayEydh7pFPHYxj_im0Jhy4xSgwdVcHpN2gvZNs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228667">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228668" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1375921634"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>In case anyone has been following my occasional posts about my mother's cancer, I shall be clear about it. My mother was diagnosed with endometrial cancer and was treated with surgery and radiation therapy - no chemo. However, she was recruited into an international study into endometrial cancer treatment, where she could have been treated with chemo, radiation or chemo/radiation. The oncologists were up front about the side effects for ALL treatment regimens, so she knew exactly what she was letting herself in for. As it was, the radiation was no picnic for her, and it has affected her digestion since.</p> <p>Interestingly, my brother's MIL was diagnosed with breast cancer a few months later. It was treated with surgery and chemo. She had fewer side effects from the chemo than my mother had from the radiation.</p> <p>I have a very good friend who had leukaemia 20 years ago. He went through hell with the chemo, but is still around 20 years later. A cousin had the same leukaemia last year and her chemo was far less savage, even though the cancer was more advanced. My point? Cancer treatment is constantly evolving. Chemo drugs used in the current day are more effective and can have fewer side effects than stuff used even 5 years ago.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228668&amp;1=default&amp;2=en&amp;3=" token="uO1cZoNaacNkTzO-KwhOabSech4ED_k1ryrUApV3IpQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Christine (the Public Servant Christine)">Christine (the… (not verified)</span> on 07 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228668">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228669" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1376258710"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Our son (Glioblastoma) is in an on going clinical trial and after 25 successful treatments over 2 years he's started getting MRI bills not being paid for though part of the protocol per our signed agreement.....be very careful of all clinical trials..... Now I feel we're being blackmailed to pay or not get treatment.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228669&amp;1=default&amp;2=en&amp;3=" token="UoSkU_3x7CTijHowwlbZmHuNw93cdS0SZ7y_llYHtec"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">D (not verified)</span> on 11 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228669">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228670" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1376280928"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>What clinical trial is it?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228670&amp;1=default&amp;2=en&amp;3=" token="tDocQEecNu-_EEv6luBYXUOaXE-tuUVYS4HTJwa7je0"></drupal-render-placeholder> </div> <footer> <em>By <a rel="nofollow" href="http://scienceblogs.com/insolence" lang="" typeof="schema:Person" property="schema:name" datatype="">Orac (not verified)</a> on 12 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228670">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228671" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1376336079"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Hi D,<br /> I'm so sorry you're in such a terrible situation! Can you share more about your case? Who was supposed to be paying for the MRIs? What is the reason for them not paying? </p> <p>I hate that you're feeling blackmailed. It's so wrong, and I hope maybe you might get some suggestions here if you care to share more. You're absolutely right that we need to be very careful of all clinical trials. </p> <p>I've participated in a few minor trials as a patient, and I haven't had any trouble like you're having. I hope you can get it rectified asap! As if the illness itself isn't bad enough.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228671&amp;1=default&amp;2=en&amp;3=" token="51URf6A0tRbXjELyVYJYHa6RzWrrpsn_DIaJJyoV_p4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">thenewme (not verified)</span> on 12 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228671">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228672" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1376340725"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>The trial our son is in can be seen at <a href="http://clinicaltrials.gov/ct2/show/study/NCT01260506?term=vb-111&amp;rank=3">http://clinicaltrials.gov/ct2/show/study/NCT01260506?term=vb-111&amp;rank=3</a></p> <p>He started the trial in the summer of 2011 and we never saw any bills until recently and even 2 from a collection agency for the actual research center....then the other bills are for an MRI facility that we are required to go too for his MRI's because it had to be certified by the research hospital and the sponsor drug company.... I've contacted ACS and they've referred me to Cancer Legal Resource Center for guidance and I've started that process.</p> <p>I called the billing department today and left a v-mail and continued to call every 30 minutes until I got a real person, now they say they have GOOD news, that the sponsor has agreed to reimburse us for hotels and gas, ya right, where have they been the last 26 trips we've made @ our own expense which has been over $15,000. Again, this all seems unethical and I'm mortified, mad and disgusted right now, can ya tell!!!!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228672&amp;1=default&amp;2=en&amp;3=" token="1x69JFoDpsts0ZR78FgTJdgWdZhSSITSrFkz36i88ls"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">D (not verified)</span> on 12 Aug 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228672">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> </section> <ul class="links inline list-inline"><li class="comment-forbidden"><a href="/user/login?destination=/insolence/2013/06/05/odds-and-ends-about-burzynski-clinic%23comment-form">Log in</a> to post comments</li></ul> Wed, 05 Jun 2013 04:00:01 +0000 oracknows 21540 at https://www.scienceblogs.com Stanislaw Burzynski versus the BBC https://www.scienceblogs.com/insolence/2013/06/04/stanislaw-burzynski-versus-the-bbc <span>Stanislaw Burzynski versus the BBC</span> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"><p>After <a href="http://scienceblogs.com/insolence/2013/06/03/in-which-the-latest-movie-about-stanislaw-burzynskis-cancer-cure-is-reviewed-with-insolence/">yesterday's epic deconstruction</a> of the <a href="http://www.burzynskimovie.com">latest propaganda-fest</a> from everybody's favorite Leni Riefenstahl without the talent, Eric Merola, on his most admired subject, "brave maverick doctor" Stanislaw Burzynski, I needed something science-based to cleanse the rancid taste of intelligence-insulting nonsense from my mind. Through a quirk of fate that couldn't have worked out better if I had planned it myself, a long-expected investigation of the Burzynski Clinic by the BBC, presented on its venerable news program <a href="http://www.bbc.co.uk/programmes/b006t14n">Panorama</a>. It was entitled, appropriately enough, <a href="http://www.bbc.co.uk/programmes/b02vdg1t">Cancer: Hope for Sale?</a> Ever since learning that the BBC was working on this back in January or February, skeptics have been looking forward to it with a mixture of anticipation and dread, anticipation because we expected that the Panorama crew would "get it" (full disclosure: I was interviewed over the phone by a producer of the show and exchanged e-mails to answer questions), but a bit of dread because we feared the bane of all news reporting on issues of science and medicine: False balance.</p> <p>So now that the report is finally out, how was it?</p> <!--more--><p>Although it's better than the vast majority of reports on Burzynski that I've seen, I'm afraid it's still a mixed bag. I'll start with my general impression and then discuss some specifics that particularly stood out to me. Fortunately, there are parts of the report that hit home, and hit home hard. Unfortunately, every time I think that Panorama is going in for the kill, the reporter (Richard Bilton) seems to back off. Perhaps it's the editing. From reports that I've had, the producers seemed to "get it," but one wonders if something got watered down in the final edit. Or perhaps it's the story structure imposed on this report, which is simultaneously a "he said, she said" portrait of a patient who believes in Burzynski and think he saved her, two Burzynski patients who died but whose families still express little or no regret over having decided to make the trip to Houston, and one patient who thinks Burzynski ripped him off. Interspersed with these stories is an overarching "where's Waldo?" meta-story of Bilton trying to score an interview with the elusive subject of his report (which, of course, finally does happen near the end of the report), all peppered with brief interviews with experts whose comments are generally critical but often softened with caveats that turn some of the criticisms into mush.</p> <p>What is simultaneously the greatest strength and greatest weakness of this episode is its relentless focus on patients. Specifically, the stories of four patients are covered: <a href="http://teamhannah.com">Hannah Bradley</a>, <a href="http://theotherburzynskipatientgroup.wordpress.com/2013/05/30/burzynski-patient-luna-ps-story/">Luna Petagine</a>, <a href="http://theotherburzynskipatientgroup.wordpress.com/2013/06/03/burzynski-patient-amelia-s-s-story/">Amelia Saunders</a>, and <a href="http://burzynskiscam.com">Wayne Merritt</a>. The first three patients were U.K. patients who travelled to Houston to be treated by Burzynski; Merritt lives in Georgia. This focus is a strength, because it provides an emotional hook upon which viewers can hang their attention, and, of course, the reason Stanislaw Burzynski However, it's simultaneously a near-fatal weakness in that the obsessive focus on the patients seems to prevent the report from delving into a lot of issues that are also very important in any discussion of Stanislaw Burzynski. For instance, there is no mention of the recent FDA investigation of the Burzynski Clinic, zero mention of how Burzynski recently managed to beat an effort by the Texas Medical Board to strip him of his medical license by throwing his employed doctors under the bus, and only the most superficial treatment of how in general it is considered unethical to demand payment from patients to participate in clinical trials. No, and there isn't any mention of how the Burzynski Clinic waged a campaign of harassment against bloggers who criticized Burzynski back in 2011. Indeed, one of the victims of that harassment, Rhys Morgan, was interviewed by the Panorama crew, but he was informed that his interview was cut from the final version because it didn't fit the narrative. There is even at least one howler in which Bilton intones that "nobody knows exactly what's in his treatment," when in fact it is fairly well known what antineoplastons are and has been for at least 25 years. All you have to do is to read Saul Green's reports on <a href="http://www.quackwatch.org/01QuackeryRelatedTopics/Cancer/burzynski1.html">Quackwatch</a> and in <a href="http://www.quackwatch.org/01QuackeryRelatedTopics/Cancer/burzynski2.html">The Cancer Letter</a> from the 1990s.</p> <p>Unfortunately, the story repeatedly falls prey to that weakness and devolves into, in essence, a "he said, she said" narrative, in which one patient believes Burzynski saved her, the family of two patients who died despite Burzynski's ministrations express no regrets, and only one of the four patients complains that he felt ripped off by Burzynski. The overall impression of Burzynski is not entirely unfavorable. Of the patients, Luna Petagine's and Amelia Saunders' stories are the most heart-wrenching. Indeed, Luna's story was featured last year on a BBC documentary about the Great Ormond Street Hospital, and some excerpts from this documentary are shown to introduce Luna and her story. One of them reminded me very much of the conversation with her NHS oncologist that Laura Hymas recorded and allowed Eric Merola to <a href="http://scienceblogs.com/insolence/2013/06/03/in-which-the-latest-movie-about-stanislaw-burzynskis-cancer-cure-is-reviewed-with-insolence/">include in his propaganda piece</a>, except that in video it is so much more intense. In this scene, the oncologist tries to point out to Ms. Petagine that he doesn't know what Burzynski is doing or how to take care of her daughter when she returns. I really felt for this oncologist, too. However, this segment on Luna also highlights another irritating aspect of this report, which hit me over the head in the very next scene, when Ms. Petagine in essence lambastes the NHS oncologists because they couldn't save her daughter's life, saying, "The NHS told me Luna's going to die. This man is telling me that he thinks he can cure her."</p> <p>The report includes interviews with experts like Professor Richard Grundy of Nottingham Children's Hospital. Grundy points out that Burzynski has not published the complete results of any of his phase II clinical trials. Right after him Professor Peter Johnson of Cancer Research U.K. discussing the importance of reproduction of results. Actually, this is one of the stronger segments in that it points out the importance of publishing scientific results in the medical literature and how that is the key to convincing other scientists of the validity of your work. That was very clear and concise. It's also, unfortunately, simultaneously one of the weaker segments in that it ends up sounding as though there's just no evidence and we don't know about antineoplastons. In other words, it sounds as though they very well could work, if only the clinical trials were done. It's a theme that is repeated throughout the report but that ignores the astounding level of sheer deception that goes on at the Burzynski Clinic, the allegations of overfilling, and how Burzynski has abused the clinical trial process to keep treating patients with antineoplastons without actually having to do the science that any other doctor would be required to do to validate a new treatment. True, not all the doctors who question Burzynski's treatment are that wishy-washy. Dr. Elloise Garside, a research scientists, echoes a lot of the questions I have, such as how Burzynski never explains which genes are targeted by antineoplastons, what the preclinical evidence supporting their efficacy are, or what the scientific rationale is to expect that they might have antitumor activity. (Yes, we're talking prior plausibility, baby!) This explanation was provided right after Bilton and she sat through a screening of the first Burzynski movie, which was a fairly nice touch.</p> <p>None of this is to say that there weren't aspects of the report that were very powerful and spot on. I just wish there were more of them or that more time had been allotted for them. For instance, there was the discussion of how Burzynski attracts new patients, which led to a trip to a screening of Eric Merola's first foray into medical propaganda; i.e., his <a href="http://scienceblogs.com/insolence/2011/11/29/burzynski-the-movie-subtle-its-not/">first movie in 2010 extolling the glory</a> that to him is Stanislaw Burzynski. There's even a sarcastic little rejoinder about how Burzynski takes his message to the movies rather than publishing in the peer-reviewed scientific literature. Particularly amusing is how Panorama includes a scene from the first Burzynski movie in which Burzynski lambastes the panel evaluating him, saying how he will get his antineoplastons approved all over the world and bring them to justice, while promising the hundreds of patients who died because of them will come back to haunt them until their deaths.</p> <p>Yeah, Stan's as warm and fuzzy as ever.</p> <p>Panorama also confirms what skeptics have suspected for a long time now, namely that the Burzynski movie has been very, very effective in attracting patients to the Burzynski Clinic. During an interview with Hannah Bradley, <a href="http://scienceblogs.com/insolence/2013/03/11/two-stanislaw-burzynskis-success-stories/">whom we've met before</a>. There's no real evidence that Burzynski's treatment is responsible for Bradley's good fortune in having lived more than two years with her cancer thus far, but she attributes her survival to him. Unfortunately, she is also incorrect when she says that there's no evidence that antineoplastons work or that they don't work. The preponderance of evidence supports the contention that they dont' work, but there is uncertainty, which Burzynski exploits to the max. In any case, as lovely a young woman as I think Ms. Bradley is, the whole segment is painful to watch, as she asks ignorant questions like, "What says radiotherapy works?" When the reporter points out that the peer-reviewed literature says it works, Ms. Bradley says, "But not for everyone," which is technically true but ignores that there isn't any evidence comparable to that for radiotherapy that antineoplastons work for anyone. As much as I like Hannah Bradley and her boyfriend Pete Cohen and hope Hannah continues to do well, I can't let such statements go unchallenged.</p> <p>Ironically, I can't help but note that Pete Cohen also showed up on the radio to be interviewed by <a href="http://www.bbc.co.uk/radio/player/b021480r">Victoria Derbyshire on BBC Radio 5 Live</a> (at around the 1:44 mark). I can't help but mention it here, because Mr. Cohen gives away several interesting tidbits. For instance, it's very obvious that the Burzynski Clinic is in communication with him, because Mr. Cohen claims that Burzynski is preparing manuscripts for publication and that he has even submitted several to "top journals." He even claims that Burzynski has asked that they be independently reviewed. In doing so, Cohen echoes the claims in some of the Q&amp;A's after screenings of Eric Merola's most recent movie that Burzynski's papers have been rejected without being sent out for peer review. It's also not exactly clear what Cohen means by that. Studies submitted to journals won't be published without going out for peer-review. Maybe he's referring to some of the papers we've heard about from Mr. Cohen and others that were editorially rejected and not even sent out for peer review because the editor either didn't think them appropriate or didn't want to waste the reviewers' time. Mr. Cohen also repeatedly says how he has approached experts in brain cancer and begged them to come out to the Burzynski Clinic to "see for themselves." Seemingly, he can't understand that it is not necessary for a scientist or doctor to meet Dr. Burzynski or visit his clinic. It means nothing. Nada. Zero. Zip. In science, all that matters is what you publish, and Burzynski hasn't published anything other than case reports, tiny case series, and unconvincing studies, mostly (at least over the last decade or so) in crappy journals not even indexed on PubMed.</p> <p>Without a doubt, the most effective part of the story is the segment in which Dr. Jeanine Graf of the Texas Children's Hospital is introduced. Dr. Graf is the director of the pediatric intensive care unit there and has taken care of lots of Burzynski patients, as her hospital is "just down the road" from the Burzynski Clinic and these unfortunate children are brought to her hospital when they decompensate. Indeed, coupled with this segment is an interlude where Luna Petagine's mother complains that the staff there know and recognize Burzynski patients (and, she notes, hate the Burzynski Clinic). Particularly damning is how Ms. Petagine said that the Texas Children's Hospital Staff "were always cleaning up Burzynski's messes." Luna was brought to the Texas Children's Hospital during her time in Houston, and the staff there recognized right away that she was a Burzynski patient because they had seen so many similar patients suffering the same complications before. It was also clear how much contempt the staff there had for the Burzynski Clinic. If there's one thing Panorama did right in this report, it's showing how seeing so many already dying children show up in our ICU because of hypernatremia due to antineoplaston therapy will do that. Perhaps the most devastating part of this segment was seeing Dr. Graf stating, point blank, that she's never seen a Burzynski patient survive. True, she does point out that patients don't come to her until they are in extremis, but the fact remains that she's never seen any of them live.</p> <p>It's a sad and devastating segment.</p> <p>Unfortunately, during the most critical part of the story of all, in which Bilton finally "finds Waldo" and is granted an audience with Stanislaw Burzynski, Bilton came across (to me, at least) as rather unprepared. Fortunately for Bilton, Burzynski was his own worst enemy, smirking and behaving in his usual arrogant, dismissive manner to any sort of challenge. (You can see a sample of it <a href="http://www.bbc.co.uk/news/health-22751150">here</a>, towards the end of the promo.) If Burzynski were a bit less full of himself and the greatness that he thinks he possesses, he could have wiped the floor with Bilton. As it is, the interview was pretty much a draw. Burzynski claims that antineoplastons can cure cancer, but not for everyone. Burzynski smirks when asked how many patients he's treated and how many have survived, dodging the question by saying that the FDA won't let him until he's published his results. Bilton tells him that's not true; the FDA has told him that Burzynski can tell him as long as he doesn't promote antineoplastons. Burzynski asks Bilton why he doesn't have a letter from the FDA. Burzynski dismisses Bilton with dismissive retorts like:</p> <blockquote><p>You look like a bright man but you’re asking me the same question again and again. Are you catching Alzheimer’s disease or what?</p></blockquote> <p>As I said, Burzynski's arrogance, dismissiveness, and condescension make him his own worst enemy. Bilton was very, very lucky.</p> <p>Burzynski also pulls out the old trope that, if the FDA has been letting him use antineoplastons for 20 years in clinical trials if they weren't safe and potentially effective, that the FDA wouldn't let him "sell hope without evidence." (Those of us following Burzynski for a while know, unfortunately, that that isn't necessarily true.) Burzynski then promises that antineoplastons will be approved "soon" (they almost certainly won't), after which he goes on to repeat the same refrain he's been repeating for the last decade or so about how he's on the verge of publishing all the results that will convince everyone. "Just you wait," Burzynski is saying, in effect, "I'll show them. I'll show them all!"</p> <p>One notes that we're still waiting.</p> <p>Ultimately, the Burzynski Clinic did release some results, stating that 776 patients with brain tumors were treated in trials and that 15.5% have survived five years. Of course, this is an utterly meaningless factoid (if factual it even is), because we don't know what kinds of tumors, what gradess, how they were treated beforehand, or any other confounding factors. Burzynski needs to publish, but I highly doubt that he will, at least not in a form that is informative to real oncologists.</p> <p>Overall, the producers of Panorama did a decent, but flawed, job of taking on Burzynski. Part of the problem might have been that a half hour is just too short. It's really difficult to explain 36 years of history and the ins and outs of Burzynski's battles with the law and patients in just a half hour; so apparently Panorama didn't even try. That left it asking the question at the beginning of how Burzynski has gotten away with this for so long but not really even trying to give an answer at the end. It also might be that expectations were too high in the skeptic community, myself included. While I can understand the decision to concentrate on patients as the center of the story, the problem with that decision is that it it's a well-trod path that crowds out too many other important issues that ended up getting short (or, far more commonly, no) shrift in this Panorama episode. In the end, Panorama played it safe, and its report ended up being fairly unoriginal and guaranteed not to be the definitive look at Burzynski. It's a very good thing that Panorama decided to shine a light into the recesses of the Burzynski Clinic, but at best it's a first, flawed step. As good as much of this episode is, some of it is not, and I fear that an opportunity has been lost.</p> </div> <span><a title="View user profile." href="/oracknows" lang="" about="/oracknows" typeof="schema:Person" property="schema:name" datatype="">oracknows</a></span> <span>Mon, 06/03/2013 - 20:00</span> <div class="field field--name-field-blog-tags field--type-entity-reference field--label-inline"> <div class="field--label">Tags</div> <div class="field--items"> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> <div class="field--item"><a href="/tag/antineoplastons" hreflang="en">antineoplastons</a></div> <div class="field--item"><a href="/tag/bbc" hreflang="en">BBC</a></div> <div class="field--item"><a href="/tag/hannah-bradley" hreflang="en">Hannah Bradley</a></div> <div class="field--item"><a href="/tag/panorama" hreflang="en">Panorama</a></div> <div class="field--item"><a href="/tag/personalized-gene-targeted-cancer-therapy" hreflang="en">personalized gene-targeted cancer therapy</a></div> <div class="field--item"><a href="/tag/stanislaw-burzynski" hreflang="en">Stanislaw Burzynski</a></div> <div class="field--item"><a href="/tag/cancer" hreflang="en">cancer</a></div> <div class="field--item"><a href="/tag/complementary-and-alternative-medicine" hreflang="en">complementary and alternative medicine</a></div> <div class="field--item"><a href="/tag/medicine" hreflang="en">medicine</a></div> </div> </div> <div class="field field--name-field-blog-categories field--type-entity-reference field--label-inline"> <div class="field--label">Categories</div> <div class="field--items"> <div class="field--item"><a href="/channel/medicine" hreflang="en">Medicine</a></div> </div> </div> <section> <article data-comment-user-id="0" id="comment-1228375" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370308114"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>The general reaction as it was airing, it seemed to me, was horror on the part of the British public, so I think there will be a disconnect between how most people will see the episode and how skeptics do.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228375&amp;1=default&amp;2=en&amp;3=" token="7Zub66Py-hCVUsJ3njklP-z8H0HME43ahKY6fWmLRdE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Bob Blaskiewicz (not verified)</span> on 03 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228375">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228376" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370309740"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I was surprised that it wasn't one of their occasional hour-long episodes. Maybe it was originally slated to be, and then cut down, hence all the cut segments?</p> <p>This was actually one of the better episodes of Panorama. What was once a hard-hitting, investigative news programme, is now usually nothing more than half an hour of vague, watery pablum. That this episode contained any actual experts at all is what made it an unusually good effort. Also, the fact that they chose to go after an actual 'bad guy' rather than demonising or scapegoating vulnerable minority groups is a welcome change. Some of last year's episodes were basically thirty minutes of govt. propaganda.</p> <p>Pete Cohen is barking up the wrong squirrel with his idea of trying to convince actual oncologists by taking them to the Ant(ineoplaston) Farm</p> <p>. That's what supporters don't get. Science makes no character judgements or snap inferences. The cuddly, avuncular, gentle giant peddling snake oil, and the flint-hearted, puppy-munching, baby-punching fiend who can prove that he can save lives are not scientifically judged by the content of their characters, but by the content of their peer-reviewed, replicable research.</p> <p>Mr Cohen can't seem to grasp that people aren't ignoring Scamleys "research" because they don't like him, but !that they don't like him precisely <i>because</i> of his research, or lack of, and the way it harms people.</p> <p>. They're pissed off because he rides roughshod over the lives (and bank accounts) of the desperate. He could be the sweetest, kindest old man on the planet, but it wouldn't make him any less morally bankrupt.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228376&amp;1=default&amp;2=en&amp;3=" token="kyJDhstjij4tA1kdmMvCaB9vBGl-hW8CNcFw-Akn1Wo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 03 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228376">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228377" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370311980"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I'm fairly pleased with how it turned out. A credible effort with several well-spoken experts who did an excellent job at critiquing Burzynski's claims.</p> <p>Never underestimate the power of these sorts of documentaries. In 2010 the BBC Newsnight program aired an expose on companies selling pseudo-scientific and ineffective bomb detection devices to the Iraqi government. Last month the chief player in this racket was sentenced to 10 years at the Old Bailey. We can only hope.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228377&amp;1=default&amp;2=en&amp;3=" token="CEl7MkvnMdmGCVOs4f2_A9B4iZj7BQP4n4n8m7waJcU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">ubik (not verified)</span> on 03 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228377">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228378" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370315942"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>You know, given the "craptastic" bad science that still manages to get published nowadays, how can Dr. B make any sort of excuse that he's been "unable to publish?"</p> <p>Hell, there are dozens of "pay to play" medical journals, with fairly lousy peer-review standards.....he could just publish away...maybe his results are so bad that not even paying would get his stuff through the "shinning the turd" process.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228378&amp;1=default&amp;2=en&amp;3=" token="p0V5uK05_LHyy7bv-de6psJr6FwG17y80jTfmbrsnXg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 03 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228378">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228379" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370317416"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Lawrence - Exactly. Hell, there's nothing stopping him publishing his <i>own</i> journal, is there? He could rope in any supporters to help with capital (why change the habit of a lifetime?) and publis/distribution</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228379&amp;1=default&amp;2=en&amp;3=" token="E5ebQzLf-oYRI4CxX4LoiF4FTOdrYaA0SXG2FU4pe2M"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 03 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228379">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228380" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370317968"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I had all the same misgivings that you did about this programme, Orac. I felt that they had definitely pulled their punches in places, had fallen prey to false balance, and had probably taken a decision that minimising the risk of a libel suit should take precedence over exposing just how big a crook Burzynski is.</p> <p>However, then I saw the reaction on Twitter. Watching the #burzynski and #bbcpanorama hashtags just after the programme aired was a truly heartwarming sight. The audience, at least the subset of the audience minded to tweet about it, had absolutely got it. The sentiment was absolutely overwhelming: the British tweeting public had seen this film, and were left in no doubt that Burzynski was a crook.</p> <p>I don't know if the people who tweet about the programme are a representative sample of the audience in this respect, but if they are, then I think the programme, despite its flaws, was a great success.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228380&amp;1=default&amp;2=en&amp;3=" token="QTeud5X63PwzJ8FuHzL6RHcmmPzbS98OyKHWtkpIAE8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Adam Jacobs (not verified)</span> on 03 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228380">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228381" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370320255"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Peer reviewed cookie, please.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228381&amp;1=default&amp;2=en&amp;3=" token="GQwzoGRi4rvCp3_T2hh_yZskQY6bS7T4thnH5SoWSk0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Marc Stephens Is Insane">Marc Stephens … (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228381">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228382" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370324744"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Have you guys lost your minds? There is one MASSIVE flaw in your argument. They aren't offering Anteneoplaston treatment at the Burzynski clinic! Targeted cancer therapy yes, Anteneoplastons no. Do your homework boys and girls.</p> <p>The good old British "tweeting" public eh Adam, truly a cast iron representative selection of the population.</p> <p>Do you know what makes my blood boil, that skeptics and bloggers who have nothing better to do with their time other than refer to people like me (GBM 4) as "vulnerable". Arrogant is not the word! I'd like someone to explain to me why exactly I am vulnerable as a GBM stage 4 patient. Limited time yes, but any one of you may come across that problem crossing the street or driving to work today! I've been "vulnerable" every day for the last 15 years sat at the end of a runway with 2 big Rolls Royce engines strapped to my backside. </p> <p>Programme a great success? What you have is tunnel vision! Have any of you considered what you are writing here may very well come back to haunt you if Burzynski's data is published? </p> <p>I think that it is likely his data will be published and I hope it is proven as an effective cure for cancer FOR SOME. It won't work for all but nor does anything else.</p> <p>Thanks</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228382&amp;1=default&amp;2=en&amp;3=" token="swyaUVXzYsR6Wbn5tEA3hvsY33EJNHldRZmQk7L2BwM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228382">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228383" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370325913"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin if they don't do anteneoplastons what the hell is going on at around 21.15 of the Panorama programme. They seem to be manufacturing a hell of a lot of the stuff.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228383&amp;1=default&amp;2=en&amp;3=" token="mej6KleDyplFoBHqyRBwOmTRdL-muqTg6RyXun3Q9i4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Wrysmile (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228383">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228384" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370325791"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Have any of you considered what you are writing here may very well come back to haunt you if Burzynski’s data is published? </p></blockquote> <p>Heh. Taking into account his publishing history (what it is? three decades? - of pretty much nothing) I think it's pretty safe bet that it won't.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228384&amp;1=default&amp;2=en&amp;3=" token="OZl1v_XfD8dSXk_cMV2xsFDXVOq_z0QcC1Y6tEP8oUU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">puppygod (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228384">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228385" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370326126"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin Vizzard @9:</p> <p>You personally may not be vulnerable. Other people, however, are.</p> <p>Many people with terminal illnesses are desperate and grasping at straws and would do anything for a cure.</p> <p>People like Burzinsky abuse this by offering false hope, scamming them out of their money and making the time they have left miserable when they should be spending it in a way that makes them happy.</p> <p>Burzinsky does the equivalent of some guy conning an old woman out of her life savings by pretending to be her grandson. Only worse, because he convinces people to forgo actual treatment that is proven to work.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228385&amp;1=default&amp;2=en&amp;3=" token="2FXrlzO2O2lDG0hL1cUNq1tIufwVb6K6_R4KyG_Tg2o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Pris (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228385">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228386" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370327889"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I SAY AGAIN.</p> <p>YOU CANNOT GET ANTENEOPLASTON TREATMENT AT THE BURZYNSKI CLINIC AT THIS TIME!!!!!</p> <p>How do I know, because I asked myself in person at the Burzynski clinic last Tuesday. I asked if it was available and was told from the horses mouth in no uncertain terms that it was not. Just incase some of you want to try and question my motive or agenda here, my name is Martin Vizzard, I'm a 38 year from Manchester UK and on 15/5/13 diagnosed with GBM stage 4. I came to the U.S because I was interested to discover if gene targeted cancer treatment (something not available in UK) could help. I have had my brain biopsy analysed and have an over expressing HER2 gene. I came here of my own free will understand there are no guaratees and my wife and I are happy with what we are paying, and have set down what service we expect. It's all very simple for the organised! I can have my brains blasted out and take Themozolomide when I get back if this doesn't work! Not that the Harley Street Clinic said that will do much other than an extra 3-6 months.</p> <p>Back to the programme, basically what you are saying is this is a very interesting documentary about a doctor who is manufacturing a product he is not doing anything with? Now that's down to you skeptics to "deconstruct" why he may or may not being doing that (manufacturing). The fact is I am here in Houston and being treated by them and was told it is NOT available to ANYONE. It's a non story!</p> <p>The reason I left the UK private system was because there are no options of targeted cancer therapy. I could have gone anywhere, I came here. Everyone is very nice and we are all open and honest about my predicament.</p> <p>@puppygod: If he's manufacturing it but not using it there's no need for you to get so excited. </p> <p>@pris: Please explain why other people are vulnerable and you feel placed to talk about mental state of anyone other than yourself?</p> <p>Thanks</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228386&amp;1=default&amp;2=en&amp;3=" token="AFDWRwJ_0Ia7sNZvfZiPeVZAwGD_VX67ezPhQcMfzSQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228386">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228387" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370328347"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Sorry @puppygod that was supposed to be for @wrysmile!!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228387&amp;1=default&amp;2=en&amp;3=" token="2DZtu09lrF6hghK_MAj1lLCbEtakT7d2YoQSDsM9HMo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228387">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228388" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370328619"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin - except it has been available for the past three decades, used by an unknown number of patients (unknown, because Dr. B doesn't publish his studies), with unknown effect, again, because he doesn't publish his studies.</p> <p>As for the "Targeted Gene Therapy) - there is also no evidence that what Dr. B does is a) Targeted b) Gene Therapy or c) Effective.....</p> <p>So, get off your high-horse and start demanding real evidence from Dr. B, because his platitudes are going to kill you.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228388&amp;1=default&amp;2=en&amp;3=" token="VZs6lcB9mrdzn8vIjUEk8PmHHOgubOx--mlrI2-Rmb8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228388">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228389" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370328413"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin, I'm sorry to tell you that what Burzynski claims is targeted cancer therapy is unlikely to be efficacious either.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228389&amp;1=default&amp;2=en&amp;3=" token="Z2WhxYahcMho_Tr90pgRvVcz53VialT9URoLoYU31LQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">nastylittlehorse (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228389">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228390" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370328643"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin - and I would suggest you read the stories posted over at "The Other Burzynski Patient Group" - as it includes a number of, now dead, patients who were on the "Targeted Gene Therapy" - which is nothing but an untested mix of various Chemo drugs.....</p> <p>Is that really the way you want to go?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228390&amp;1=default&amp;2=en&amp;3=" token="9EsCK_OcX_sYtY0Jv0GcXrhOvDQjWl8ea1mwVMlt58o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228390">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228391" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370328699"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I watched the program with someone unfamiliar with the saga of Stan and both of us were left reeling at the end. In a weird way the fact that it pulled its punches and gave Burzynski every chance to offer a rebuttal made it all the more damning than a straight take-down. They gave Burzynski enough rope to hang himself, which he definitely did during his interview at the end - arrogance personified. His body language and demeanour really gave the impression he couldn't care less about his patients. This section coming after the interview with Dr Graf from the Texas Children's Hospital really drove the point home. The stark contrast of the arrogance of Stan with compassion of the Doctor who has to clear up the mess he leaves behind says more to the lay person than any academic debate on whether he publishes or not. I think this is where the reaction on twitter stemmed from. </p> <p>One thing that really stood out was the fact that he now uses the defence that he is working with the FDA approval process and is straight-jacketed by their regulations, rather than being persecuted by them. From a narrative point of view he is running out of places to hide. Hopefully there is an end game at play and his practicing days are numbered. Kudos to Orac and all the dastardly Sceptics for keeping a constant spotlight on this story. Just a pity it has gone on for so long.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228391&amp;1=default&amp;2=en&amp;3=" token="dcKBVpiz0GP9pvoKMCTc4rEXJM0ixey9vuoKB2wjml8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">ob1 (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228391">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228392" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370329864"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@nastylittlehorse: Please elaborate using the details of my brain biopsy and my current medication. </p> <p>@lawrence: I'm dead anyway my friend and just so you know I intend to be a nasty ass ghost so play nicely! At least I gave it a shot rather than putting all my eggs in the radiation<br /> and Themozolomide basket.</p> <p>I posted this the other day so if I'm repeating myself please accept my apols but it depends on how you are wired up. I have spent the last 15 years circumnavigating this planet as a captain, flying a beautiful aircraft quite possibly with some of you here down the back. For those of you about to embark on your holidays, you may be relieved to hear that if (for example) we have some major catastrophic failure mid Atlantic or way North over Canada then the rule book go's out of the metaphorical window. What you do is in the most urgent of cases is what is needed to be done to survive. Some survive, some don't that's life. However, you try everything no matter how untried it is. There are MANY examples in the flying world of how a proven method of operation has resulted in multiple fatalities and the unproven complete success.</p> <p>I am far from saying aviators are superior creatures, however the medicine industry (at least in the UK) did adopt some of our most "basic" procedures so we must have been doing something correctly.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228392&amp;1=default&amp;2=en&amp;3=" token="5_dDnL1z7-AAqJmJGfToCpAeKlxmmfYY_jNPwe0NB18"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228392">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228393" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370329987"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin - it is certainly your money &amp; your right to do what you will for your treatment. Of course, if you go to Dr. B, all you are going to get is a mix of untested chemo drugs &amp; no actual evidence to show that it works.</p> <p>You know, there are great Cancer hospitals in the States, even some right there in Houston. You might want to check them out first - at least they publish the results of their treatments, unlike Dr. B - so don't come here criticizing us for holding him to the same standards as every other Cancer researcher in the world.....</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228393&amp;1=default&amp;2=en&amp;3=" token="i6fZDqlYMFY_DypR5_3pR8HOxKwb1BeONMmlZHrMkxw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228393">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228394" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370331102"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin</p> <p>Orac has done several dissections of Dr. B's ideas of targeted therapy. Perhaps take a look back through the blog if you want to read about them.</p> <p>I wish you the best of luck, and I wholly understand that you would try anything you could, but I think there are probably better things to do with your money than throw it at a man with no record of publishing his results, let alone a proven record of actually helping anyone.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228394&amp;1=default&amp;2=en&amp;3=" token="abdnib_oGbpsMrkMiwT8j7o_5e--ls-AIJNIDGi-mdw"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">nastylittlehorse (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228394">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228395" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370331244"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Your last paragraph (in my opinion) is exactly the problem and exactly what you clearly didn't grasp in my last post. And by the way I am free to express my own opinion on this subject just as you are, so don't tell me where to go and what to do. The undertones in your post speaks volumes.</p> <p>Let me ask you, would you like me to start researching mid Atlantic with you and your family on board when the decision I make could end in disaster OR b save you all? No matter how improvising one has to be, you do what is needed to save life. If at the end you cannot then you cannot. At that second when the problem (whatever that example may be) occurs your fate is sealed.</p> <p>You seem to have skimmed over what I said originally.<br /> I was sat in one, if not the most prestigious clinic in London to be told I would receive standard treatment. I will try other methods then standard treatment, what's the big deal. At least I have people who seem half interested in what's making my cancer tick and I did not get that in the UK.</p> <p>There is nothing advanced or complex about what I am doing and I know FOR A FACT I am getting what I would get elsewhere because I've checked.</p> <p>So basically your problem is<br /> A) Burzynski is making Anteneoplastons but not using them<br /> B) Money</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228395&amp;1=default&amp;2=en&amp;3=" token="HPjX7OJC7XBGdYFSlnIsZ_UZzEjVRmTngowT7-kaSNY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228395">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228396" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370331908"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin - for a seemingly educated individual, you're really not getting our criticisms......</p> <p>Dr. B has been treating patients for over 35 Years now - in all that time, he has not proven (or fully published) his results, yet he continues to charge ludicrous sums of money to desperate people.</p> <p>It would be easy for him to get us all to shut up. Just publish the results. Is that so hard? And why should he be treated any differently than anyone else that is pushing a Cancer treatment?</p> <p>If you think Dr. B &amp; his staff are interested in anything other than how long you can pay for the "treatments" you really are fooling yourself. Again, you really should read the patient stories available at "The Other Burzynski Patient Group" they speak volumes as to the efficacy of his treatments.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228396&amp;1=default&amp;2=en&amp;3=" token="mh8RqecvxUE5wIe8w3ttlxgfcjLVXgrSUft7PxiGuus"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228396">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228397" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370331969"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin, check out this page under SOAH Complaints for Burzynski, for the "appropriateness" of the other anti-cancer drugs that he prescribed for a variety of types of cancer.</p> <p><a href="http://reg.tmb.state.tx.us/TMBPublicWebSite/BoardOrders/ViewBoardOrders.aspx?ID_NUM=49851&amp;SESSION_ID=690534337">http://reg.tmb.state.tx.us/TMBPublicWebSite/BoardOrders/ViewBoardOrders…</a></p> <p>I'm sorry that you have been diagnosed with cancer. I'm also sorry that you seem to think that your experience as an aviator in any way qualifies you to understand oncology treatments.</p> <p>BTW, Burzynski has a slew of employees who cruise the internet for blogs written about the Clinic and Burzynski's "gene targeted therapies"...so he already knows you have a bundle of money to pay for his "treatments". Rest assured, he will string you along until your financial resources are depleted, prescribing the most expensive "traditional" anti-cancer drugs...whether or not those drugs have proven anti-cancer properties for your type of cancer...and, whether or not there are published case studies that show effectiveness when used as an "off label" treatment.</p> <p>You're just lining the pockets of Burzynski.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228397&amp;1=default&amp;2=en&amp;3=" token="W4Zlwdco7bM3kBm2fPae14zF0YoABeDoGs-_omdHHaU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">lilady (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228397">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228398" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370332362"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin Vizzard</p> <p>There are a number of cancer institutes around the states that are doing clinical trials (i.e., experimental treatments) for various cancers, likely including yours. The difference between them and Burzynski is that they will not charge you for the experimental portions of the treatment. They also publish their data, unlike Burzynski.</p> <p>Please understand that when we advise you to go elsewhere it is not because we don't want you to try everything possible, but that we want you to try those things that a) have an actual chance of working and b) are ethically run.</p> <p>As for myself, I truly hope that you fare well, regardless of what you try. But I also hope that you will direct your efforts to areas that are more promising. To use your flight analogy, try adjusting the flaps (i.e., legitimate research centers) instead of hopping around the cockpit on one foot while rubbing your belly (Burzynski).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228398&amp;1=default&amp;2=en&amp;3=" token="OGYxx-IxCDvfLKOg5xPlqjPhrUjiTzo-_tyu-a1y7wQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Todd W. (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228398">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228399" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370332770"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin:</p> <p><em>"At least I have people who seem half interested in what’s making my cancer tick"</em></p> <p>Has it occurred to you that that is exactly what Burzynski wants you to think? In reality, all he's interested in is your money. If he were truly interested in cancer, he would participate in the scientific method.</p> <p>I appreciate that it must be devastating being in your position and hearing doctors telling you that there's little they can do for you. It's absolutely not what you want to hear. Burzynski understands that. That's why he's prepared to tell you "yes! I can help you!", even though he has to be completely dishonest to do so.</p> <p>Sometimes the truth is unpalatable. But in the end, it's always better to face it.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228399&amp;1=default&amp;2=en&amp;3=" token="NbTukuLF_TwMM0jGaYAGR5nsjWbJLYYxk17oAYMuh7g"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Adam Jacobs (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228399">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228400" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370332917"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin - you <i>are</i> receiving standard treatment. Burzynski's "targeted therapy" is nothing of the sort, it's just a cocktail of the same chemotherapeutic drugs you can get here, in the UK. </p> <p>Oh, and there's almost certainly some phenylbutyrate chucked in. Have a guess what that is? If you are on that, then I can tell you that you're paying way over the odds for it.</p> <p>The only reason antineoplastons aren't available at the moment is because the FDA have finally stepped in. If Stan had his way he'd still be selling his stinking bags of false hope to dying children.</p> <p>Also, I'm not quite sure what your history as a pilot has to do with being able to tell if you're being swindled. I think I'll trust the oncologist and the assorted science professionals on that one.</p> <p>I know it's hard to come face to face with your own mortality, and harder still to think that the "treatment" you've been sold (at enormously inflated costs) is a con, but don't shoot the messenger. I hope you're one of the incredibly rare lucky ones who escapes this experience alive.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228400&amp;1=default&amp;2=en&amp;3=" token="qb6aq1zj_PDbMo3zHZLJ_ngGG3ryR3vLv0kk9wleQcg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228400">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228401" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370333063"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin, we all understand that you feel angry at being told you're probably making the wrong decision. As a highly qualified professional who is daily responsible for peoples' safety, you prefer to think that you make the right decisions all the time. And, when you're piloting an aircraft, you undoubtedly DO make the right decisions. After all, that's what you spent years being trained for. It's your job and you're right to be proud of your skills.<br /> However, you're not medically trained; in the field of medicine, you have to take the experts' advice and guidance. The writer of this blog is an expert in the field of cancer - he's a cancer surgeon and researcher, with at least as many years of training and practice in his field as you have in yours. Why can't you trust his judgement in the matter of Burzynski's treatment?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228401&amp;1=default&amp;2=en&amp;3=" token="if26WVB0XM0M8Owa4jeqqY3hFdDA498fBl0VNzIViL8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">sophia8 (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228401">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228402" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370333440"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin, the reason they are not using the AP therapy right now is that SB was allowed to use them exclusively for clinical trials - something he's done for decades now. It has been noticed on this site before that a lot of his clinical trials seem to have disappeared from the clinic's website, probably for legal reasons. He might just not have any FDA accepted clinical trials left to enroll people in to legally use the AP.<br /> If you truly believe in is you can have your UK practitioner give you phenylbutyrate, that's one of the 2 compounds he seems to like. It's an orphan drug, and costs about $60 a kg, so you'll be getting a slightly better deal than with the B clinic.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228402&amp;1=default&amp;2=en&amp;3=" token="PyM15M1oJb6FXjkOMnowd7Dt5uQzZqor_jHqm8xcWBA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Mu (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228402">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228403" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370333694"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin,</p> <blockquote><p>What you do is in the most urgent of cases is what is needed to be done to survive. Some survive, some don’t that’s life. However, you try everything no matter how untried it is.</p></blockquote> <p>In the event of an unexpected midflight emergency, I'm sure you make some assessment of the likely efficacy of the "everything" you try "no matter how untried it is". From what I have read, most of Burzynski's successes are the equivalent a passenger desperately flapping his arms during an engine failure, and then claiming he saved the day, when it was actually down to the skill of the pilot performing an emergency landing. </p> <p>I doubt there is very much any US hospital can do for you that the Radcliffe or the Royal Marsden couldn't do on the NHS. If you want US treatment, you would be far better off going to the University of Texas M.D. Anderson Cancer Center than Burzynski's clinic, or to the Australian surgeon Orac mentioned.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228403&amp;1=default&amp;2=en&amp;3=" token="C0MI7f7MQoX3wbVJodN6I-I6a4qgJa3QI2-CSlS88QM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228403">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228404" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370333904"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>To be clear, the Australian surgeon isn't in the US.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228404&amp;1=default&amp;2=en&amp;3=" token="JVNoQngGITdOXgTJ5ftKR_nmb4JgXR4xeZun85p8xpk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228404">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228405" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370334415"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>I SAY AGAIN.</p> <p>YOU CANNOT GET ANTENEOPLASTON TREATMENT AT THE BURZYNSKI CLINIC AT THIS TIME!!!!!</p></blockquote> <p>Yes, Mr. Vizzard, we know that. However, when the FDA put a hold on antineoplastons at the Burzynski Clinic, it allowed Burzynski to keep treating clinic patients who were already receiving antineoplastons. It only dictated that he could not enroll any more patients in clinical trials and could not start treating any new patients with antineoplastons. That's still a lot of antineoplastons. I do admit, however, to some surprise that Burzynski's manufacturing facility is still apparently going full steam and producing 300 L of antineoplaston solution a day. I would have thought that the demand would be steadily falling since the clinical hold was placed on antineoplaston use back in January.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228405&amp;1=default&amp;2=en&amp;3=" token="HjlgQ3Ytf4roJLWaYtVDFj84VCx4U8i6P1IliKPDCHg"></drupal-render-placeholder> </div> <footer> <em>By <a rel="nofollow" href="http://scienceblogs.com/insolence" lang="" typeof="schema:Person" property="schema:name" datatype="">Orac (not verified)</a> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228405">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228406" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370335064"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>At least I have people who seem half interested in what’s making my cancer tick and I did not get that in the UK.</p></blockquote> <p>I'm sorry you have cancer. I really am. But I highly doubt that Burzynski really cares all that much about what makes your cancer tick. He's just good at using the latest buzzwords in oncology to put a glossy sheen on incompetently administered chemotherapy.</p> <p>Look at it this way. Despite his presenting himself as being some sort of genius who dreamt up the idea of cutting edge gene-targeted therapy, he is not. He is a guy in a clinic who uses a commercial test from Caris that anyone else can use if he wants to. He then basically mindlessly does what the test tells him, even though there is as yet no good evidence that using the test to guide therapy improves outcomes, without considering synergistic toxicities that could result from throwing together various witches' brews of very expensive targeted drugs willy-nilly just because the Caris test said the tumor might be responsive to individual drugs in the cocktail.</p> <p>Real cutting edge researchers don't do that. They develop their own tests. They or their collaborators take next generation sequencing results and interpret them themselves to come up with new therapies. Burzynski is about as far from "cutting edge" as you can be.</p> <p>As for his antineoplastons, they're a 46 year old idea (at least) that he's been treating patients with for 26 years and doing trials on for nearly 20 without publishing any complete clinical trial results. He's had more than enough chances to prove they work. Indeed, in the late 1980s and early 1990s the NCI bent over backwards to try to help him determine whether they work but failed because Burzynski was too intransigent to cooperate and collaborate.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228406&amp;1=default&amp;2=en&amp;3=" token="O3nj2bw9EWDY6RYd0TtiIRb49n-znyxAHL4jvo-5nNM"></drupal-render-placeholder> </div> <footer> <em>By <a rel="nofollow" href="http://scienceblogs.com/insolence" lang="" typeof="schema:Person" property="schema:name" datatype="">Orac (not verified)</a> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228406">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228407" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370334952"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin,</p> <p>I don't know what kind of airliner you drive, but with a good altitude at flameout, you may be able to glide for a hundred miles. That doesn't give you a whole lot of time to think about it, and all the time you're losing options along with your momentum. Cancer, meanwhile, seldom kills people that quickly. A day or two to review the literature will not usually affect the outcome. So I'm not really sure you picked the best comparison there. Cancer treatment, even for advanced cancer, isn't usually a panic-mode situation.</p> <p>You are definitely entitled to your opinions, and your choice of treatment. But so is everyone else. You will encounter people who disagree with you and who may even think you have made a poor choice; try not to take other people's opinions too personally. It'll go a long ways towards getting your own opinions respected.</p> <p>It is true that Burzynski has never published results from his clinical trials of antineoplastons nor from his targeted cancer therapy. Targeted cancer therapy is actually offered by many clinics; Burzynski has never adequately explained what makes his different. He claims it's different. He just doesn't really explain why.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228407&amp;1=default&amp;2=en&amp;3=" token="y1Z01c1c0k-LaReT9Mthw57aSnSdjSYuVDYi_Smrhm8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Calli Arcale (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228407">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228408" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370335444"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin - if you read only one more site, then read this:</p> <p> <a href="http://burzynskiscam.com/">http://burzynskiscam.com/</a></p> <p>That covers the experience of someone who went to the clinic expecting cutting-edge targeted therapy.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228408&amp;1=default&amp;2=en&amp;3=" token="TfY1hFPTHiBN-NubkktsexYn0ayVlVr-5lzCHOCwoH8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228408">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228409" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370335909"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>BTW, I tend to think of Burzynski as a modern version of Dr Brinkley, though Burzynski is more qualified and probably directly kills fewer patients than Brinkley did. His marketing practices are eerily similar, and like Brinkley, he has a devoted legion of fans who are convinced the he helped them or their loved one. I doubt he'll get as far as Brinkley did; few quacks are so bad that shutting them down eventually requires creation of a new agency (the FCC) and an international treaty. He was a spammer extraordinaire, long before the Internet, blasting radio waves from Mexico so powerful you could pick them in Canada. He'd have loved working with someone like Eric Merola.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228409&amp;1=default&amp;2=en&amp;3=" token="3n58WR8OdpF0xlIP-dhl8IOfCiGj6Cb5Hde7tUa3rIk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Calli Arcale (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228409">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228410" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370337893"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin. I too am stage IV (but with renal cancer). I used to fly planes as well. My drug therapy has grounded me - thanks to the FAA which appears (on the surface) to be more concerned about my health than the FDA - at least when it comes to Dr. B.</p> <p>If you are truly willing to go slightly outside the box I suggest contacting Dr. Thomas N. Seyfried up at Boston College. Read his book, "Cancer as a Metabolic Disease" wherein he describes both the theory and ongoing clinical trials that have resulted in some remarkable results for GBM patients.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228410&amp;1=default&amp;2=en&amp;3=" token="MOx53I_OViHYEoqhqaYgBTZ3EUi1xUl9bTc_rNjJJ0E"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Neil Feldman (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228410">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228411" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370339787"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Thanks for that Neil. I'll certainly have a look at that.</p> <p>I can tell you this Adam, for the brief period I saw Dr Burzynski he said nothing of the sort. He never said he could help, he said there are drugs which MAY help me but it was by no means guaranteed. You all seem very interested in all things factual so let's keep it factual. He pointed out to both me and my wife I am in a very bad position and he came up with a very clear plan to try the FDA approved medication based on my biopsy but if that didn't work " i needed to return straight home for radiation" That is word for what I was told. Yes, disappointing to be clocking out at 38 (hopefully 39) but I can assure you I'm not devastated. I'll let you into a little secret, it will happen to you all as well. It's just how you deal with it!</p> <p>I was offered Standard treatment ONLY in the UK as a private patient of the Harley Street Clinic. This is what I am annoyed about. Come on boys, think outside the box. </p> <p>I am taking FDA approved cancer drugs in the States. Also just as an aside I am absolutely stunned that educated people will get on a public forum and say that already approved and widely used cancer drugs DO NOT WORK! Please don't second guess what I'm taking, it's all approved and being used widely.</p> <p>You are correct I am not trained in the field of medicine. It is even more complex than the basic situations I have described to you. This in turn would demand a more inventive solution than "standard care". I said this on an earlier posting but I was told anything other than standard may "harm" me. Hmmm bit late for that.</p> <p>Also is anyone interested in how my GBM was found? I have an acoustic neuroma treated with Gama Knife in 2010. Glioma missed in 2011, 2012 and finally picked up on 2013 scan. Right to question the medical profession? I'll leave that open.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228411&amp;1=default&amp;2=en&amp;3=" token="LkRYQZozUh1-If3ycBLIQ4SYw47AJz_sud3B6DEY9xg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228411">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228412" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370341397"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin</p> <p>Nobody is saying that approved medication doesn't work (well, except things like phenylephrine...), just that it is very unlikely that Dr B has anything useful to give you here. If you feel the UK system has failed you and you could get better treatment in the US, then why not engage withg the mainstream US system instead of someone who shows all the signs of being a quack?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228412&amp;1=default&amp;2=en&amp;3=" token="s-Gx230lW5rnWoJ2A1aSR7Bnfbas6IgDZUL1a7B0td8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">nastylittlehorse (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228412">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228413" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370342307"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Come on boys, think outside the box.</p></blockquote> <p>You have already had Charles Teo suggested to you.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228413&amp;1=default&amp;2=en&amp;3=" token="qkPO_J1YLgmci2zaUN4MQXpYpBclQ2I1foJ3H9AlK7s"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228413">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228414" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370342759"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin, you don't seem to be getting this, but I know that there's bound to be cognitive side-effects with your type of tumour, so I'll explain it again.</p> <p>All you are getting at Burzynski's "clinic" is <b><i>standard chemotherapy</i></b>. That's it, that's all, end of. It's bog-standard chemo, the same stuff you could be prescribed by any oncologist. The only differences are that Stan isn't an oncologist, he's using the drugs off-label and apparently at random, oh - and he's charging way over the odds for them. Getting cancer treatment from a noncologist like Stan is like going to your dentist for a broken leg, then being charged two grand for him trying to repair the fracture with dental amalgam.</p> <p>The problems with his approach are legion, but one of the most common results of being prescribed his Chemo Colada is an ineligibility to enter into any other clinical trials run by actual oncologists.</p> <p>You're not the first person who's said "Chemo? I don't want that! I'm going to fly across the world to get Burzynski's 'Gene-targeted therapy' instead", without realising that chemo and GTT are the same thing. Sadly, you won't be the last.</p> <p>WRT costs - he overcharges for every drug he prescribes. His phenylbutyrate costs about $300 a bottle at any pharmacy, but his patients are only allowed to buy it from him for thousands of dollars. One woman got a drug company to waive the fees for the chemo that Stan was using on her, and had them shipped directly to her. Guess what? She was <i>still</i> charged tens of thousands ed dollars per month for "case management" and "drug storage and administration", even though they were neither storing nor administering the drugs.</p> <p>Sorry, but it's a racket. They'll wring you out until you're dry, and then throw you out into the street.</p> <p>There are only two possible scenarios with regard to Burzynski.</p> <p>1. He has the cure for cancer. It's effective against a number of cancers, but he won't publish anything that will allow the scientific community to replicate his success and develop treatment programs that will save lives. He's keeping it to himself instead and denying the chance of a cure to millions of people, forcing dying cancer patients to spend their final months schlepping to Texas.</p> <p>That would make him an amoral scumbag.</p> <p>2. He knows he's lying and that his treatments are bogus, and that's why he won't publish trial data and commence Phase 3 trials. Instead he's stringing along the families of terminally ill kids (some of whom are only infants), and he's fleecing dying adults up until the moment of death, knowing that it's all a sick lie.</p> <p>That would make him an amoral scumbag.</p> <p>Oh, and BTW, there are no "boys" here. Just grown men and women. Some are scientific/medical professionals, others are just lay people, but we're brought together by our desire to stop charlatans like Burzynski taking advantage of the desperate and the dying. You're not telling us anything we haven't heard before, and we all hope you'll survive your brush with this conman.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228414&amp;1=default&amp;2=en&amp;3=" token="uxjcKJpO1Jdl0d4MaXywnCJyNAygnYIswJbVBWfAYyA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228414">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228415" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370343095"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>And I thanked him for the suggestion. Already in contact and MRI scans on the way to Oz.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228415&amp;1=default&amp;2=en&amp;3=" token="2ZUWmXwlRQ2jqUGWANeL_k4VZLvo5__djHVWmfBbk70"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228415">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228416" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370344403"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin</p> <p>If you were told that there are no ANPs involved, then it would appear that SB is lying to somebody. He's telling his patients "no ANPs" (according to you), but telling the medical community that ANPs are the answer, that he's been doing successful trials with ANPs and he's ready to publish and he has all the answers. Also, if he's not using ANPs, why is his website plastered with ANP propaganda and studies that he has done?</p> <p>If I were you, I'd go down the road to Texas Children's Hospital and see some of his ex-patients for myself before committing myself to his hands!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228416&amp;1=default&amp;2=en&amp;3=" token="oo5sRSfMz32UXQj3z06g4_2QBzXDyebJpmMbrcDICaM"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Adrian Grieve (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228416">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228417" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370345194"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>"... 776 patients with brain tumors were treated in trials and that 15.5% have survived five years."</p> <p>Hmmmm - Is that better or worse than the Gerson protocol?!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228417&amp;1=default&amp;2=en&amp;3=" token="WgJBsymRYV61Jn0ye00hyXpcFsBnWRVgxWKsmi6Kdwg"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">JustNuts (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228417">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228418" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370345315"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Elburto, how can you possibly make any comment on the cognitive impact my tumour is having? You are just guessing in a pathetic attempt to strengthen your arguement. You know nothing about size location etc.</p> <p>What I am getting here is not standard in the UK. How many times do I need to repeat that? It may be standard here but not at home and they point blank refused to do it. Also you do not know the exact medication I am on OR if this is the same as I would get in the U.S mainstream system. All I would say is I am a VERY proactive person and check everything, then check again.</p> <p>Just grown men eh. That made me laugh you thought the need to point that out. Embarrassing.</p> <p>As for the last bit, you clearly have zero sense of humour and frankly what you posted was embarrassing.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228418&amp;1=default&amp;2=en&amp;3=" token="gO7NHobHwHEnqtyvSw1ae0AKa2lxVI6Ff0XUhQiSb2o"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228418">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228419" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370346469"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Let's see.....776 patients.....$100k a pop......that comes to $77,600,000.</p> <p><b>$77 million???</b><br /> No wonder the guy has a house that looks like Wakefield's.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228419&amp;1=default&amp;2=en&amp;3=" token="BQg2BPjQ4wga7-CjEVPFtVAFbdS04z_V0661jZQwAaQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">dingo199 (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228419">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228420" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370347132"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Just grown men eh. That made me laugh you thought the need to point that out. Embarrassing.</p></blockquote> <p>There's women here too, you know. Interesting you left that out. You're the one who called us all 'boys,' remember?</p> <blockquote><p>All I would say is I am a VERY proactive person and check everything, then check again.</p></blockquote> <p>I would keep very detailed records of all of your financial dealings then. Make sure you get hard copies of everything as each document is issued. Burzynski is notorious for financial trickery: </p> <p><a href="http://theotherburzynskipatientgroup.wordpress.com/2013/01/18/burzynski-patient-denise-d-s-story/">http://theotherburzynskipatientgroup.wordpress.com/2013/01/18/burzynski…</a></p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228420&amp;1=default&amp;2=en&amp;3=" token="059yBP_foAMDxvKlDno2L4CkB9Wug4pzY9KjDZxQeTo"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">AdamG (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228420">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228421" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370347087"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Adrian,<br /> Just to clarify what I said earlier. I have been told very clearly that Anteneoplastons are NOT available at the Burzynski clinic. </p> <p>The inference I was making earlier is that in my opinion he is continuing manufacturing them for a reason. That reason I do not know. I'm not sure why that would be a lie. He clearly believes in it but and is "selling" it to the medical community but not administering it to new patients. Big difference.<br /> I'll let you guys (happy elburto) slog it out here or in the medical journals as the the effectiveness of Anteneoplastons. I admit I'd like to see some more numbers, we'll see I suppose.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228421&amp;1=default&amp;2=en&amp;3=" token="0CZP6gloRLQ3hEhKI3R4CHioj2eIvfuZVAszamwqJL0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228421">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228422" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370347833"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Just to clarify what I said earlier. I have been told very clearly that Anteneoplastons are NOT available at the Burzynski clinic.</p></blockquote> <p>He can still use phenylbutyrate, though, which is in effect "AS2-1."</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228422&amp;1=default&amp;2=en&amp;3=" token="l79y1z12PQpsBhqY7f1HgMpW89iXK9YaRyRnTMkPh9Q"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228422">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228423" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370348152"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Wow, a lot of sense of humour failures here. Adam, it's not about the money. I paid a lot of money for private treatment in London. Basically it was crap.</p> <p>Checking. I'm not talking financial.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228423&amp;1=default&amp;2=en&amp;3=" token="bz7OjAK-xTt8cdUcDDtkU75VsaAh5OspPF575TRzsPE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228423">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228424" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370347992"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ Martin: Elburto is one of our most respected "RI Regulars", who posts from the U.K., and is one of our "experts" about the NHS.</p> <p>I believe you stated up thread that you are seeking treatment (a "traditional" anti-cancer drug?), that is not available in the U.K. My question to you would be, why did you chose Dr. Burzynski, who is not a trained oncologist, who has no hospital affiliations whatsoever and who...will get those "traditional" anti-cancer drugs from his family-owned Southern Family Pharmacy/Southern Family Pharmacy IV Infusion Company...at inflated prices?</p> <p>If there is such a "traditional" anti-cancer drug that is licensed in the United States and not in the U.K., every oncologist in the United States who is affiliated with large cancer treatments in the United States, can easily prescribed that drug and will not charge you at exorbitant prices.</p> <p>Elburto also mentioned a woman who successfully sued Burzynski (Lola Quinlan), to recover damages for the poor quality care she received and for using her as an ATM...depleting her life savings ($60,000 USD) </p> <p>Scroll down to see the lawsuit and other lawsuits brought by patients of Burzynski:</p> <p><a href="http://josephinejones.wordpress.com/2012/04/29/if-the-media-care-about-burzynskis-patients-they-must-pull-their-heads-out-of-the-sand/">http://josephinejones.wordpress.com/2012/04/29/if-the-media-care-about-…</a></p> <p>Sorry, I must go offline for now.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228424&amp;1=default&amp;2=en&amp;3=" token="5HODg1LdjqxueC4rwFUPVc2JjUCrthU3OP1yXLa5GQc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">lilady (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228424">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228425" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370348406"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin - then you'll enjoy paying even more for crap treatment here in the States....have fun!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228425&amp;1=default&amp;2=en&amp;3=" token="9PyfTtWSB80lohQRG6CUjBoLX2xZwCMtPEf5IlQEC2A"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228425">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228426" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370348228"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Narad, is that medication illegal in the U.S?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228426&amp;1=default&amp;2=en&amp;3=" token="feTYcBuh1NwVEBg7aEY73cUb6VoeCuSuDHvApg2Tt_A"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228426">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228427" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370348555"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Nasty ghost Lawrence! I've told you already</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228427&amp;1=default&amp;2=en&amp;3=" token="OXATKwQVRUv9weTv5YdoItpOSNpO3vUWAMTYFntUJlk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228427">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228428" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370348647"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@martin</p> <p>The MD Anderson Centre (Houston) is world famous for all the right reasons. Like the Starship Enterprise compared to Burz's broken horse cart. </p> <p>Please check them out first. Good luck from a fellow Manc.</p> <p>PS. Burz would not be allowed to do what he does anywhere but Texas - and maybe Nigeria. He also claims to have invented anti-cancer toothpaste and miracle anti-aging cream... Total charlatan.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228428&amp;1=default&amp;2=en&amp;3=" token="SgC1c3ZqDO7SGHbZgNvIf-VX3Xajdiup_H7Nus1leUY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Mark McAndrew (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228428">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228429" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370348794"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin, you saying that the treatment you are getting is not standard in the UK is like saying deploying the landing gear during cruise isn't standard for pilots. </p> <p>Burzynski uses known chemotherapy agents in a way that has no justification and charges a mint for the privilege. Unless the clinic has changed its SOP you can also expect him to disclaim any responsibility for your treatment if anything goes wrong (see reports on the clinic's past legal troubles).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228429&amp;1=default&amp;2=en&amp;3=" token="Amld7H1PGQKeut55K_z2DeH0KM6p0nRZ7oHF0LTJu2I"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Robert Szasz (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228429">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228430" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370349185"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Narad, is that medication illegal in the U.S?</p></blockquote> <p>No, nor did I suggest that it was. Sodium phenylbutyrate is an orphan drug, and it's orally metabolized into PAG ("AS2-5") and PA, which in combination are "AS2-1," viz., "antineoplastons."</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228430&amp;1=default&amp;2=en&amp;3=" token="NHNo9sKlvWsBsgOcd2qU1QMiqUZhA7xaS2t_Am_Eb5M"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228430">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228431" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370349053"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>I'm not a man Martin, and I am British, not American.</p> <p>I know what Burzynski uses because that information is available all over the place, posted by hopeful patients. It's been discussed here on this site too, and others. It. Is. Chemotherapy,</p> <p>You could have asked:</p> <p>-Maria V</p> <p>-Janet E*</p> <p>-Kathy B</p> <p>-Kenneth J</p> <p>-Denise D</p> <p>They're all dead. All victims of Burzynski's lies and his "Gene-targeted therapy' scam.</p> <p>I notice you've nothing to say about the woman charged tens of thousands of dollars for drugs she'd obtained for free from 'evil' Big Pharma.<br /> Are you getting sodium phenylbutyrate as part of your "treatment"? You can get that over here for standard prescription cost, about £8**</p> <p>*Janet's husband Dave was doing exactly what you're doing now. Defending Burzynski to the hilt, railing against actual oncologists, claiming that Burzynski had all the answers to his wives problems, and claiming that anyone who was against Burzynski was a shill, or evil, an agent of Big Pharma, trying to hide the truth, etc.</p> <p>Now he's a widower. A penniless widower, who spent his wife's last months chasing a fantasy and being force-fed lies</p> <p>Here he is in the same position you're in now:</p> <p> skepticalhumanities.com/2011/11/26/stanislaw-burzynskis-public-record/<br /> (ctrl+f for the word 'Janet')</p> <p>They comment for a while, insisting that Janet is healthy thanks to the GTT.</p> <p>Here's Janet's story: </p> <p> theotherburzynskipatientgroup.wordpress.com/2013/05/17/burzynski-patient-janet-e-s-story/</p> <p>We just don't want to see 'Martin V's Story' on TOBPG. None of us know you, but we don't want you or anyone else to throw every penny of your hard earned savings making Burzynski richer, while leaving your family grieving and destitute. It's so sad to see yet another obviously intelligent, hard-working person being victimised by someone who's either holding back the cure for cancer, or is just pretending that he is, for financial gain.</p> <p>You'd be better off buying 30,000 Euromillions tickets.</p> <p>Bonne chance.</p> <p>**Not sure of the exact cost, mine are free so I'm not up to date on the standard fee.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228431&amp;1=default&amp;2=en&amp;3=" token="oCZsIG87UeOtmXB4rdFAC8uv05pVcfixMoA8knewpZY"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228431">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228432" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370349157"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin, permit me to make an observation, one that I have picked up on in over 30 years of clinical practice observing how terminally ill patients react and respond to bad news, and how they react when they are then "sold hope" through the back door.</p> <blockquote><p>I can tell you this Adam, for the brief period I saw Dr Burzynski he said nothing of the sort. He never said he could help, he said there are drugs which MAY help me but it was by no means guaranteed. You all seem very interested in all things factual so let’s keep it factual. He pointed out to both me and my wife I am in a very bad position.</p></blockquote> <p>That's how they hook you in. Classical tactics direct from the pseudoscience playbook, following behavioural psychology 101.<br /> First thing is to drive you down to rock bottom. Pull no punches, and make sure to extinguish all hope. Basically, you are as good as dead. Then, when you are truly in despair, let a little chink of light shine in, and suggest there is just a tiny possibility of a glimmer of something which might occasionally help. Which only they can provide, of course.<br /> Human nature being what it is, you grasp at this straw for all it's worth - it really is your one and only chance of life. Once you are hooked, you are cleverly played. They give you stories of patients "surviving", and before you know it, you start down the path they want you to follow. Once committed, they make sure you know that to stop now would make you end up in a worse place than you were to start with. You can't risk any deviation from their agenda. They are home and dry. On your part, no cost is too prohibitive, no effort too much. You want to live, and you need to believe, and part of your subconscious way of coping and surviving is through eliminating any suggestion that you might be making the wrong decision. Cognitive dissonance can often be the most powerful driver of irrational human behaviour, and it seems to be so wrt Burzynski.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228432&amp;1=default&amp;2=en&amp;3=" token="jVqOJ8sUKvCbn2Rfx-2vrn_lwiNPkr7BbrJabuo32SQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">dingo199 (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228432">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228433" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370349677"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>"you guys (happy elburto)"</p></blockquote> <p>Just checked, still not a bloke. Happy? Given my situation yeah, as happy as I could be.</p> <p>If you feel cheated by the "crap" you were charged for here in the UK, you won't like the Burzynski clinic. They'll bill you for every syringe, every sticking plaster, infusion bag, cotton ball etc. </p> <p>If you don't care about the money, then fair play to you, must be nice, but be warned - the more money you've got, the more Scamley will squeeze you for.</p> <p>It can't hurt to pay a visit to MDA.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228433&amp;1=default&amp;2=en&amp;3=" token="J-Fr0Ro4xbchxyd987GiXr2YzjKzDwtxZd4PElzafeQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228433">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228434" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370350437"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Dingo - Don't forget that Burzynski (and other charlatans) have one final song in their playbook - if the treatment works it's all down to them, and if it doesn't? That's the patient's fault for not following the protocol/following the right diet/being positive enough.</p> <p>That lets other patients believe that they'll be fine, it fulfills the 'Just World Theory'. They'll eat the right foods, follow the protocol to the letter, keep positive and keep praying for a miracle, and they'll live. The others, the ones who died? They must have done something wrong.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228434&amp;1=default&amp;2=en&amp;3=" token="qYs_bsmHoXa4ddYAtlBccuiYLi2W0xNPQQzZe6VhXEs"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228434">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228435" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370352187"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>He also claims to have invented anti-cancer toothpaste and miracle anti-aging cream…</p></blockquote> <p>Let's not forget the proposed <a href="http://legacy.library.ucsf.edu/tid/awq10a00/pdf">prophylactic cigarette</a> (PDF).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228435&amp;1=default&amp;2=en&amp;3=" token="5NjlBmIRx-WP6MSjoDnxf1ukBybvfKSIh1oTBXAUS-Y"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228435">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228436" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370352405"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@ Martin Vizzard:</p> <p>I truly hope that there is help for you but I doubt it will come from Dr B.<br /> Being a psychologist, I'm not expert in cancer therapies, but I do survey alt med / natural health and their methods of inveigling patients away from SB care. I can second Dingo199's excellent presentation of how charlatans work.</p> <p>You are obviously intelligent and accomplished but that is no absolute guarantee against being fooled especially when you are facing such a dire situation: emotions can and do affect our judgment. No one is immune. </p> <p>If you were not helped at Harley Street, there are other reasonable places and clinical trials. I am glad that you are following up on the Australian surgeon. The suggestions for American clinics like MDA or SK are also wise.</p> <p>Whatever happens, I sincerely hope that you are amongst the fraction who do survive despite the odds.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228436&amp;1=default&amp;2=en&amp;3=" token="WjPfnXAebBbxWC3JkVtg8LXy3sJ571d1LfcQou-qKV8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Denice Walter (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228436">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228437" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370352567"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Denise - I agree. I wish Martin nothing but the best &amp; do hope that he finds a treatment that at least helps him prolong was seems like a very interesting a fulfilling life.</p> <p>I also hope that he doesn't get swindled by Dr. B &amp; spend whatever remains of his life under a quack treatment that has no good evidence to show that it will do anything other than empty his bank account (for whatever loved ones he leaves behind).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228437&amp;1=default&amp;2=en&amp;3=" token="k6zs7fpIQN9KQ9g8RSVxag8ba33mkWcHHpXYaOcoEYQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228437">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228438" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370353711"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin Vizzard - this is meant in all seriousness and with no agenda. What evidence (besides a few patient testimonials) has the Burzynski Clinic given you on the effectiveness of their gene targeted therapy? If he's actually getting better than standard results, it would be good to know.</p> <p>Thanks.</p> <p>BTW - I think you have exaggerated the General Prudential rule. I understand that when you're in (or approaching) an extremis situation then you cannot stick to all the published flight rules if doing so will cause an accident. On the other hand, you cannot go outside the envelope (outside the box, maybe, but not outside the envelope). You don't pull Gs that would rip your wings off; you don't open the cabin door at 30,000 feet, you don't try to extend landing gear at mach, etc. You never throw away all the rules.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228438&amp;1=default&amp;2=en&amp;3=" token="oR4jqeFvKQQD2ouoNoQhZZEq9D41IiicO0R06NC73Yc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228438">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228439" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370353968"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>My apols Elburto, it was the name the foxed me. Trying to be a PC as possible but had you down as small, maybe slightly tanned with a small handle bar moustache. It's the interwebs fault, all these user names, that's why I just use my name, less confusion. </p> <p>Allow me to assure you all that I am no shrinking violet. Some may even go as far as saying gobby Northerner. However I will not be railroaded by anyone. I have been "shopping around" and am fully aware of all my options. I have been in contact with numerous facilities who if I think can help will be helping me.</p> <p>Try not to worry too much about Mrs V, she'll be more than alright!</p> <p>Have any Anteneoplaston patients ever been on here? My goodness I bet you lot pull them to shreds!</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228439&amp;1=default&amp;2=en&amp;3=" token="kL9w8uEF9dvmL4f0jFaup9NHs7XEMCPh48k0tyCF3EQ"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228439">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228440" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370354074"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Martin,<br /> Just to be clear, I am interested in your well-being, and that is my only motivation in trying to persuade you to seek better medical care.</p> <blockquote><p>I was offered Standard treatment ONLY in the UK as a private patient of the Harley Street Clinic. This is what I am annoyed about. Come on boys, think outside the box.</p></blockquote> <p>"Standard treatment", as you put it, is the best available, as assessed by NICE. I have worked in NHS hospitals and in a BUPA hospital in the UK; private treatment may allow you to jump the queue, and you may get a nice private room, but you will generally get the same treatment you do on the NHS, often from the same doctors. There are some cancer drugs that aren't available on the NHS, but they are mostly very expensive and unproven. There are doctors and scientists worldwide thinking outside the box and looking for safe and effective treatments, but conventional treatment is the best we have at present. </p> <blockquote><p>What I am getting here is not standard in the UK. How many times do I need to repeat that? It may be standard here but not at home and they point blank refused to do it. </p></blockquote> <p>If they refused point blank to do it, they must have had very good reasons for doing so. The point is that Burzynski, who is not a trained oncologist, uses these drugs in combinations and doses that have not been tested, for types of tumors they were not designed to treat. That's a dangerous and cavalier way of going about clinical innovation. Unexpected side effects are far more likely than unexpected benefits.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228440&amp;1=default&amp;2=en&amp;3=" token="0E0DWAx1Nv80Z_sNWWds6Xp6QUXBG26D2_iGS0gV7bA"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Krebiozen (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228440">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228441" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370354782"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Yes you can. The aircraft manufacturers do not issue guidance on all events. It would get very boring very quickly if I started war stories but let me assure you overspeeding the flaps or gear or exceeding any limitation when you have a cockpit full of smoke. And I have had a cockpit full of smoke, amongst other things. At that point it is basic survival mode. I have friends who have done strange things and lived. Others stuck to the rules and have died. Allow me to point you to the Swissair Canada accident as an example of how NOT to do things. I am not being over the top with that in any way.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228441&amp;1=default&amp;2=en&amp;3=" token="7ScZxnWbTdElpAsqu5mJ8VNNrbB3Mdg3HReEBn5tVAE"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228441">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228442" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370354851"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Hell, there’s nothing stopping him publishing his own journal, is there? He could rope in any supporters to help with capital (why change the habit of a lifetime?) and publis/distribution</p></blockquote> <p>If burst ski (that's what autocorrect gave me and I think it's better than his actual name), anyway, if Burst Ski genuinely wants to publish, all he has to do is stick his data up on the interwebs. He's very keen to exploit modern media modalities when it suits him. The FDA could do absolutely nothing to stop him presenting all the objective data for his competently performed controlled trials that he has filling up his filing cabinets after all these years. </p> <p>For Burst Ski to say he'll be publishing "soon" after decades of supposed trials, hundreds of patients and tens of millions of $$ is pathetic.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228442&amp;1=default&amp;2=en&amp;3=" token="OZklXPbx2Y1SqSGzDFgbYLrPt5SID2UzlFXwhjAODtI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Badly Shaved Monkey (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228442">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228443" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370356224"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>@Martin - I know, that if you'd look, you'd see that we have nothing but the greatest sympathy for the patients....and unfortunately, we've seen few, if any, because the vast majority of those who received Dr. B's treatment are now dead.</p> <p>Again, if you want to see how the clinic operates, all you need to do is take a look at the patient histories posted on "the Other Burzynski Patient Group." The final quality of life of those individuals is not something I would wish on my worst enemy.....</p> <p>It would make all of us extremely happy to be proven wrong, that Burzynski actually does have an effective treatment, but unfortunately, because of the way he operates &amp; refusal to make any of his results / trials known, it is impossible to know what is effective....but in light of the results that are seen (the dead children, husbands, wives, mothers and fathers) and the same sickening descent and progression of diseases, with the same platitudes, like read from cue-cards from the clinic, it really doesn't look good, not at all.</p> <p>You've been pointed in much more promising directions, to organizations and researchers / oncologists that actually publish results and stand behind them - which Dr. B does not....in situations where people are desperate, it is horrible that all he offers is empty hope.</p> <p>Please take our advice in the manner in which it is intended, to prevent you from making a grave mistake with what remains of your life.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228443&amp;1=default&amp;2=en&amp;3=" token="SJUKJ8dujL3RUQoWUPH9U_HhGbt2dFlqGcivMtUmjF8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Lawrence (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228443">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228444" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370356766"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Lawrence, that's cancer isn't it and that's the hand I have been dealt so I need to play it now. Be assured I will not be wasting any time (please no-one mention money AGAIN) in having my treatment analysed (and not by the Burzynski clinic) and if it doesn't work I'll shake their hands thank them for trying and move on to my next option.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228444&amp;1=default&amp;2=en&amp;3=" token="Nzd0j4awqwoT4ufPvk83QRuE5T7rp_EM3SRImS96DoI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228444">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228445" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370357689"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>He’s very keen to exploit modern media modalities when it suits him.</p></blockquote> <p>I imagine that a lot of red arrows drawn all over the page could go a long way.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228445&amp;1=default&amp;2=en&amp;3=" token="nP_XKpyQRHHL3CFZClEANDjqWjTRV45krMy-ThjLUQ0"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Narad (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228445">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228446" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370358077"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>You clearly are more experienced than I am. It was drilled into me that the emergency procedures and system specs were written in blood. I withdraw my comment.</p> <p>However, if you do find some information from the Burzyinski clinic that shows that their techniques are more effective than the current standard of care, please do let us know.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228446&amp;1=default&amp;2=en&amp;3=" token="VjnxM3Y19CCcewTJPyXmYeG1lH0vxOJvXw53y3DE56Q"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228446">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228447" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370358521"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>You know what BSM - I never even thought about the straight-to-web route. Couple of mouse clicks and it would all be there, all that lovely evidence.</p> <p>@Martin no 'tache I'm afraid. Tried it, couldn't pull it off. If I can't have a perfect Poirot 'do, then I'm not bothering!</p> <p>We've had Burzynski families here. We don't shred them at all. We're scared, sad, worried for patients and their families, the only people we're angry at are Stan's Scam Clan. They lie, and wheedle, and spin fantasies and false hope. They show people who are in a dark tunnel a bright light. Unfortunately it isn't a beam of hope, it's an oncoming money train, bearing down at full pelt.</p> <p>That's why we're angry at him. Every single person here has lost someone to cancer or fought it themselves. We know how easy it is to be manipulated when you're that desperate. Even Orac himself has been there, watching someone die, knowing that even as an oncologist at the bleeding edge of cancer research, he couldn't help.</p> <p> I know that if I was offered a cure my my problems I'd desperately want to grab it with both hands, I would do almost anything to get out of this room, but "almost" is that key word. If there's no evidence that it will help, then I can't put Other Mrs elburto through that out of false hope, she's got enough on her plate.</p> <p> Working for the NHS I heard heartbreaking stories from people who were trying to come to terms with imminent death. I saw my own grandmother aggressively resuscitated over and over, because nobody wanted to let her go. As I lay holding her, telling her it was ok to just let go, that wasn't because I didn't love her. I told her to let go because I loved her to death, literally. I didn't want any more pointless pain, but at the same time I was desperate for a last minute breakthrough.</p> <p>We know what it's like.</p> <p>If you check out The Other Burzynski Patient Group (links upthread) you'll see in Amelia's Story that her dad, Richard, came here because Orac had explained that Burzynski's claim that little Amelia's tumour growth was "cysts forming as the tumour dies", a lie that made the family ecstatic with hope, was just that. A vicious, wicked lie. One that's told to every brain tumour patient at the clinic.</p> <p>Orac recommended that. Richard get a second opinion from a real oncologist. Amelia died soon after, and in the second Burzynski film Merola implies that her death was because the ANPs were stopped.</p> <p>She was a beautiful little girl whose parents did what they thought was best, who fought to keep their precious child alive. They were sitting ducks for the Burzynskiites, who bombarded them with success stories, and love-bombed them during a dark, bleak time. They were conned into taking that poor kid halfway round the world, and having her pumped up with stinking, toxic infusions around the clock, while being told that a few months of discomfort were worth it, because she'd have so much time left after the treatment.</p> <p>I've cried real tears over Amelia, and over little Luna Petagine who suffered so horribly, while her parents were being told to stick with the treatment because it was working. Tiny little Luna, slobbering and urinating constantly, desperately trying to chug water, her little face bloated and distorted. That image haunts a lot of us.</p> <p>I truly, honestly hope we never, ever see 'Martin V's Story' on TOBPG, and that you have years ahead of you you.</p> <p>Gan canny man.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228447&amp;1=default&amp;2=en&amp;3=" token="EYfHBohySjCWAmPzfudbRStV23qzT5IIRHVLfVSDCmU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">elburto (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228447">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228448" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370358531"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>and if it doesn’t work I’ll shake their hands thank them for trying and move on to my next option.</p></blockquote> <p>Aren't you worried that they'll give you inaccurate interpretations of your tests in order to retain you as a patient? How can you make sure you're not being lied to, given that you aren't qualified to analyze the test results yourself?</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228448&amp;1=default&amp;2=en&amp;3=" token="qa55rAyLSgjkv-S8kcuPIX4jecEcOvDTmBMJi6BU9ac"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">AdamG (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228448">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228449" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370360901"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><blockquote><p>Couple of mouse clicks and it would all be there, all that lovely evidence.</p></blockquote> <p>And this is the central issue. It's not that Buttinski's treatments definitely don't work; they <i>probably</i> don't work. The real issue is that he clearly holds in his hands plenty of evidence by now that would show whether his treatments <i>might</i> work. The resolution to this is entirely in his hands. The only fact we know about his treatments is that he holds data and will not release it. </p> <p>As you have said there are only two scenarios available to us and both lead to the same conclusion.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228449&amp;1=default&amp;2=en&amp;3=" token="AQWFRChrg4CYFJOtUxbV4c7kq25VYwPdNK-Eh6v3mfU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Badly Shaved Monkey (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228449">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228450" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370362578"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>That was a really nice post Elburto, thankyou. I realise that most contributors here are either involved in treating or developing new treatments in the U.K and U.S and it certainly isn't my intention to be disrespectful. I understand your pain with the loss of your Grandmother, I have seen that first hand also.</p> <p>I have read a lot on these pages but not really looked at patient testimonials. My treatment is my treatment, it mind sound cold but I'm not interested, especially in those who have recovered. I'm not going to be conned into thinking all will be well by my mind. Why? Because all is not well and the odds are complete crap. </p> <p>All I wanted to do is get a multiple option plan which included off label drug use then chemo and radio if appropriate followed by a couple of other options I've been chasing up both in the UK and US. Not just one option. Option B is at a world class establishment with a new plan c of Australia (scan dependant). Other options in place also.</p> <p>To be honest I feel a little annoyed by the UK system. I have been scanned 4 times since 2010 (right Acoustic neuroma) and this was picked up early Feb 2013. Early 2011 find and it's a different scenario (but not ultimately). Going back and reviewing the scans I was told sorry we missed it. It's abit unusual really, I've no headaches, seizures, blackouts, numbness, tingling, nothing. I was in Queens Square having function tests before the biopsy and the doc was saying "your stronger than me". Cognitive, seem ok but after today some here may say I've lost the plot. The scans say something different though. Until 7th May flying around, high speed decision making, co-ordination fine. It is really strange, feel like I should be at work!</p> <p>However I'm aware the onset could be rapid, that's why I won't have anyone waste my time. Simple question, 3 weeks, is it changing? No I'm gone, Yes look closer, independent check, review implement continue.</p> <p>Adam G, I won't be analysing, that will be done by someone very qualified and totally independent, in the UK.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228450&amp;1=default&amp;2=en&amp;3=" token="r7jW5CSknAvDzarFjjkaiC3fqFz8k_Vi-yHBFsicGW4"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228450">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228451" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370364169"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p><i>I have friends who have done strange things and lived. Others stuck to the rules and have died. </i></p> <p>I imagine that it is difficult to design a double-blind random controlled trial for different approaches to cockpit emergencies.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228451&amp;1=default&amp;2=en&amp;3=" token="C8JYLrsFFONa6OYjD9H9mxg46RsEKhA1WlYVyO3AGW8"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228451">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228452" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370365037"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>herr doktor bimler - they generally frown upon blind pilots. But then, those pilots don't notice the frowns.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228452&amp;1=default&amp;2=en&amp;3=" token="93dNQug3uxdRJhlZKdQD9c7LBjJdktQz2xf9KYId7zk"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Mephistopheles O&#039;Brien">Mephistopheles… (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228452">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228453" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370366167"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Mephistopholes - nor does smoke impede their vision.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228453&amp;1=default&amp;2=en&amp;3=" token="rPiNDHhd7Wftsh6I-sOpcWMu1U1iI1V129X_I0_4pYc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">dingo199 (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228453">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228454" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370366866"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Your quite correct, it doesn't dingo. Nice post Herr Doktor by the way, thanks for that.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228454&amp;1=default&amp;2=en&amp;3=" token="fcBUZrrrIEmjM2rW4uriyE_727rB8Mo9xYziYVdWEFI"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228454">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228455" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370370715"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Best wishes, Martin.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228455&amp;1=default&amp;2=en&amp;3=" token="SREIUoGY9a0scFCdVoxThcqc0VB2S-LdznXddMXe6Mc"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">herr doktor bimler (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228455">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228456" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370371254"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Thanks.</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks" arguments="0=1228456&amp;1=default&amp;2=en&amp;3=" token="bqe6Y5nu97JwKblGu1hnpo7H7e-YAq6NOfoCqXPXqDU"></drupal-render-placeholder> </div> <footer> <em>By <span lang="" typeof="schema:Person" property="schema:name" datatype="">Martin Vizzard (not verified)</span> on 04 Jun 2013 <a href="https://www.scienceblogs.com/taxonomy/term/1108/feed#comment-1228456">#permalink</a></em> <article typeof="schema:Person" about="/user/0"> <div class="field field--name-user-picture field--type-image field--label-hidden field--item"> <a href="/user/0" hreflang="und"><img src="/files/styles/thumbnail/public/default_images/icon-user.png?itok=yQw_eG_q" width="100" height="100" alt="User Image" typeof="foaf:Image" class="img-responsive" /> </a> </div> </article> </footer> </article> <article data-comment-user-id="0" id="comment-1228457" class="js-comment comment-wrapper clearfix"> <mark class="hidden" data-comment-timestamp="1370373194"></mark> <div class="well"> <strong></strong> <div class="field field--name-comment-body field--type-text-long field--label-hidden field--item"><p>Best of luck Martin - if you do end up with more interactions with Dr. B, we'd love to get a full report (since there is no other way to get information out of that man, it seems).</p> </div> <drupal-render-placeholder callback="comment.lazy_builders:renderLinks&q