chronic illness

On The Pump Handle, Liz Borkowski surveys a new report on chronic illness released by the Institute of Medicine. Borkowski writes, "diabetes and heart disease are what leap to my mind—in part because they're so tied to the lifestyle factors of smoking, inadequate exercise, and poor nutrition, and in part because they cost our health system so much money." But other physical (and mental) afflictions beleaguer tens of millions of Americans (116 million of which, for example, suffer from chronic pain). In total, the IoM report "highlights nine 'clinical clusters' that together 'encompass and…
I wrote last month about the role of chronic diseases in healthcare-cost growth, so I was excited to see a new report from the Institute of Medicine called Living Well with Chronic Illness: A Call for Public Health Action. When I think of chronic illness, diabetes and heart disease are what leap to my mind -- in part because they're so tied to the lifestyle factors of smoking, inadequate exercise, and poor nutrition, and in part because they cost our health system so much money. The IOM report notes that chronic illness represents 75% of the $2 trillion the US spends each year on healthcare…
Wow. I really don't deserve this but I truly appreciate your concern, advice, and best wishes sent over the last few days following my post on losing, and slowly regaining, my voice. I didn't know anyone was still reading but some of you must have seen my RSS feed pop up under the cobwebs on your reader. What's interesting is that I generally look well in person other than getting winded when walking too fast or going up stairs (yes! I can walk up stairs now! w00t!). And to be honest, the loss of 14 lbs I didn't need has actually made me look a little more fit. I've still got a long way to go…
. . .because my voice has also been absent from the offline world. Yes, the final gift to me from LungMutiny2010 is a case of inhaled corticosteroid dysphonia - and another opportunity to cultivate compassion for those with chronic illnesses and permanent loss of physiological functioning. Here's a recap: After a three month battle with pneumonia, I returned to the university as much as I could about six weeks ago. I say "as much as I could" because, once again, I was amazed by how little my body would let me do after being confined to bed for ten weeks. Some days I'd just be doing great and…
From the "unsubstantiated evidence" files, I wanted to share with you a quick light that popped on in my head while reading a much-discussed article from last weekend's New York Times magazine. In it, former House & Garden magazine editor Dominique Browning vividly shares her experiences following the folding of the magazine in 2007. This long-form essay is adapted from her upcoming book, Slow Love: How I Lost My Job, Put On My Pajamas, and Found Happiness. Much can be discussed about her experiences but I was particularly struck by the account of her response to her newfound "freedom."…
A few weeks ago, I wrote a post about being stricken with pneumonia and my reflections on what it must be like for people who live continually with chronic illnesses. I was surprised by the response from many readers, quite a few of whom I've never seen comment here, who voiced understanding and even relief that a "normal" would take the time to reflect on what their life might be like. Well, my illness is continuing even longer than my pulmonologist had expected and this has evoked for me a whole new layer of emotions. I write the following not for sympathy or concern, but rather for the…
Just a quick post on an article that caught my eye: Jazz Pharmaceuticals of Palo Alto, CA, has announced that the US FDA has accepted their new drug application (NDA) filing for JZP-6, or sodium oxybate, for the treatment of pain and fatigue associated with fibromyalgia. The NDA was based on positive outcomes of two, Phase III clinical trials - those randomized, placebo-controlled double-blind trials that serve as the gold standard for drug efficacy. The company expects an approval decision from FDA by October 2010. Jazz has already garnered approval for sodium oxybate under the brand name…
I started strong this morning, lots of e-mail interaction with the lab and even a few hundred words on a blog post, but then had another setback. Hence I offer you a photographic (iPhone cam) composition entitled, "Still Life." I am too young to feel this old. (Special note to PalMD: No vomiting from the new clarithromycin but, damn, my pee smells funny.)
I'm always pleasantly surprised when a topic generates enthusiastic reader feedback, particularly when comments come from long-time readers who share experiences I never knew they had or, in some cases, comment for the first time. The topic this time was a simple reflection on my current bout of pneumonia and my being taken aback by how debilitating it has been mentally. It's taken me two days just put put together these few sentences of what will essentially be a referral post. A very thoughtful commenter posed a question to me about what does it mean to be "really sick." What is long-term…
I have just a couple of thoughts today that I offer to the reader not for sympathy but, rather, for scientific observation and reflection. I've been dealing with a case of bronchitis that became pneumonia. I tried to teach through it, do grant reviews, finish a book chapter, etc. but was finally ordered by my pulmonologist to recuperative bedrest at home for approximately four weeks. When told I'd be confined to bed for a month, I thought that it would be great - that I'd get two papers and a grant renewal done and still have plenty of time for blog posts I've been wanting to get to, finish…